Thesis (M.A. (Health Social Science))--Mahidol University, 2008. / LICL has E-Thesis 0039 ; please contact computer services.

Breast cancer, according to research, is diagnosed in approximately one in every twenty-nine women in South Africa. Differences in gender, race and class produce disparities in health care, subjecting lower class women to lengthy waiting periods between diagnosis and treatment. Present research studies on breast cancer predominantly use quantitative methods. To understand women's lived experiences of the breast cancer trajectory this study explores experiences encountered during the waiting period, as well as the impacts of breast cancer and its treatment on feminine identity. For this a qualitative method was applied. Semistructured, in-depth interviews were conducted with five black and coloured breast cancer patients residing at two of CANSA's care homes. Participants varied in age and phases of treatment, were all married or widowed, had minor dependants, and had all travelled from distant and outlying areas. Based on a thematic analysis, six themes emerged from the data collected. These included: First experiences of cancer in the body; breast cancer and waiting periods from the patient's perspective; sources of support; meanings and perceptions of being a woman; conceptualising disease, and patients' needs. The analysis illustrates the importance of researching women's lived experiences and highlights that these need to be understood within a framework of socially constructed notions of gender, race and class in order to improve breast cancer treatment and psycho-social care.

This dissertation examines significant shifts in the politics of psychiatric resistance and mental health activism that have appeared in the past decade. This new wave of resistance has emerged against the backdrop of an increasingly expansive diagnostic/treatment paradigm, and within the context of activist ideologies that can be traced through the veins of broader trends in social movements. In contrast to earlier generations of consumer/survivor/ex-patient activists, many of whom dogmatically challenged the existence of mental illness, the emerging wave of mad activists are demanding a voice in the production of psychiatric knowledge and greater control over the narration of their own identities. After years as a participant-observer at a leading radical mental health advocacy organization, The Icarus Project, I present an ethnography of conflicts at sites including Occupy Wall Street and the DSM-5 protests at the 2012 American Psychiatric Association conference. These studies bring this shift into focus, demonstrate how non-credentialed stakeholders continue to be silenced and marginalized, and help us understand the complex ideas these activists are expressing. This new wave of resistance emerged amidst a revolution in communication technologies, and throughout the dissertation I consider how activists are utilizing communications tools, and the ways in which their politics of resistance resonate deeply with the communicative modalities and cultural practices across the web. Finally, this project concludes with an analysis of psychiatry’s current state and probable trajectories, and provides recommendations for applying the lessons from the movement towards greater emancipation and empowerment.

This study explores mental health advocacy among individuals with psychiatric disabilities in the New York State (NYS) adult home system. This system has garnered longstanding public concern over the unsafe and unjust conditions in which its residents live. In New York City (NYC) a unique organization, Adult Home Advocates (AHA), supports a group of residents (called peer advocates) to advocate for their rights. I integrate literature on health and mental health advocacy and movements with the concept of mental health recovery to consider how AHA participation may impact recovery for peer advocates and others living in the adult home system. I use Brown et al.'s (2010) policy ethnography approach to study sociolegal, organizational, and individual contexts in which peer advocates work and live. From May 2013 to August 2017 I conducted peer advocate (n=36) interviews and member checks, participant observations (n=154), archival document research, and initiated policy advocacy work. This study is guided by four research questions: 1) How may the sociolegal and organizational environments - - including an unfolding shift in the sociolegal environment - - influence mental health advocacy among individuals with psychiatric disabilities? (Chapter 3, p.41) 2) How may individual characteristics - - specifically, mental health recovery characteristics - - influence mental health advocacy among individuals with psychiatric disabilities? (Chapter 4, p.90) 3) What are the motivations for mental health advocacy among individuals with psychiatric disabilities? (Chapter 5, p.134) 4) What are the impacts of mental health advocacy among individuals with psychiatric disabilities? (Chapter 6, p.182) I use conventional content analysis (Hsieh & Shannon, 2005), with mental health recovery as a sensitizing concept, to organize and analyze data. I report on findings from the sociolegal to individual levels. First, the sociolegal environment includes patterns of unsafe, unhealthy, and socially isolating conditions within adult homes; even as a legal settlement (O’Toole v. Cuomo) helps residents move out, troubling implementation practices perpetuate these unjust conditions. AHA enters this environment with a commitment to help adult home residents advocate for themselves, though it is a small organization in terms of budget, staffing, and scope. Its size is both a key strength and limitation, as it furthers its mission-driven work, yet impedes training and support for peer advocates. I also report on findings specific to peer advocate participants (n=36). I use six mental health recovery domains - - including a sociolegal domain I develop to explore justice and rights issues - - to describe recovery as heterogeneous and dynamic across both individual domains and individual participants. Participants’ motivations for advocacy are also heterogeneous, with three types salient: 1) self-advocacy, 2) purpose, and 3) identity. Further, these motivations lead to four types of advocacy activities: 1) self-advocacy, 2) self-help, 3) advocate leader, and 4) advocate activist. Finally, I find that advocacy involvement does impact participants, both positively and negatively. I return to the six recovery domains used above to discuss how mental health advocacy brings into relief potential means of furthering mental health recovery for individuals with psychiatric disabilities.

Title from title page of PDF (University of Missouri--St. Louis, viewed March 9, 2010). Includes bibliographical references (p. 52-61).

Thesis (Ph.D.)--University of Melbourne, Dept. of Medicine (RMH/WH), 2010. / Typescript. Includes bibliographical references (p. 359-392)

Orientador: Antonio Luis Caldas Junior / Resumo: O termo “Humanização” tem sido constantemente empregado no âmbito da saúde e visa recuperar a dimensão essencial do cuidado e a relação entre humanos. Para viabilizar a implantação desse cuidado nos serviços de saúde foi criada pelo Sistema Único de Saúde – SUS - a Política Nacional de Humanização - PNH. A maneira como as atividades de um hospital são desenvolvidas, bem como a forma como os recursos humanos e materiais disponíveis são geridos e aplicados à prestação dos serviços influencia diretamente no atendimento à referida política, tornando-se extremamente relevante para a qualidade dos serviços prestados. Considerando a relevância do assunto e com anseio de avaliar se as práticas de um hospital atendem ao preconizado pela PNH foi desenvolvido o presente trabalho. Trata-se de um estudo quanti-qualitativo que aborda uma avaliação das atividades desenvolvidas pelo Hospital das Clínicas da Faculdade de Medicina de Botucatu (HCFMB) sob a perspectiva dos usuários que registraram demandas na ouvidoria do HCFMB, tendo a PNH como referencial conceitual. Por meio de análise quantitativa das demandas registradas, complementada com a análise subjetiva do sentimento expressado pelos usuários através da descrição do ocorrido, foi realizado um diagnóstico situacional dessas demandas, identificando os principais motivos que caracterizam as práticas não humanizadas reportadas à ouvidoria, bem como os locais onde essas práticas ocorrem com maior frequência. A análise dos dados permitiu q... (Resumo completo, clicar acesso eletrônico abaixo) / Abstract: The term "Humanization" has been used systematically in aims of health and the goal is to recover an essential dimension of care and a relationship between human beings. To enable the implementation of care with health services for the Sistema Único de Saúde – SUS - the Política Nacional de Humanização - PNH. The way a hospital's activities are developed, as well as how the available human and material resources are managed and applied to the provision of services directly influence on accomplishment to these standards, it has become very important for the quality of services provided. Considering the relevance of the subject and with the wish to evaluate if the practices of a hospital attend to recommended by the PNH, the present work was developed. This is a quantitative-qualitative study that addresses an evaluation of the activities developed by the Hospital das Clínicas da Faculdade de Medicina de Botucatu (HCFMB) from the perspective of users who registered demands in the ombudsman's office of HCFMB, having a PNH as a conceptual reference. Through a quantitative analysis of the recorded demands, complemented with a subjective analysis of the feeling expressed by users through of a description of the occurrence, a situational diagnosis of these demands was carried out, identifying the main reasons that characterize the non-humanized practices reported to the ombudsman's office as well as the places where these practices occur more frequently. The analysis of the data all... (Complete abstract click electronic access below) / Mestre

Submitted by Ana Claudia Camargo Soares null (anaclaudia@fmb.unesp.br) on 2017-07-12T20:00:49Z No. of bitstreams: 1 Dissertação mestrado. Saúde Coletiva. Ana Claudia Camargo Soares.2017.pdf: 3064995 bytes, checksum: 1bebb2fc82e855e1736990799845e562 (MD5) / Approved for entry into archive by LUIZA DE MENEZES ROMANETTO (luizamenezes@reitoria.unesp.br) on 2017-07-14T17:44:30Z (GMT) No. of bitstreams: 1 soares_acc_me_bot.pdf: 3064995 bytes, checksum: 1bebb2fc82e855e1736990799845e562 (MD5) / Made available in DSpace on 2017-07-14T17:44:30Z (GMT). No. of bitstreams: 1 soares_acc_me_bot.pdf: 3064995 bytes, checksum: 1bebb2fc82e855e1736990799845e562 (MD5) Previous issue date: 2017-06-21 / O termo “Humanização” tem sido constantemente empregado no âmbito da saúde e visa recuperar a dimensão essencial do cuidado e a relação entre humanos. Para viabilizar a implantação desse cuidado nos serviços de saúde foi criada pelo Sistema Único de Saúde – SUS - a Política Nacional de Humanização - PNH. A maneira como as atividades de um hospital são desenvolvidas, bem como a forma como os recursos humanos e materiais disponíveis são geridos e aplicados à prestação dos serviços influencia diretamente no atendimento à referida política, tornando-se extremamente relevante para a qualidade dos serviços prestados. Considerando a relevância do assunto e com anseio de avaliar se as práticas de um hospital atendem ao preconizado pela PNH foi desenvolvido o presente trabalho. Trata-se de um estudo quanti-qualitativo que aborda uma avaliação das atividades desenvolvidas pelo Hospital das Clínicas da Faculdade de Medicina de Botucatu (HCFMB) sob a perspectiva dos usuários que registraram demandas na ouvidoria do HCFMB, tendo a PNH como referencial conceitual. Por meio de análise quantitativa das demandas registradas, complementada com a análise subjetiva do sentimento expressado pelos usuários através da descrição do ocorrido, foi realizado um diagnóstico situacional dessas demandas, identificando os principais motivos que caracterizam as práticas não humanizadas reportadas à ouvidoria, bem como os locais onde essas práticas ocorrem com maior frequência. A análise dos dados permitiu que fossem identificadas as principais causas das intercorrências, bem como o nível de governabilidade dos atores envolvidos sob elas, segundo proposto por MATUS; o grupo ao qual são atribuídos os problemas identificados, baseando-se na tríade de avaliação em saúde de DONABEDIAN; além das diretrizes da PNH que estão sendo violadas pela ausência da prática humanizada em determinadas atividades do HCFMB. Constatou-se que as demandas registradas na ouvidoria representam práticas desenvolvidas pelo HCFMB de maneira não humanizadas, provenientes de questões atreladas principalmente à gestão, causadas em sua maioria por acumulações sob as quais o ator envolvido possui influência, representando problemas atribuídos à estrutura da instituição, constituída pelos recursos humanos e materiais disponíveis, bem como pela sua organização administrativa; e tendo o acolhimento como a principal diretriz violada. Diante deste contexto, torna-se necessária a reorganização de determinadas atividades e desenvolvimento de programas de educação continuada aos profissionais, visando intensificar o desenvolvimento de práticas que atendam ao preconizado pela PNH. / The term "Humanization" has been used systematically in aims of health and the goal is to recover an essential dimension of care and a relationship between human beings. To enable the implementation of care with health services for the Sistema Único de Saúde – SUS - the Política Nacional de Humanização - PNH. The way a hospital's activities are developed, as well as how the available human and material resources are managed and applied to the provision of services directly influence on accomplishment to these standards, it has become very important for the quality of services provided. Considering the relevance of the subject and with the wish to evaluate if the practices of a hospital attend to recommended by the PNH, the present work was developed. This is a quantitative-qualitative study that addresses an evaluation of the activities developed by the Hospital das Clínicas da Faculdade de Medicina de Botucatu (HCFMB) from the perspective of users who registered demands in the ombudsman's office of HCFMB, having a PNH as a conceptual reference. Through a quantitative analysis of the recorded demands, complemented with a subjective analysis of the feeling expressed by users through of a description of the occurrence, a situational diagnosis of these demands was carried out, identifying the main reasons that characterize the non-humanized practices reported to the ombudsman's office as well as the places where these practices occur more frequently. The analysis of the data allowed them to be identified as the main causes of the intercurrences, as well as the level of governability of the actors involved in these, according to MATUS proposal; the group to which are attributed the identified problems, Based on the on triad of health evaluation of the DONABEDIAN; besides the guidelines of the HNP that are being violated by the absence of the humanized practice in certain activities of the HCFMB. It was found that the demands registered in the ombudsman's office represent practices developed by HCFMB in a non-humanized way, arising from the questions related to management, caused mostly by accumulations under which the actor involved has influence, representing problems attributed to the structure of the institution, made up of available human and material resources, as well as its administrative organization; And having the host as the main guideline violated. Against this context, it is necessary to reorganize certain activities and develop continuing education programs for professionals, aiming to intensify the development of practices that meet the requirements by PNH.

Includes bibliographical references. / iv, 398 leaves ; 30 cm. / Title page, contents and abstract only. The complete thesis in print form is available from the University Library. / The government of South Australia has developed a Primary Health Care Policy (1989) and Draft Implementation Plan (1992) in order to focus its health promotion efforts. The thesis demonstrates that implementation of these concepts will be facilitated by a clear understanding of idealogical and political issues to be faced in bringing about such change. / Thesis (Ph.D.)--University of Adelaide, Dept. of Community Medicine, 1995

Thesis (M.S.)--University of South Florida, 2009. / Title from PDF of title page. Document formatted into pages; contains 35 pages. Includes bibliographical references.