Thesis (M.S.)--University of Michigan, 1988.

Thesis (M.S.)--University of Michigan, 1988.

Thesis (M.S.)--University of Michigan, 1995.

Thesis (M.S.)--University of Michigan, 1995.

Thesis (M.S.)--University of Michigan, 1995.

This study used the conceptual framework of emerging adulthood to explore the following question: “What are the post-care housing experiences of youths who have transitioned from care through the Independent Living with Supports (ILS) program offered by MacDonald Youth Services (MYS)?” In order to answer the research question, semi-structured interviews were conducted with ten youths who had aged out of care through the ILS program. Six service providers who worked with youth in and from care in various capacities and from various agencies were also interviewed. Content analysis was used to analyze the interview data. The youths’ housing experiences were characterized by multiple moves post-care, including homelessness in the case of seven youth participants. These findings mirror the literature. In addition, none of the youth participants indicated they were successfully connected to formal supports prior to leaving care... / May 2016

M.Cur / To be able to nurse effectively in a critical care unit, a nurse needs to have extensive theoretical knowledge, excellent clinical skills and a certain degree of technological knowledge. The Diploma in Critical Care offered at higher educational institutions, in collaboration with private/public health delivery institutions within South Africa, aims to equip nurses with the necessary knowledge and clinical skills they need to work in this stressful and complex environment. Learners found that during the programme for the Diploma in Critical Care they were faced with a large amount of stress and demotivation due to reasons such as not being treated like an adult, the increased workload and the demands of the theoretical and clinical programmes. Some learners were faced with theoretical and clinical challenges and felt that they needed to be prepared for academic work at a higher educational institution, some found that they experienced emotional stress due to a lack of knowledge and the responsibility of being delegated to nurse critically ill patients. If a learner is unable to succeed in the programme the first time there are financial implications for the learner, the higher educational institution and the health delivery institution. It was previously thought that prior experience in a critical care unit was sufficient preparation to succeed in the critical care programme, but not all learners are exposed to the same learning opportunities prior to commencing with the programme and therefore learners do not enter the programme with the same knowledge base. There are also various factors that influence the learner during the programme. A private health group in Gauteng implemented the successful completion of a clinical skills workbook as part of the requirements for learners registering for the Diploma in Critical Care. The workbook focuses on the attainment of basic clinical skills that are required to be able to work in a critical care unit and not on basic theoretical knowledge. In view of the above it remains unclear whether the clinical skills workbook implemented by a specific private health care group is sufficient preparation for a learner prior to commencing with the critical care programme. The aim of this study is to determine whether the completion of a critical care pre-programme study guide will make a significant difference in the success of learners from a private health group in Gauteng who register for the Diploma in Critical Care at a specific higher educational institution. To achieve this goal the following objectives were stated: 1. Develop a pre-programme study guide. 2. Implement the pre-programme study guide. 3. Determine if the completion of a critical care pre-programme study guide makes a significant difference to the success of learners from a specific private health care delivery group during the Diploma in Medical & Surgical Nursing Science: Critical Care Nursing (General). To achieve the goal of the study, a quantitative, quasi-experimental and correlational design will be used. The study will be divided into two phases: phase one will involve the development of a pre-programme study guide for the critical care programme, based on a literature review. Phase two will include the implementation of the pre-programme study guide, and the research methodology for this phase will be an untreated control group with a pre-test and post-test. The pre-programme study guide made a significant difference to the cores of the experimental group in terms of the pre-test and pot-test scores, whilst the control groups scores neither improved nor deteriorated. There was no significant difference between the experimental and control group in terms of the pre-test, post-test, semester marks and exam marks. This could be due to the large standard of deviations that were obtained. The null hypothesis was accepted. The completion of the pre-programme study guide can be used as part of the requirements for learners registering for the Diploma in Critical Care and can help alleviate the stress and demotivation experienced by the learners during the Diploma in Critical Care.

Philosophiae Doctor - PhD / Introduction: The overall aim of this study was to develop a programme to facilitate quality client-centred care in Primary Health Care clinics of the rural West Coast District. Research design and -method: Both quantitative and qualitative methods were applied for this study . Phase 1, a situational analysis collected and analysed quantitative data from the perspective of clients and clinical nurse practitioners via structured questionnaires. The population included all clients 18 years and older (N=137 991) of the fixed clinics (N=25) in the five subdistricts of the West Coast District. According to the Cochran formula a sample of (n=383) should be adequate to represent the population. Non-proportional sampling was applied to estimate the number of participants per clinic. An all-inclusive sample of (n=64) clinical nurse practitioners participated in the study. Phase 2, the qualitative part of the situational analysis, applied five focus group discussions to explore and describe the managers and allied health professionals’ perceptions about quality client-centred care. A semi-structured interview schedule was compiled to guide the focus group discussions. An all-inclusive sample was utilised to include all the managers and allied health professionals of the five subdistricts (N=43). Phase 3 included the development of the programme based on the study findings and literature. Quantitative results: The analysis revealed the following quality client-centred care challenges, namely: Patient Rights (Domain 1) were not always respected and adhered to as these were characterised by: language (statistical p<0.001 and practical significant with a large effect size d=0.74); Satisfaction and Safety (statistical p<0.001 and practical significant with a medium effect size d=0.55); Referral Procedures (statistical significant p<0.001); Waiting Times (statistical p<0.001 and practical significant with a medium effect size d=0.47) and Confidentiality difficulties (statistical p<0.001 and practical significant with a medium effect size d=0.68). The Domain 2, Clinical Governance, Care and Safety showed shortcomings as highlighted by the Client and his/her Family (statistical p<0.001 and practical significant with a large effect size d=0.77). Clinical Support Services, Domain 3, revealed inadequacies regarding the continuous availability of medication (statistical significant p<0.008) and the reporting of side-effects (statistical significant p<0.001). Furthermore, Public Health Domain 4, showed that clients identified community health promotion and disease prevention events (statistical p<0.01 and practical significant with a large effect size d=0.79), and home visits by the community healthcare workers (statistical p<0.001 and practical significant with a large effect size d=1.09) as both a “problem” and a “gap”. Leadership and Corporate Governance, Domain 5 was characterised by the lack of: visible organograms (clients mean 2.40), community communication (clients mean 2.12 & clinical nurse practitioners mean 2.36), visibility of goals, values and future plans of the Western Cape Department of Health (statistical p<0.001 and practical significant with a medium effect size d=0.59) and role and function of the clinic committees (statistical significant p<0.008). Moreover, Domain 6, Operational Management was challenged by inadequate staffing levels (statistical significant p<0.003). Lastly, Domain 7: Infrastructure was characterised by the lack of drinking water in the waiting areas (clients mean 2.08 & clinical nurse practitioners mean 2.02), inadequate clinic space (clients mean 2.10 & clinical nurse practitioners 2.23); maintenance not up-to-date (statistical significant p<0.002); physical appearance of the clinic (statistically significant p<0.001) did not have a positive effect on staff morale and evacuation plans (statistical p<0.001 and practical significant with a medium effect size d=0.54) were not visible. In addition, correlations between the domains showed that the domains are not in silos, but are interdependent on another. Qualitative results The qualitative, thematic data analysis revealed various inadequacies regarding quality client-centred care. Theme One about the Patient Rights revealed that patients were not always treated with the necessary respect and dignity. Theme Two concerning Patient Care, revealed that focus group participants were well-informed on what the concept client-centred care entailed. However, patients and or clients did not always experience their care as client-centred. Theme Three about the Clinical Support Services, indicated shortages of medication and medical equipment; long waiting time for specialists and rehabilitation referral appointments. Theme Four, referring to the Public Health confirmed that health promotion and prevention activities are limited, due to various organizational factors and community healthcare workers’ activities which are limited to home-based care activities. Theme Five, Corporate Governance and Leadership matters were characterised by too many processes or “red tape” resulting in inefficient procurement processes, inadequate staffing and inactive health committees. Theme Six, Operational Management highlighted the severe pressure under which the operational managers have to work, resulting from their twofold role of being the clinic manager and at the same time operate as a clinical nurse practitioner. Theme Seven refers to Infrastructure and Facilities and is characterised by inadequate maintenance and lack of space according to the number of clients and package of care. To summarise: The situational analysis revealed 81 problems. These problems form the evidence base for the development of the programme to facilitate quality client-centred care in primary helth care clinics of the rural West Coast District.

O objetivo desta dissertação foi investigar os Cuidados Paliativos. Por tratar-se de profissionais que propõem e se dedicam a uma modalidade de assistência que colocam como diferenciada em relação aos outros tipos de assistências ofertadas, o exame dos elementos que os diferencia em relação aos demais poderia iluminar questões nos outros tipos de assistências prestados que antes passariam despercebidos, apontando as aproximações e os distanciamentos entre os cuidados paliativos e as outras abordagens. Procurou-se, para tanto, múltiplas entradas e abordagens do Cuidado Paliativo: (1) uma pesquisa crítica dos manuais e dos documentos estruturantes dos Cuidados Paliativos, a fim de obter-se melhor aproximação em relação ao objeto, a partir de uma perspectiva histórica e teórica, e (2) um trabalho de campo, que acompanhou reuniões de trabalho regulares de duas equipes distintas em instituição pública de saúde: o grupo de Cuidados Paliativos e um segundo grupo, de outra especialidade, para auxiliar, por meio de comparação, o exame dos Cuidados Paliativos. Por meio do exame dos documentos e do que ocorria nas reuniões, foi possível delinear, por meio de comparação, os elementos de aproximação e de distanciamentos entre distintas abordagens e cuidados à saúde, que iluminaria em quais momentos e em que aspectos poderiam ser apontadas diferentes formas de atenção e abordagem à assistência oferecida. Apesar de se acentuar as competências humanitárias e de personalidades individuais para o exercício da prática paliativa, procurou-se por uma abordagem que explicitasse as competências e as especificidades deste campo profissional em relação aos demais, que justificariam o reconhecimento dos Cuidados Paliativos como um campo de conhecimento e como uma área de atuação ou especialidade diferenciada. / This dissertation aims investigate the Palliative Care. As it is moved by specific professionals, who propose and dedicate to a specific care modality dissimilar to the other ones, the exam of elements that distinguishes them from the others may highlights some aspects that would pass unnoticed. This approximation was by multiple entrances and approaches to palliative care: (1) a critical lecture of the manuals and documents that structure the palliative care, in order to obtain better approximation to the object from a historical and theoretical perspective, and (2) a field study, which followed the regular meetings of two different teams working in public health institutions: the palliative care group and a second group from another specialty, that, by comparison, could bring us better examination of Palliative Care. Through the examination of the documents and what occurred at the meetings, it was possible to outline, by comparison, the elements of closeness and distances between different approaches and health care, which would illuminate at what time and in what aspects could be identified different forms of care and approach to assistance offered. Although they emphasize humanitarian and individual personalities to the exercise of palliative practice skills is sought by an approach that expose skills and the specifics of this professional field in relation to the other, that would justify the recognition of palliative care as a field of knowledge and as a practice area or specialty differentiated.

Identifying people with advanced illnesses whose health is deteriorating, assessing their needs and planning care proactively with them are healthcare priorities given the demographic trend of ageing populations in the UK and internationally. Over the past 10 years (2004-2014), I have led a series of research studies that have made an important academic contribution to improving palliative care services for patients with heart disease and advanced multimorbidity. My first paper reported secondary analysis of data generated from a qualitative study of the illness and care experiences of patients with advanced heart failure. This work used innovative, qualitative research methods to explore and understand patient, carer and health professional perspectives over time. My second study then evaluated whether health and social care services were configured and delivered in response to the needs of people with heart failure and their families. This led me to recommend an anticipatory care framework which integrated a palliative care approach with other aspects of treatment and care. Around this time, advance care planning (planning ahead to facilitate end-of-life care aligned with people’s goals and preferences) was being strongly advocated by NHS health policy makers despite limited research in the UK. For my third study, I evaluated an evidence-based, educational intervention for general practitioners while also exploring barriers and facilitators to advance care planning in primary care for patients with cancer or other advanced conditions. It was becoming increasingly clear that failure to identify people with deteriorating health and a high risk of dying in a timely way was a major barrier to more effective palliative care. The problem was greatest for patients with non-malignant conditions whose illness trajectory is much less easy to predict than in cancer populations. I therefore started to research and develop a new clinical tool designed to prompt early, proactive patient identification in routine clinical practice – the Supportive and Palliative Care Indicators Tool (SPICT). My fourth research paper reported an evaluation of the SPICT in a mixed-methods study in a large tertiary care hospital. The SPICT was then used to identify people with multimorbidity for my fifth study, a longitudinal exploration of patient and carer experiences of hospital admission and ongoing community care. In my final paper, I drew on my previous research and combined this with well-developed approaches to timely identification and effective communication. I described the design of a successful pilot randomised trial of future care planning with people who had advanced heart disease and their carers. This thesis presents a critical review of these six research studies setting them in context and demonstrating the impact they have had in ensuring that high quality research evidence informs current and future developments in palliative care policy and clinical practice.