This study employed a case study research design to explore how family caregivers experience caring for an advanced cancer patient enrolled in a palliative rehabilitation program. Demographic, case note, pre-post quality of life scores, and interview data sets were collected from four family caregivers throughout patient enrollment in the 8-week Ottawa Palliative Rehabilitation Program. Thematic analysis of the interview data revealed caregivers’ perceived caregiving as: 1) Being a Witness of the Patient’s Struggles, 2) A Duty Paired with a Desire to Support Patients - Regardless of the Challenges, and 3) A Role Which Requires Tailored Knowledge, Support, and Resources to Aid in Improving Patient Functioning and in Managing Caregiving Tasks. Involving family caregivers in palliative rehabilitation programs provides them an opportunity to engage with the patient and health care professionals in order to develop a shared understanding of the illness implications, learn tailored caregiving approaches, and gain social support.

This masters thesis deals with the influence of urban mobility on the quality of life in the city. It presents the theoretical assumptions for the implementation of such a transport policy which, in turn is said to lead toward a better quality of life. The aspect of sustainability is also taken into account during this thesis. This study sets out to analyze the urban mobility in all of its forms and provide examples of foreign cities whose transport systems are positively evaluated. A practical session was carried out, which focused on the case of Pilsen, to find the relationship between the urban mobility system and the impact on quality of life through their implemented and planned projects.

Masters in Public Administration - MPA / Globally, substance abuse has had a profound impact on society, compounding factors around public health and safety, as well as the social fabric of family systems and communities. The substance abuse problem is complex and requires a comprehensive approach to addressing the phenomenon. Treatment for substance abuse is one aspect of addressing the problem and aims to reduce the harm associated with the use thereof. Treatment demand has increased consistently in South Africa over the past few years and the need for services has been articulated in key legislative and policy documents. Substance abuse is a well-researched field in South Africa; however, limited research exists that captures the experience and perceptions of service users that received outpatient treatment. Various studies conducted in Cape Town in the Western Cape have confirmed an inextricable link between substance abuse and the structural challenges present in historically disadvantaged communities. This study explores the experiences of service users who had completed an outpatient substance-abuse treatment programme in the City of Cape Town's health clinics in Parkwood and Delft South. The objectives of the study are to explore the individual-level and service-level factors impacting on service users' experiences of outpatient substance-abuse treatment, to explore the outcomes of outpatient substance-abuse treatment for service users and to make service-level recommendations and recommendations for further study. Nine research participants for the qualitative study were purposively sampled, as they required certain attributes to respond to the area of study. Data was collected in the form of semi-structured interviews in order to allow for the in-depth exploration into the experiences of service users. Data was analysed with the use of conceptual analysis, where themes were thematically grouped and analysed. Key findings in the study were that the City's outpatient treatment programme is designed exclusively for adult service users. It was, however, found that the age of substance use and the onset of abuse occurred between the ages of 11 and 17-years. The study highlighted the need for the City to modify its outpatient programme to address the needs of youth service users and children of service users to facilitate their adjustment to a parent in recovery. A further finding in the study was the challenges experienced by service users, particularly female service users. It emerged that female service users experienced more stigmatisation than males accessing the service. The need for aftercare treatment post-treatment was a gap identified in the study. In the exploratory study, participants' experiences and perceptions of the City's outpatient programme were positive. The scope of the study was therefore narrow. Recovery, however, remains a challenge for service users due to triggers brought on by structural challenges present in disadvantaged communities, again highlighting the need for coordinated efforts by all government spheres to address the scourge of substance abuse. As a prospect for further study, it is proposed that the long-term impact of the City’s outpatient programme be considered with a larger sample of participants.

The thesis is focused on five religious beliefs officially allowed by Chinese government. It briefly reviews an attitude of Chinese government to religious beliefs through last sixty years and discusses ideas that stems from theological nature of the religious beliefs and its impact on believer's economic activity. Ordered Logit analysis and other methods are used to analyze the conclusions that follow from these ideas. As data sources it uses socio-economic questionnaires World Values Survey and Spiritual Life Study of Chinese Residents - Association of Religion Data Archives. Several analyses can serve as a proof that there is a relationship between respondents' religion and their economic thinking and acting and that it also influences respondents' quality of life. The quality of live is measured as a set of categorical variables. These variables will be judged from the point of view of liberal economics.

In this thesis is first converted characterization of several concepts. These are the concepts of talent, quality of life and related knowledge. These are important for further understanding of the work. The next part presents different indicators and their values these indicators come in the areas surveyed. These areas are also briefly introduced previously. In the practical part was used the interviewing method and the method of group interview. The main task was to find out how student, potential talents see the quality of life and also find resources here to help these people maintain.

Submitted by Irene Nascimento (irene.kessia@ufpe.br) on 2016-04-14T19:53:26Z No. of bitstreams: 2 license_rdf: 1232 bytes, checksum: 66e71c371cc565284e70f40736c94386 (MD5) CONTROLE DA ASMA E QUALIDADE DE VIDA EM GESTANTES ASMÁTICAS.pdf: 2537154 bytes, checksum: c9f03eb581f646f9b1637846dfac691f (MD5) / Made available in DSpace on 2016-04-14T19:53:26Z (GMT). No. of bitstreams: 2 license_rdf: 1232 bytes, checksum: 66e71c371cc565284e70f40736c94386 (MD5) CONTROLE DA ASMA E QUALIDADE DE VIDA EM GESTANTES ASMÁTICAS.pdf: 2537154 bytes, checksum: c9f03eb581f646f9b1637846dfac691f (MD5) Previous issue date: 2014-08-28 / A asma brônquica é uma doença caracterizada por sintomas como tosse, sibilos e dispneia, sendo considerada a principal doença respiratória a acometer gestantes e, quando mal controlada, está associada a maior risco de complicações na gravidez como pré-eclâmpsia, prematuridade e recém-nascidos de baixo peso ao nascer. Com o surgimento dos broncodilatadores e corticoides inalados houve um melhor controle das crises de asma, o que gerou um aumento do interesse também quanto à avaliação da qualidade de vida dos pacientes. Contudo, pouco há sobre a qualidade de vida em gestantes asmáticas. Sendo assim, este constitui um estudo observacional, analítico, transversal, cujo objetivo foi avaliar a associação entre o controle da asma e a qualidade de vida de pacientes asmáticas gestantes. Utilizou-se a classificação do Global Initiative for Asthma (GINA) e o Asthma Control Test (ACT) para a determinação do controle da asma. A qualidade de vida foi avaliada pelo uso do questionário do Hospital Saint George na Doença Respiratória (SGRQ). Foram selecionadas 51 gestantes atendidas no Ambulatório de Asma na Gravidez do Hospital das Clínicas de Pernambuco – UFPE. A idade média das pacientes foi de 26,4 + 5,7 anos e idade gestacional média de 24,4 + 6,8 semanas, com variações de 11 a 37 semanas de gestação. Foram evidenciadas correlações negativas significativas entre os escores do ACT e todos os domínios do SGRQ: escore total (r = −0,73; p < 0,001); de sintomas (r = −0,739; p < 0,001); de atividades (r = −0,605; p < 0,001); e de impacto (r = −0,604; p < 0,001). Pacientes classificadas como controladas pelo GINA também apresentaram menores médias do SGRQ ou seja, melhor qualidade de vida. Observou-se, neste estudo, elevada correlação entre o controle da asma pelo ACT e pelo GINA e que gestantes portadoras de asma controladas clinicamente apresentaram melhor qualidade de vida. / Bronchial asthma is a disease characterized by symptoms such as cough, wheezing and dyspnea, being considered the main respiratory disorder to affect pregnant women and, when poorly controlled, is associated with increased risk of pregnancy complications such as preeclampsia, premature birth and newborn low birth weight. With the advent of bronchodilators and corticoids was possible to achieve a better asthma control, which also led to an increased interest regarding the assessment of patient's quality of life. However, little is known about the quality of life in asthmatic pregnant women. Thus, this is an observational cross-sectional study, analytical, whose aim was to evaluate the association between asthma control and quality of life of pregnant asthmatic patients. We used the classification of the Global Initiative for Asthma (GINA) and the Asthma Control Test (ACT) for the determination of asthma control. The quality of life was assessed by use of the Saint George's Respiratory Questionnaire (SGRQ). 51 pregnant women seen at the Asthma in Pregnancy' Clinic of the Hospital das Clínicas of Pernambuco-UFPE (Recife-Brazil) were selected. The mean age of patients was 26.4 + 5.7 years and mean gestational age was 24.4 ± 6.8 weeks, with variations 11-37 weeks of gestation. Negative correlations were found with significance between ACT scores and all domains of the SGRQ: Total (r = -0.73, p <0.001); symptoms (r = -0.739, p <0.001); activities (r = -0.605, p <0.001); and impact (r = -0.604, p <0.001). Patients classified as controlled by GINA also had lower mean scores of the SGRQ, what means a better quality of life. Was observed, in this study, high correlation between the classification of asthma control by ACT and GINA, and that pregnant women with clinically controlled asthma had better quality of life.

Orientador: Gustavo Luis Gutierrez / Dissertação (mestrado) - Universidade Estadual de Campinas, Faculdade de Educação Física / Made available in DSpace on 2018-08-26T21:34:29Z (GMT). No. of bitstreams: 1 FerreiradosSantos_Renata_M.pdf: 1050876 bytes, checksum: 3c5d54ed6fd897da80fa445cddcb30e3 (MD5) Previous issue date: 2015 / Resumo: Em virtude do grande avanço tecnológico, e do crescente debate relacionado à deficiência nos últimos anos, este trabalho busca compreender se as Tecnologias Assistivas exercem algum tipo de influência na qualidade de vida de pessoas com deficiência. Foram realizadas entrevistas semi-estruturadas com pessoas com deficiência física/motora, deficiência visual, e deficiência auditiva. Esta pesquisa reflexiva apresenta alguns aspectos relacionados ao histórico, terminologias, e modelos conceituais empregados à deficiência. Além disso, relata de que forma as mudanças sociais contribuíram para a inserção de novas tecnologias, enfatizando a Tecnologia Assistiva. O conteúdo obtido nas entrevistas foi relacionado às obras de autores de referência, e por meio de análise interpretativa, concluímos que as Tecnologias Assistivas geram impactos significantes na qualidade de vida de pessoas com deficiência. Elas são facilitadoras de atividades, promovem autonomia e independência, contribuem positivamente para o estabelecimento e manutenção de relações sociais, e são estimuladoras no processo de reabilitação de pessoas com deficiência / Abstract: Because of the great technological advances, and the growing debate related to disabilities in recent years, this paper seeks to understand whether the Assistive Technologies exert some kind of influence on the quality of life of people with disabilities. We conducted semi-structured interviews with people with physical / motor impairment, visual impairment, and hearing impairment. This reflective study presents some aspects related to the history, terminology and conceptual employees disability models. In addition, reports of how social changes have contributed to the introduction of new technologies, emphasizing the Assistive Technology. The contents obtained in the interviews was related to the works of major authors, and through interpretative analysis, we conclude that the Assistive Technologies generate significant impacts on the quality of life of people with disabilities. They are activities that facilitate, promote autonomy and independence, contribute positively to the establishment and maintenance of social relationships and are stimulating the process of rehabilitation of people with disabilities / Mestrado / Atividade Fisica Adaptada / Mestra em Educação Física

Submitted by Nadir Basilio (nadirsb@uninove.br) on 2018-06-19T18:12:45Z No. of bitstreams: 1 Rejane Agnelo Silva de Castro.pdf: 1052641 bytes, checksum: 1f8691a5b4f1dcb3d43ec9c6aa9e4345 (MD5) / Made available in DSpace on 2018-06-19T18:12:45Z (GMT). No. of bitstreams: 1 Rejane Agnelo Silva de Castro.pdf: 1052641 bytes, checksum: 1f8691a5b4f1dcb3d43ec9c6aa9e4345 (MD5) Previous issue date: 2015-11-27 / Introduction: Instruments to objectively assess the perception of symptoms in patients with BCQ are scarce. Patients with COPD and bronchiectasis (BCQ) share similar symptoms. Therefore, COPD Assesment Test (CAT), originally developed for COPD may be suitable for use in these patients. Objective: To validate and test the reproducibility of the CAT for non-cystic fibrosis (non–CF) bronchiectasis patients. Methods: Hundred patients (FEV1 52 ± 25%; FVC 67 ± 22%; 48 ± 14 years; 42 males) underwent spirometry, cardiopulmonary exercise testing (peak workload and VO2), and shuttle walk test (ST). They answered the Saint George Respiratory Questionnaire (SGRQ) and the Medical Research Council (MRC) scale, and the CAT in two different days (CAT-1 and CAT-2). A pedometer recorded the No. of steps/day (NSD). Results: CAT showed a positive correlation with SGRQ domains (r = 0.74, p< 0.001) and MRC (r = 0.49, p< 0.001). A negative correlation was observed among CAT and lung function (FVC%: r= -0.33, p= 0.001; FEV1%: -0.28, p = 0.004), peak workload (r = -0.31, p = 0.001), VO2 (r = -0.44 p< 0.001), distance walked on ST (%, r= -0.46, p< 0.001), and NSD (r = -0.74, p< 0.001). There was an excellent reliability in the scores from CAT-1 and CAT-2 (21 13.25 – 26.75 and (19 13 – 26.75, respectively) with high intraclass correlation coefficient (ICC: 0.92 [95% CI: 0.83 – 0.96], p< 0.001). Conclusion: CAT is a valid instrument for measuring the impact of bronchiectasis in well-being and daily life of patients with BCT, and is a reproducible questionnaire. / Introdução: Instrumentos que avaliam objetivamente a percepção dos sintomas em pacientes com BCQ são escassos. Pacientes com DPOC e bronquiectasia (BCQ) compartilham sintomas semelhantes. Portanto, o COPD Assesment Test (CAT), originalmente desenvolvido para DPOC, pode ser adequado para uso nesses pacientes. Objetivo: Validar e testar a reprodutibilidade do CAT para BCQ. Métodos: 100 pacientes (42 homens, 48 ± 14 anos, VEF1 52 ± 25% prev, CVF 67 ± 22% prev) foram submetidos à espirometria, shuttle walk test incremental (SWTI) e teste de exercício cardiopulmonar exercício (TECP, carga e VO2 pico). Eles responderam ao Saint George’s Respiratory Questionnaire (SGRQ), à escala de dispneia Medical Research Council (MRC) e ao CAT (este em dois dias diferentes CAT-1 e CAT-2). O número de passos por dia (NP) foi registrado por pedômetro. Resultados: Os escores do CAT correlacionaram-se positivamente com os escores dos domínios SGRQ (r de 0,74, a p< 0,001) e MRC (r= 0,49, p= 0,001). Foi observada correlação negativa entre o CAT e a função pulmonar (CVF%: r= -0,33, p= 0,001; VEF1%: -0,28, p= 0,004), carga (r= -0,31, p= 0,001), VO2 (r= -0,44 p< 0,001), distância no SWTI (r= -0,46, p< 0,001), e NP (r= -0,42, p< 0,001). Houve excelente reprodutibilidade entre os escores de CAT-1 e CAT-2 (21 13,25 – 26 e (19 13 – 26,75, respectivamente), com elevados coeficiente de correlação intraclasse (ICC: 0,91 [95% CI: 0,87-0,94], p<0,001). Conclusão: CAT é um instrumento válido para medir o impacto da BCQ no bem-estar na vida diária dos pacientes com BCQ, e é um questionário reprodutível.

Orientador: Liciana Vaz de Arruda Silveira / Resumo: O envelhecimento da população tem se tornando um dos maiores desafios das últimas décadas, principalmente no que diz respeito à saúde pública. No Brasil, é um fenômeno recente o crescimento dos índices da população acima dos 60 anos e está fortemente relacionado à melhoria da qualidade de vida. O presente estudo tem como objetivo avaliar a qualidade de vida de idosos participantes e não participantes em grupos de convivência no município de Barão de Antonina, São Paulo. Trata-se de um estudo transversal do tipo observacional, realizado com 130 idosos. Para a coleta de dados utilizou-se um questionário dados sócio-demográficos e a segunda parte foi construído com base na escala de Flanagan para a avaliação da qualidade de vida dos entrevistados. Resultados: Dos 130 idosos entrevistados, a idade média foi de 71,26 anos para o grupo dos não participantes e 69,49 anos para os participantes, a maioria para os dois grupos era do sexo feminino (64,62%), casados (62,31%), a escolaridade para os dois grupos predominou de 1 a 4 anos (65,38%), 80% eram aposentados e 71,54% tinham renda até um salário mínimo. A utilização da escala de Flanagan apresentou um valor de αde Cronbach de 0, 767 para o total da amostra, em comparação entre os grupos o coeficiente αde Cronbach foi maior para o grupo dos não participantes 0,751 e para os participantes o mesmo coeficiente obtido foi de 0,609. Esses resultados demonstram a eficiência do instrumento . A média dos escores obtidos através da apli... (Resumo completo, clicar acesso eletrônico abaixo) / Abstract: Population aging has become one of the biggest challenges of recent decades, particularly with regard to public health. In Brazil, it is a recent phenomenon the growth rates of the population over 60 years and is strongly related to improved quality of life. This study aims to evaluate the quality of life of elderly participants and non-participants in community groups in the city of Barão de Antonina, Sao Paulo. It is a cross-sectional observational study, conducted with 130 elderly. For data collection was used a questionnaire sociodemographic data and the second part was built on Flanagan scale for evaluating the quality of life of respondents. Results: Of the 130 elderly respondents, the average age was 71.26 years for the group of non-participants and 69.49 years for participants, the majority in both groups were female (64.62%), married ( 62.31%), education for both groups prevailed 1-4 years (65.38%), 80% were retired and 71.54% had income than the minimum wage. The use of the Flanagan's scale had a Cronbach's alpha value of 0, 767 for the total sample, compared between groups αde the Cronbach coefficient was higher for the group of non-participants and 0.751 for the same participants obtained coefficient was 0.609. These results demonstrate the efficiency of the instrument. The average of the scores obtained by applying the Flanagan scale was 70.64 (SD = 13.83) for the group of non-participants, while the group of participants the mean score was higher 86.54 (standa... (Complete abstract click electronic access below) / Mestre

Little research has examined the effect of non-cancer life stressors on psychological well-being and recurrence in patients with cancer, and results have been mixed. Furthermore, no studies have examined specific types of stress, including loss, danger, and entrapment in patients with cancer, utilizing data obtained from the Life Events and Difficulties Schedule. Given that specifics stressors have been associated with certain psychological responses, this study sought to obtain a more nuanced understanding of the relationship between life stress and psychological well-being. This was examined in a sample of 135 women with ovarian cancer prior to surgery and during the year after diagnosis using latent growth curve analyses. Models of protective psychosocial resources examining social support, mastery, self-acceptance, and purpose in life as potential moderators and mediators of the relationship between life stress and psychosocial outcomes were also evaluated. Results indicated that cancer-related losses were most closely associated with psychological well-being across several analyses, and non-cancer losses had the greatest impact on psychological outcomes when cancer-related loss was low. Non-cancer losses were significantly related to greater fatigue prior to surgery. Additionally, major non-cancer danger stressors were associated with greater distress prior to surgery. In this sample, no stressors were significantly related to cancer recurrence. Social support was the most consistent moderator of life stress on psychological well-being, and its effects on distress and depression at baseline were mediated through self-acceptance. These findings highlight the importance of both cancer- and non-cancer-related stressors on psychological wellbeing among cancer patients in their first year following surgery and furthers our understanding of the role of protective psychosocial factors. This study has significant implications for distress screenings in patients with cancer, psychological interventions, and future research.