Diabetes typ 1 är en av de sjukdomar som ständigt ökar. Sjukdomen för med sig stora kostnader för samhället och på individnivå kan komplikationer utgöra stor risk och livshotande tillstånd för patienten. Behandling vid diabetes typ 1 består till största del av insulininjektioner och noggrann kontroll av blodsockret. Vården som ges till de som insjuknat i diabetes typ 1 strävar efter att hjälpa patienten till god egenvård och som i längden kan bidra till bättre hälsa. I samband med att sjukdomen tar plats i den sjukes vardag, i detta fall hos barnet, kommer sjukdomen inte enbart påverka barnet utan även familjen. Författarna valde att belysa ämnet då de båda har erfarenheter och intresse inom ämnet. Syftet med denna studie är att belysa ur ett föräldraperspektiv hur familjen påverkas när ett barn har diabetes typ 1. Författarna valde att göra en litteraturstudie som innebär att redan befintlig kunskap sammanställs. Studien består av 10 artiklar av både kvalitativ och kvantitativ forskning. Resultatet i studien visade att föräldrarna uttryckt familjens upplevelse. Det visade sig att familjen upplevde att deras rutiner i vardagen förändrades i och med att barnet blev sjukt. Familjen är i behov av kunskap och stöd för att få den nya vardagen att fungera samt stöd från vårdpersonal och andra familjer. I diskussionen tar författarna upp de tre teman som framkom i resultatet.

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This dissertation deals with relations between parents and child institutions such as childcare, school and child health centers in terms of an institutionalization of childhood and expressions of parental identities in life stories. The empirical study consists of thematic life story interviews with parents focusing on their experiences of meeting and relating to these child institutions. A perspective on life stories as socially situated action and identity performance is adopted that views the life stories as co-constructed in between the interviewee and the interviewer. The aim of the dissertation is to contribute to an understanding of relations between parents and child institutions in Sweden that takes as its point of departure the expressions of parental identities. Methodologically, the dissertation also aims to further develop a way of working with life stories that makes the interviewer visible as co-constructor of life stories and expressions of identity. The analyses is focused on expressions of parental identities through the storytelling and in the stories told. Parental identities took shape and form as performances and constructions of, for example, social subordination in relation to preschool staff and other parents, helpful intervention in school helping an inexperienced teacher, worries about children being different from other children and not fitting in at preschool and of gratefulness for help and support from childcare staff when being short of time and money. The identity expressions were then analyzed in relation to recurrent discourses in research on relations between parents and childinstitutions. The results show that dominant discourses of relations between parents and child institutions tend to construct parents as a homogenous group, thereby concealing how gender, social class, ethnicity and age, and the subsequent different constructions of children and childhood, structure and influence the relations between parents and child institutions and thereby also the institutionalization of childhood. / Förskola och skola i samverkan. Ett reformerat utbildningssystem.

Magister Artium (Child and Family Studies) - MA(CFS) / Families remain a major social support system that plays a key role in the provision of primary healthcare (PHC) for children, and this role is especially important as PHC would normally take place before a child is taken to hospital for further treatment. The literature shows that although families have a direct influence on their children’s PHC, the former’s role is limited as a result of socio-economic factors such as poverty, unemployment and distance to healthcare centres. In South Africa, PHC is offered by the state but is of a lower standard than the more specialised, ‘hi-tech’ health services available in the private sector. Although the public health sector is over-stretched and under-resourced, the government has established PHC facilities in many locations throughout South Africa. This status quo requires families to play a role by knowing the locations of such facilities in order to maintain their children’s health. The provision of primary health in South Africa is a two-tiered system that requires the involvement of both families and healthcare providers. The results of the study indicated that there were various interpretations of PHC by both parents and health professionals, owing to different levels of knowledge about the concept. The lack of knowledge of the various forms of home remedies greatly affected the application of PHC in terms of a need to appreciate PHC practices in the family setting; and health professionals need to disseminate knowledge to parents on a routine basis as part of their work at hospitals. The findings furthermore suggested that parents and healthcare workers faced various challenges in the provision of PHC. The implications of the study pointed to the need for a more extensive study that engaged a high number of participants of both parents and healthcare professionals to place the results into perspective. Other implications required a concerted effort from government, parents, healthcare professionals and other stakeholders to arrive at a prudent and logical improvement of PHC in South Africa.

Thesis (M.S.)--Boston University / PLEASE NOTE: Boston University Libraries did not receive an Authorization To Manage form for this thesis or dissertation. It is therefore not openly accessible, though it may be available by request. If you are the author or principal advisor of this work and would like to request open access for it, please contact us at open-help@bu.edu. Thank you. / 2031-01-01

Thesis advisor: Lisa Dodson / This paper explores the ways in which nine parents experience their children's high school. Although the high school is in the inner city of Boston and serves mostly children of color from working-class and poor families, the parents hold themselves to expectations based on middle-class and dominant societal norms. They experience the school as an institution that often does not live up to its responsibilities to educate and protect their children. The parents then place most of these responsibilities for their children's educations on themselves, both to ensure their children's futures and to prevent any negative judgments from being made about their parenting. This paper attempts to allow parents to tell the story of their children's school in their own voices and to begin to resist the ways that inner-city parents have been constructed in the literature in the past. In order for urban education to truly change, the voices of parents must be allowed into the conversation and this paper attempts to begin the recognition of those voices. / Thesis (MA) — Boston College, 2009. / Submitted to: Boston College. Graduate School of Arts and Sciences. / Discipline: Sociology.

Thesis (M.S.)--Boston University / PLEASE NOTE: Boston University Libraries did not receive an Authorization To Manage form for this thesis or dissertation. It is therefore not openly accessible, though it may be available by request. If you are the author or principal advisor of this work and would like to request open access for it, please contact us at open-help@bu.edu. Thank you. / 2031-01-01

The question around which this thesis is gathered arose from a period of public concern regarding historical practice in respect of post-mortem examinations during which the researcher was required to engage with a significant number of parents who had lost a child, often many years previously. These encounters offered privileged insight into the longevity, nature and expressions of parental grief and, on subsequent reflection, raised questions as to how the specifics of Christian belief might meaningfully engage the pastoral needs of a bereaved parent. Through its capacity to accommodate conversation between human experience; the insights offered by science, philosophy and culture; and the Christian message, practical theology offered a discipline within which such questions could best be explored. Using a research methodology drawing on the principles of hermeneutic phenomenology the lived experience of ten bereaved parents was engaged through semi-structured interviews. The transcription and analysis of these interviews identified key themes - connection; continuity and identity; and reunion - which became the subject of further reflection. Common to these themes is the concept of a continuing relationship ('bond') with the deceased child, a concept at variance with the Freudian thinking that has shaped much of bereavement care over the past century. Such thinking understands a sustained 'relationship' as futile and promotes patterns of care that aim for a staged and time-limited recovery. In contrast the more recent paradigm of 'continuing bonds', which has particular resonance with the loss of a child, offers a different perspective on grief which, in turn, finds accord with a Christian narrative that is profoundly relational and incorporates a message of resurrection offering explicit hope in regard to matters of continued existence, retained identity and eventual reunion.

by Cheng Paul. / Includes questionnaire in Chinese. / Thesis (M.Phil.)--Chinese University of Hong Kong, 1993. / Includes bibliographical references (leaves 60-66). / ABSTRACT --- p.ii / ACKNOWLEDGEMENTS --- p.iv / TABLE OF CONTENTS --- p.v / LIST OF TABLES --- p.vii / LIST OF APPENDICES --- p.viii / Chapter CHAPTER 1 - --- INTRODUCTION / Local studies on Down syndrome --- p.4 / Coping and psychological distress --- p.5 / Coping and psychological distress in Chinese families with mentally retarded children --- p.11 / Psychological correlates of coping --- p.13 / "Relationship between optimism, self-mastery, coping and psychological distress" --- p.16 / Purpose of the study --- p.18 / Chapter CHAPTER 2 - --- METHOD / Subjects --- p.22 / Measures --- p.25 / Procedures --- p.30 / Chapter CHAPTER 3 - --- RESULTS / Group differences on coping --- p.31 / Factor analysis of the coping --- p.34 / "Internal consistency of LOT, SMS, & GHQ-30" --- p.37 / Inter-correlations among major variables for the three groups --- p.37 / Differences between mothers and fathers on the major variables --- p.39 / Prediction of psychological distress --- p.40 / Group differences on the major variables --- p.41 / Differences between mothers and fathers within a single family --- p.42 / Group differences on the major variables with family as the unit of analysis --- p.43 / Chapter CHAPTER 4 - --- DISCUSSION --- p.45 / REFERENCES --- p.60 / TABLES --- p.67 / FOOTNOTE --- p.83 / APPENDICES --- p.84