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No. of bitstreams: 1 DissCCJ.pdf: 1945636 bytes, checksum: e489a805f9b33e827f7456a2f91b86ea (MD5) Previous issue date: 2015-02-19 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior (CAPES) / The Doctor-Patient Relationship has been identified as an important variable in Health Care’s adherence, efficiency, and effectiveness; The Doctor’s Social Skills, seem to be essential components in its establishment. The general aim of this study was to evaluate doctors’ social skills who works in social and private health systems, examining the relations between these skills and patient satisfaction with regard to the medical consultation. The Study 1 describes the Matched-Pair Instrument (MPI)’s translation and cultural adaptation; the instrument assesses doctor’s social skills during a consultation. Nineteen (19) individuals were involved in the translation and adaptation process. Psychometric analyzes showed satisfactory internal consistency for the patients version (Cronbach's alpha: α= 0,893), presenting similar properties to the original version. The Study 2 aimed to evaluate the social skills of doctors in both Social and Private Health System, considering the self-perception of the professional and the patient’s perceptions, and, examining how the interaction of these variables influence on patient satisfaction. The participants were 195 patients and 30 physicians, distributed in both health systems. The instruments used in the study were: the translated and validated version of the Matched-Pair Instrument (MPI), a Partial Version of the Social Skills Inventory (HIS-Del-Prette), and the Medical Care’s Patient Satisfaction Evaluation Questionnaire (QASPAM). The overall average scores in the MPI for both Patients (M = 77.5, SD = 12.3) and Physicians (M = 76.5, SD = 11.8) showed low, positive and statistically significant correlation (r = 0.16, p = 0.030); The Patients showed significantly higher ratings than the Doctors’ one. The professionals of social health system evaluated themselves as less skilled (M=69,93; SD=13,55) than the participants of private system (M=76,5; SD = 10.1). These data were similar to those obtained in the analysis of the patient’s questionnaires, since the overall average of public system patients (M=72.31; SD= 12.25) was significantly lower than the average of the private system (M=80.80; SD= 10.59). The professionals who worked in both health systems rated themselves, and were rated by their patients, as significantly (p <0.000) more skilled in the private system consultation than in the social one. Patients showed satisfaction with the service offered in both social and private health systems; however, private attended patients presented higher satisfaction’ scores. The scores levels of discontentment in the socials’s attended patients were relatively higher than those of the private system, especially in the following items: The Waiting Time in the office, before the consultation; the duration of the medical consultation and Medical Sensitivity. Future research have been suggested to increase the validity of the instruments used for the investigation. The results of this study seem to show that physicians who work in the private service evaluated up and received more satisfactory evaluations of their patients, in relation to social skills and satisfaction with care, than those who work in the public service. The data obtained in this study emphasized the relevance of both evaluation and training social skills for health professionals. / A Relação Médico-Paciente tem sido identificada como uma variável importante na adesão, eficiência e eficácia do tratamento em saúde. As habilidades sociais do médico parecem ser componentes essenciais no estabelecimento de tal relação. O objetivo geral do presente trabalho foi avaliar as habilidades sociais de médicos que atuam em serviços público e privado de saúde, examinando a relação entre a percepção de tais habilidades e a satisfação do paciente com o atendimento do profissional. O Estudo 1 descreve a tradução e adequação cultural do Matched-Pair Instrument (MPI), instrumento que afere as habilidades sociais do médico durante uma consulta. Participaram dezenove (19) pessoas nos processos de tradução e adaptação do instrumento. Análises psicométricas mostraram consistência interna satisfatória, para a versão dos pacientes (α= 0,886), com propriedades similares ao instrumento original. O Estudo 2 visou avaliar as habilidades sociais do médico, através da auto-percepção do profissional e a percepção de seus pacientes. Além disso, foi investigado como a interação destas variáveis influenciavam na satisfação do paciente, nos serviços público e privado de saúde. Participaram 195 pacientes e 30 médicos distribuídos em ambas as redes de atendimento (público/privado). Os instrumentos utilizados foram: Versão Traduzida e Adaptada do Matched-Pair Instrument (MPI), Versão Parcial do Inventário de Habilidades Sociais (IHS-Del-Prette), e o Questionário de Avaliação da Satisfação do Paciente com o Atendimento Médico (QASPAM). Os resultados desse estudo indicaram que os pacientes (M=77,55; DP=12,3) possuíram uma percepção mais positiva das habilidades sociais dos médicos (M=76,5; DP=11,8), que os próprios profissionais, uma vez que apresentaram médias significativamente maiores no MPI; a correlação entre as percepções dos membros dessa díade mostrou-se baixa, porém estatisticamente significativa (r=0,16; p=0,030). No que se refere à avaliação das habilidades sociais dos médicos nos serviços de saúde, pode-se verificar que os profissionais (M=76,49; DP=10,11) e pacientes (M=80,80; DP= 10,59) do sistema privado realizaram avaliações significativamente mais elevadas que os profissionais (M=69,93 ; DP=13,55) e pacientes (M=72,31; DP=12,25) do serviço público. Corroborando com esses dados, os profissionais que participaram da pesquisa em ambos os serviços de saúde se auto-avaliaram, e foram avaliados por seus pacientes, com escores significativamente (p<0,005) mais elevados no serviço privado. Já, no que se refere à avaliação de satisfação, pode-se verificar que pacientes de ambas as redes demonstraram-se satisfeitos com o atendimento médico; todavia, usuários do setor privado apresentaram maiores escores de satisfação. Os níveis de insatisfação foram mais elevados no setor público, e estavam relacionados a questões como: Tempo de espera, Duração do Atendimento e Sensibilidade do médico. Os resultados desse estudo parecem mostrar que médicos que atuavam no serviço privado avaliaram-se e receberam avaliações mais satisfatórias de seus pacientes, no que se refere à disposição de habilidades sociais e satisfação com o atendimento, que aqueles que atendiam no serviço público. Pesquisas futuras foram sugeridas para aumentar a validade dos instrumentos utilizados. Os dados obtidos no estudo enfatizam a relevância da avaliação e da capacitação em habilidades sociais em profissionais de saúde.

O estudo da relação médico-paciente vem ganhando novos contornos não só em razão dos avanços biotecnológicos e da massificação do serviço, mas, principalmente, pelos princípios que o norteiam, como o da dignidade da pessoa humana e o da autonomia, consagrados pela Constituição Federal de 1988. O enfoque do presente trabalho é o caráter predominantemente existencial da relação jurídica decorrente de contrato privado, regulado pelo Código Civil, pelo Código de Defesa do Consumidor, e por outras leis e normas deontológicas. Tal relação surge de um vínculo de confiança, intuitu personae, mediante remuneração entre o paciente e o médico. Isto porque o alvo do contrato de prestação de serviços médicos é a saúde, a dignidade e o bem-estar psicofísico e social do paciente, o que impõe uma releitura do tratamento jurídico da relação médico-paciente, de sua estrutura e função, não mais adstrita ao aspecto patrimonial vigente na ótica oitocentista. Passa-se de um vínculo de perfil lógico-autoritário para o perfil dialógico-consensual, em que predomina a liberdade de escolha do paciente. A autonomia do paciente é a mola propulsora dessa relação da qual decorrem diversos direitos e deveres extrapatrimoniais, com maior ênfase no dever do médico de informar. É a informação que permite ao paciente o exercício de sua autodeterminação, seu poder de decidir acerca da disposição de seu próprio corpo por meio da intervenção médica, que inclui serviços de diagnóstico, terapêuticos, cirúrgicos, preventivos e pesquisa em seres humanos. Só após o paciente ser devidamente esclarecido acerca de seu estado de saúde, do tratamento proposto, dos benefícios e riscos envolvidos, tempo de duração, custos e natureza do procedimento, dentre outros fatores, poderá dar ao médico seu consentimento informado para realização das ações médicas da qual será objeto. O consentimento livre e esclarecido do paciente constitui uma das dimensões mais importantes do princípio da autonomia e legitima o ato médico. A autonomia do paciente é tão relevante que sua inobservância pelo médico, independentemente da prática de erro médico, pode dar ensejo à sua responsabilização civil, por configurar por si só fato ou vício do serviço médico, o que lhe confere direito à reparação integral dos danos injustos sofridos, como vem sendo reconhecido pelos Tribunais brasileiros.

No description available.

Ziel: Die beiden primären Ziele der Diabetes-Therapie sind eine möglichst optimale Einstellung des Blutzuckers sowie der Erhalt einer vergleichsweise guten Lebensqualität. Für beide Therapieziele konnte eine Vielzahl somatischer und psychischer Determinanten identifiziert werden. Relativ wenig Beachtung fand in diesem Kontext jedoch bislang die Bedeutung der therapeutischen Beziehung. Die vorliegende Dissertation untersucht, inwieweit ein unmittelbarer Zusam-menhang zwischen der Behandlungszufriedenheit der PatientInnen und den beiden anvisierten Therapiezielen besteht. Methodik: 650 PatientInnen (475 Insulin-behandelt, 171 nicht Insulin-behandelt) aus einer universitären Poliklinik, 3 Schwerpunktpraxen und 28 hausärztlichen Einrichtungen wurden befragt. Zur Erfassung der therapeutischen Beziehung wurde die Medical Interview Satisfaction Scale (MISS) verwendet, die Lebensqualität wurde mit dem WHOQOL-BREF gemessen und die Beurteilung der Blutzuckereinstellung erfolgte durch HbA1c-Werte. Die Darstellung der Ergebnisse erfolgte getrennt für mit und ohne Insulin behandelte PatientInnen. Ergebnisse: Für keines der beiden Subkollektive konnte ein Zusammenhang zwischen therapeutischer Beziehung und Blutzuckerkontrolle gefunden werden. Hingegen zeigte sich für beide Therapiegruppen eine signifikante Beziehung zu verschiedenen Aspekten der subjektiv wahrgenommenen Lebensqualität. Schlussfolgerungen: Unterschiede in der Blutzuckereinstellung waren mit der gewählten Methodik sowie dem verwendeten Konstrukt (Behandlungszufriedenheit) in dieser naturalistischen Studie nicht aufzuzeigen und ein Einbeziehen weiterer Dimensionen der therapeutischen Beziehung, insbesondere der ärztlichen Perspektive und der jeweiligen Interaktion, erscheint für weitere Untersuchungen wünschenswert. Auch wenn die signifikanten Ergebnisse in der Interaktion mit Lebensqualität z.T. als gemeinsame Kovarianz zu verschiedenen Persönlichkeitsmerkmalen interpretiert werden können, ergeben sich deutliche Hinweise, dass die therapeutische Beziehung ein Einflussfaktor der gesundheitsbezogenen Lebensqualität ist. / Objective: The primary goals in treating Diabetes are maintaining blood glucose levels as close to normal as possible and making a relatively normal quality of life achievable. A multitude of somatic and psychological determinants for both of these goals could be identified. However, relatively little consideration in this context was given to the importance of the doctor-patient-relationship. This study examines, whether a direct relationship between treatment satisfaction and the primary treatment goals exists. Methods: 650 patients (475 insulin-treated, 171 not insulin-treated) from one universitary outpatient centre, 3 specialized treatment facilities and 28 general practitioners were asked. The doctor-patient-relationship was assessed using the Medical Interview Satisfaction Scale (MISS), health-related quality of life was measured by the WHOQOL-Bref and metabolic control by HbA1c values. Results are presented separately for patients treated with and without insulin. Results: For none of the two subgroups a relationship between doctor-patient-relationship and metabolic control was detected. However, significant interactions were found for both collectives regarding different aspects of quality of life. Conclusions: Differences in metabolic control could not be shown using the chosen methods and the construct treatment satisfaction under routine conditions and further dimensions of the doctor-patient-relationship as the physician's perspective and interactional aspects are likely to be included in future studies. Even while the significant results concerning the interaction with quality of life can be interpreted as a common covariance regarding various personality dispositions there are clear indications that the doctor-patient-relationship is a determinant of health-related quality of life.

The purpose of this study was to investigate and describe the experience of infertility of African women, men and family member. It is hoped that this description will contribute to a deeper understanding of the psychosocial difficulties involved in the area of infertility and ofthe ways in which people respond to the situation of infertility. A qualitative research approach was used, and in particular social constructivist-interpretive research and feminist research approaches. The sample consisted of39 participants: 19 women, 10 men, and 10 family members faced with infertility. The research orientation was field-based, concerned with collecting data using the technique of in-depth semi-structured interviews. Each participant was interviewed individually. The interviews were recorded on tape, transcribed in their full length and translated into English. Data were analysed on the basis of the interpretive feminist approach. Analysis of individual cases and crosscase analysis were employed. The findings suggested a contextual definition of infertility, for example, for some, having had an ectopic pregnancy or a miscarriage meant that they did not fit into the definition of infertility. The findings revealed that for many African women and men, blood ties still defined the family and the persona. Thus, failure to have a blood child resulted in courtship and marital break up, extramarital relationships, polygamy, and divorce and remarriage. Infertility had serious psychosocial consequences for both the infertile individuals and their families. Participants experienced repeated periods of existential crisis, which began at different points for different participants. Analysis of gender differences indicated similarities in the experience of the crisis, but differences in terms of expression and ways of responding to the crisis. Family dynamics within the context of infertility were coloured by ambivalent feelings, resentment, insensitivity, and miscommunication, but also affection, and social support. Traditional and modern medical health systems offered the possibility of finding explanations and treatment, but there was further strain from the negative experiences with the health care system. The findings in this study suggested the need for policy reformulation, for psychosocial intervention as part of the treatment plan, and for future research on the outcome of using various coping strategies. / Psychology / D. Phil. (Psychology)

Le système de santé d'aujourd'hui fait appel à de nombreuses technologies de l'information nommées TIS (Technologies de l’Information en Santé). Celles-ci ont donné naissance à de nouvelles formes d’interaction médecin-patient et ont complexifié l'approche thérapeutique dite
« centrée sur le patient ». Les TIS promettent une plus grande efficacité et l’augmentation de la satisfaction des patients par le biais d’une meilleure compréhension de la maladie pour le patient. Or, elles peuvent également devenir des sources de conflit pour le professionnel de la santé, étant donné leur utilisation en dehors des rencontres cliniques ainsi que leur tendance à agir comme des barrières communicationnelles lors des consultations. Cette recherche vise a étudier les critères de design nécessaires à la conception d’un TIS pouvant améliorer la relation médecin-patient et donc, faciliter la communication et améliorer l’alliance thérapeutique. L’étude utilise une approche centrée sur l’utilisateur et vise donc à comprendre les besoins et les attentes des médecins et des patients. En étudiant les nouvelles approches en santé et les TIS, il a été possible de comprendre le contexte et les besoins des utilisateurs en terme de communication. Ces derniers sont primordiaux au processus dit centré sur l’utilisateur. Le faible taux de rétention du discours du médecin devient une barrière communicationnelle importante, tout comme le temps pressurisé. La recherche nous montre que l’ajout d’un outil virtuel de vulgarisation peut, à l’aide de média visuels (tel que des modélisations, des animations 3D et des dessins), grandement aider la relation médecin-patient. / Today’s medical system is using an increasing number of information technologies to help healthcare professionals in their daily practice. Commonly known as HIT (Health Information Technologies), they create new forms of doctor-patient interaction and complexify the therapeutic approach called “patient centered approach”. Their use promises to improve the efficiency of the healthcare system and the overall satisfaction of the patient by improving his understanding of his illness, yet they can also become communication barriers during a consultation and even a source of conflict when used outside a clinical context. This research project aims at studying the design criteria for a Health Information tool that can help improve the doctor-patient relationship. The study uses a user-centered approach and therefore, focuses on understanding the needs and expectations of both doctors and patients. The study of the theoretical and "on the field" therapeutic approach shows that the pressurized time of the consultation, the many communication barriers and the low level of information remembered by patients are problems that can be solved by a HIT. A virtual vulgarization tool that uses multimedia such as 3D animations, 3D models and drawings can considerably help the doctor-patient relationship.

Atualmente o vídeo tem sido considerado por alguns autores o padrão-ouro para ensino de habilidades de comunicação e o vídeo feedback (VF) tem se mostrado eficaz no treinamento de habilidades em várias áreas profissionais. Entretanto, há poucos estudos sobre os efeitos das diferentes metodologias de VF. Este estudo propõe explorar as potencialidades, desafios e efeitos do VF de filmagem de consultas em contexto real, para uma avaliação formativa em habilidades de comunicação, com médicos residentes, em um programa de Atenção Primária. Foi conduzido um estudo pré e pós teste com um grupo controle. A intervenção constituiu-se de sessões de revisão do vídeo em pequenos grupos, na metodologia de entrevista baseada em problemas, com feedback por colegas (peer-feedback) e com um facilitador. Os 54 (cinquenta e quatro) médicos residentes responderam questionários quantitativos e qualitativos e dois avaliadores externos analisaram em vídeo, randomicamente e às cegas, cerca de 200 (duzentas) performances dos residentes com pacientes-simulados, antes e após a intervenção. Para análise dos dados foi usado ANOVA two-way de medidas repetidas e para análise qualitativa foi usado análise temática de Braun e Clarke. A metodologia de VF utilizada para avaliação formativa mostrou ser bem avaliada pelos participantes e com potencial de gerar mudança de atitudes no entrevistador. Na análise qualitativa, as principais potencialidades identificadas na metodologia foram autopercepção e o feedback por pares, e as principais mudanças na prática clínica foram a melhora da comunicação não-verbal, mudanças de comportamento, abordagem mais centrada no paciente e incorporação de prática reflexiva. Houve aumento de escores, entre os tempos, relacionados à decisão compartilhada, aviso de alerta de comunicação de má notícia e disposição para apoio ao paciente. Os desafios foram a dificuldade do facilitador em conectar o vídeo feedback com o referencial teórico e o estresse inicial para gravar-se e assistir-se em vídeo. Observamos que a análise qualitativa dos dados revelou mais informações sobre os efeitos nos participantes que a análise quantitativa. Os dados observados nos resultados qualitativos não tiveram o mesmo impacto nos resultados quantitativos. Devido à dificuldade observada em encontrar instrumentos adequados e validados para avaliar habilidades de comunicação, foi realizada em uma etapa posterior, a tradução e adaptação transcultural para o português falado no Brasil do instrumento Calgary-Cambridge Observation Guide (CCOG), com análise psicométrica. Concluímos que há uma dificuldade nos questionários em mensurar competências atitudinais e aspectos mais subjetivos de comunicação. Sugere-se mais estudos com aprofundamento na definição de parâmetros dos itens subjetivos de avaliação, conforme as competências exigidas para cada fase da formação médica. Concluímos também que para uma metodologia de VF efetiva é importante estimular a autoavaliação com uma prática reflexiva, feedback por pares focado em reforço positivo na busca de estratégias, além de um facilitador cuidadoso em relação a psicologia do aprendiz, com habilidade de conectar o feedback com uma teoria de comunicação abordada previamente. A versão brasileira do CCOG mostrou confiabilidades aceitáveis nos indicadores psicométricos, incluindo no modelo multifacetas de Rasch e assim, um instrumento adequado para auxiliar no ensino e avaliação de habilidades de comunicação no Brasil / Currently, video recordings of medical consultations have become the standard teaching approach to communication skills, and video feedback has shown to be effective in skills training in many professional areas. However, researches on the effects of different video-based feedback methodologies remains scarce. This study proposes to explore the potentials, challenges, and effects of video-based feedback methodology in real contexts for the formative assessment of communication skills of medical residents in a primary health care program. We conducted a pre/post study with a control group. The intervention was video feedback sessions with peer-feedback. Before and after the intervention, medical residents 54 (fifty four) answered quantitative and qualitative questionnaires and two raters blind assessed about 200(two hundred) video-recorded clinical examinations with simulated patients, who also scored the performances. For the data analysis, we used ANOVA two-way and for the qualitative analysis, we used the Braun and Clarke framework for thematic analysis. This video feedback methodology showed to be a well-accepted formative assessment. The main potentialities identified were self-perception and peer-feedback. The main effects in the residents\' medical practice was a better patient-centered approach, with increased scores mainly in good listening, decision-sharing, and patient support. Improvements were reported in non-verbal communication, behavior changes, and incorporation of reflective practices. Some of the challenges were the difficulty of the coordinator to link the video feedback with theoretical references and the initial stress to record and watch oneself in video. During the study, we did not find adequate and validated instruments to assess communication skills, and so in stage 2 we developed the translation and transcultural adaptation to Brazilian Portuguese of the Calgary-Cambridge Observation Guide (CCOG). This study did not find instruments that completely answered the assessment necessities regarding training in clinical communication. Further researches about assessment tools are thus required, as discussion about competence parameters in subjective items in assessment. The qualitative analysis revealed more information about the effects in communication skills than the quantitate analysis. We observed that there is a difficulty in questionnaires assessing attitudinal competences and subjective aspects in communication. We conclude that for an effective video-based feedback it becomes important to promote self-evaluation alongside reflective practices, peer-feedback focused in positive reinforcement and pursuing strategies, and a supervisor attentive to the leaner\'s psychology and able to relate the feedback with a well-defined communication theory. The Brazilian CCOG version showed acceptable reliability in the Rasch model indicators and could be part of a systematic assessment of communication skills in Brazil

Submitted by PPG Direito (ppgdir@pucrs.br) on 2018-06-04T13:38:03Z No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) / Approved for entry into archive by Sheila Dias (sheila.dias@pucrs.br) on 2018-06-11T13:15:40Z (GMT) No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) / Made available in DSpace on 2018-06-11T13:29:04Z (GMT). No. of bitstreams: 1 Andrei_Ferreira_de_Arau?jo_Lima_DIS.pdf: 2336908 bytes, checksum: 566fe92260d6a118f2a36da3cfd3cc73 (MD5) Previous issue date: 2018-03-27 / Coordena??o de Aperfei?oamento de Pessoal de N?vel Superior - CAPES / This work is the result of an interdisciplinary study between the Science of Law and Bioethics. It aims to understand the ethical and legal limits of the possible right to die, specifically euthanasia. In order to achieve that goal, we will investigate the conflict and the conformation between the fundamental right to life, to human dignity and the autonomy of the will, taking into account both doctrine and national and international jurisprudence. The main reason for the reincorporation of the subject of euthanasia into the medical and legal debate (both academic and jurisprudential) refers to the fast-moving and efficient evolution of medical science, developing treatments that can prolong the patient?s life, possibly, depending on the sickness, forever. In face of this reality, one can perceive the alteration of certain paradigms of Bioethics, such as the breaking of the paternalistic relationship between doctor and patient, the principle of beneficence according to what would be best for the patient, and the removal of unreasonable obstinacy, based on the autonomy of the will and in human dignity. In this scenario, the patients? rights are increasingly debated and new contour to the state?s duty to protect life are being given, especially when in conflict with the dignity and autonomy of the patient. In this scenario, it?s debated a possible right to die with dignity. This right promotes numerous questions, especially concerning the ethical and legal limits in cases of euthanasia, requiring the establishment of clear criteria, having as a basic principle the maximum protection of the patient?s dignity. It is emphasized that, in spite of the varied forms of assisted death, as well as the recent incorporation of ortotan?sia (term in Portuguese used for terminal patients who decline useless treatments and have their right to die granted) as legal conduct in medical ethics in Brazil, the work seeks to solve questions related to euthanasia. First classifying it, in order to avoid any form of semantic confusion. In the following points it will be discussed as a possible establishment of legal criteria as well as the practical developments, taking into account both the medical deontology and the patient?s fundamental rights. / O presente trabalho de disserta??o ? fruto de um estudo interdisciplinar entre a Ci?ncia do Direito e a Bio?tica, buscando compreender quais s?o os limites ?ticos e jur?dicos relativos a um poss?vel direito ? morte, especificamente ? eutan?sia. Para tanto, se investigar? o conflito e a conforma??o entre os direitos fundamentais ? vida, ? dignidade e ? autonomia, levando em considera??o tanto a doutrina quanto a jurisprud?ncia nacional e internacional. Elucida-se que o principal motivo para a reincopora??o da tem?tica da eutan?sia no debate m?dico e jur?dico (tanto em n?vel acad?mico quanto jurisprudencial), se refere ? r?pida e eficaz evolu??o da ci?ncia m?dica, desenvolvendo tratamentos que possam prolongar a vida de um paciente, por vezes, de modo ad eternum. Frente a essa realidade, se percebe a gradativa altera??o de determinados conceitos da Bio?tica, como a quebra da rela??o paternalista entre m?dico e paciente, o princ?pio da benefic?ncia de acordo com o que seria melhor para o paciente, e o afastamento da obstina??o irrazo?vel, todos calcados na autonomia da vontade e na dignidade da pessoa humana. Nesse cen?rio, os direitos dos pacientes s?o cada vez mais debatidos e o dever de prote??o da vida por parte do Estado passa a receber novos contornos, impondo-se limites ? dimens?o objetiva do direito fundamental ? vida, podendo prevalecer, em casos espec?ficos, a dimens?o subjetiva desse mesmo direito. Dessa rela??o entre vida, dignidade e autonomia, fala-se em um poss?vel direito ? morte digna. Contudo, restam in?meras quest?es quanto aos limites desse direito, tanto em um sentido ?tico quanto jur?dico, pois por mais que se conclua pela exist?ncia de um direito ? morte, necess?rio ser? o estabelecimento de crit?rios, limitando a autonomia dos pacientes, tendo como norte a prote??o m?xima de sua dignidade. Frisa-se que, em que pesem as mais variadas formas de morte assistida, bem como a recente incorpora??o da ortotan?sia como conduta legal na ?tica m?dica brasileira, o trabalho buscar? resolver quest?es relacionadas ? eutan?sia. Primeiro classificando-a, de modo a evitar qualquer forma de confus?o sem?ntica, para nos pontos seguintes estabelecer os crit?rios jur?dicos, bem como os desdobramentos pr?ticos calcados na deontologia m?dica.

Embora sejam grandes os progressos com a promulgação da Constituição de 1988, que garante constitucionalmente a saúde como direito de todos e dever do Estado, esse direito não tem sido assegurado no mesmo nível e com a mesma qualidade de atenção, em especial, para a população negra. Depois de uma revisão sobre a história a influência das teorias racialistas e de gênero como categoria de análise na medicina, discute-se uma síntese da história recente das práticas médicas no Brasil e a reflexão critica sobre essas práticas centradas no tecnicismo. O objetivo deste estudo, parte da linha de pesquisa Pesquisa Psicossocial da Desigualdade: Relações Étnico-raciais, foi descrever que sentidos e significados médicos e médicas conferem aos temas médico-sociais na sua trajetória e formação, especialmente como concebem os determinantes sociais de gênero e raça Foram entrevistados 25 médicos (13 médicos e 12 médicas) que orientam e são preceptores de alunos da residência médica em um hospital universitário. O roteiro abordava o perfil sócio-demográfico e sua trajetória profissional; o seu nível de conhecimento e contato com os determinantes sociais (pobreza, gênero, cor/raça, nacionalidade, religião dos diferentes grupos populacionais) durante a formação acadêmica; que fatores consideravam relevantes para uma boa relação médico-paciente; seu conhecimento sobre Direitos Humanos e os princípios do Sistema Único de Saúde; as experiências na relação médico-paciente e de cuidado. Depois de um aquecimento propiciado pela situação da entrevista, entre os resultados, o estudo permitiu observar como os médicos entrevistados reconhecem alguns marcadores sociais da diferença que se transformam em desigualdade, os lugares sociais diferentes para homens e mulheres, brancos, amarelos e negros, lugares de maior ou menor privilégio e de obstáculo para o sucesso técnico. As diferenças e desigualdade de gênero foram mais fáceis de serem explicitadas e os entrevistados articulavam um repertório levemente maior para o tema. Todos os entrevistados, em algum momento, usaram o discurso sobre o instintivo e natural, e a maior parte deles compreende o masculino e o feminino de um modo muito conservador, com problemas para encontrar definições para perguntas supostamente simples. No caso da desigualdade racial, observamos que houve uma polarização: de um lado a negação das desigualdades entre brancos e não brancos, do outro temos a valorização da identidade branca, compondo bem com o racismo à brasileira. O contexto social foi associado à pobreza mais que qualquer outro indicador da desigualdade social. Cenas de racismo e sexismo institucional foram frequentes. Os poucos entrevistados que tinham uma noção mais sofisticada sobre gênero e raça eram aqueles que contaram com a oportunidade de desenvolver uma atividade de extensão, a iniciação científica ou que tiveram uma formação mais generalista, mais social. A trajetória trilhada na faculdade contribui, portanto, para a formação / Brazil\'s 1988 Constitution grants health as a human right to all and a duty of the State. Although great progress has been made since its enactment, this right has not been ensured at the same level and with the same service quality, particularly with regard to Afro-Brazilians. With close attention to history and the influence of racial and gendered theories, this article discusses the recent history of medical practices in Brazil and provides critical reflection on those practices that are centered on technique. The main purpose of this study, a part of the Psycho-social research on inequality: ethnic-racial relations research line, is to describe the meanings and significance that doctors give to medical social issues in their education. Special attention is given to their conception of the social determinants of gender and race. Twenty-five doctors (13 men and 12 women) were interviewed. All of them mentor medical students pursuing their residency at a University Hospital. The interviews script centered on their socio-demographic profile, their professional path and the degree of knowledge or contact with social determinants (poverty, gender, race/color, nationality, religion of the different population groups) during their academic formation, the factors they considered as relevant to a good doctor-patient relationship, their knowledge of Human Rights and the principles of the Sistema Único de Saúde (SUS) and their experiences in the care and doctor-patient relationships. Among its results, the study shows how the interviewed doctors recognize several social markers of difference that convert into inequity, the different social places for men and women, the white, the people of Asian descent and the black, places of greater or lower privilege and obstacle for technical success. The gender differences and inequalities were more easily explained and respondents articulated a slightly larger repertoire for the topic. All of the interviewees, at some moment, used the discourse on the instinctive and the natural, and most of them have a very conservative comprehension of the feminine and the masculine, and encountered problems in finding definitions for apparently simple questions. With regards to racial inequality, there was a polarization: on the one hand, the denial of inequalities among the white and the non white, on the other, a consistent evaluation of white identity, linked to the Brazilian racism. The social context was associated with poverty rather than any other indicator of social inequality. Evidence of racism and sexism were frequently observed in the interviews. The few interviewees that had a more sophisticated notion of gender and race were those who had had the chance to develop an extracurricular activity, the scientific initiation, or those who had had a more generalist and social education. Thus, the experience acquired during university contributes to the formation of their notions of social determinants in health

L'oncogénétique, l'étude des prédispositions héréditaires au cancer, constitue une discipline médicale dynamique, faisant l'objet de nombreuses innovations, tant technologiques que thérapeutiques. Les progrès scientifiques en oncogénétique rendent le recours aux tests génétiques à la fois moins coûteux, plus rapide et plus efficace, ce qui soulève ou réactualise paradoxalement de nombreux enjeux éthiques et psychosociaux tels que la capacité des patients à formuler un consentement éclairé ou le risque de dérives liées à des mésusages des tests génétiques. Face à ces changements, nous avons choisi d’explorer la façon dont est mobilisée l'expérience vécue ou projetée dans la mise en sens des enjeux éthiques et psychosociaux liés aux innovations technologiques et thérapeutiques en oncogénétique. Ce travail de recherche, résolument ancré en psychologie sociale, s'inscrit dans une approche critique des questions de santé où sont interrogés à la fois les besoins, attentes et contraintes des professionnels et usagers du système de soins, et les relations de pouvoir qui s'exercent tant au niveau interindividuel qu'au niveau plus large des politiques de santé. C'est grâce à la notion d'expérience vécue ou projetée que nous avons cherché à comprendre la façon dont les individus font sens de leur monde, et plus particulièrement des évolutions qui touchent l'oncogénétique. L'expérience, nécessairement sociale et socialement construite, est multidimensionnelle, nous proposons d'investiguer plus particulièrement trois de ces dimensions : - une dimension pratique centrée sur l’étude des relations soignants-patients, - une dimension de connaissances étudiée au travers de la négociation des connaissancesexpertes et du savoir de sens commun grâce à la théorie des représentations sociales, - et enfin une dimension émotionnelle envisagée sous l'angle des phénomènes de partage social des émotions et de régulation émotionnelle.Afin de répondre à ces objectifs, deux études complémentaires reposant sur des méthodologies qualitatives ont été mises en place dans une perspective de triangulation des données. La première étude a visé à investiguer la mise en sens des pratiques professionnelles ainsi que la façon dont les soignants se projettent dans un champ disciplinaire en pleine transition et dans leurs pratiques futures. Nous avons mené des entretiens semi-directifs auprès de 27 professionnels en oncogénétique (oncogénéticiens et conseillers en génétique). Les données recueillies ont fait l'objet d'une analyse interprétative phénoménologique (IPA) adaptée à un large échantillon sur les données recueillies, en nous appuyant sur le logiciel d'aide à l'analyse N-Vivo. La seconde étude avait pour objectif d'explorer la co-construction des représentations liées aux nouveaux usages de l'oncogénétique, ainsi que d'étudier l'impact de la l'expérience vécue sur la compréhension des enjeux éthiques liés àl'oncogénétique. Dix focus groups, reposant principalement sur la résolution de dilemmes éthiques, ont été réalisés auprès de 18 femmes ayant l'expérience d'au moins une consultation en oncogénétique et 21 femmes n'ayant pas d'expérience similaire, toutes recrutées par le biais de la plateforme Les Seintinelles, qui constitue une communauté d'intérêt autour du cancer. Une analyse inspirée de l'IPA a été réalisée sur les données ainsi recueillies avec appui sur le logiciel N-Vivo.Notre recherche a permis de souligner le caractère résolument social de la recherche de prédispositions génétiques en oncologie. L’oncogénétique est définie socialement autour de deux de ces objectifs : permettre de mettre en place des mesures de prévention destinées aux individus porteurs d’une mutation génétique, et donner une explication à une histoire familiale de cancer..... / Genetic testing for cancer, which aims to identify hereditary predispositions to cancer, is a dynamic medical field, where many technological and therapeutic innovations emerge. Scientific progress allows genetic testing to be both less expensive, faster and more efficient, which paradoxically raises new ethical and psychosocial issues, such as the patient’s ability to give informedconsent, or the risk of misuses of genetic testing. These changes led us to explore how lived experience is mobilized in the process of making sense of the ethical and psychosocial issues related to innovations in the field of genetic testing of cancer. This research, anchored in social psychology, is based on a critical approach of health issues, which questions the needs, expectations and constraints of health professionals and patients, and the power relationships that take place both at the interindividual level and, on a larger scale, within health policies. Based on the theoretical notion of lived experience, we aimed to understand how individuals make sense of their world, and more particularly of innovations in the field of genetic testing. Lived experience, necessarily social and socially constructed, has many dimensions, among which we chose to investigate the following three: - A practical dimension, based on the study of doctor patient-relationship, - A knowledge dimension, investigated through the negotiation of expert knowledge and common sense thanks to the social representations theory, - And an emotional dimension, based on the study of the phenomena of emotion regulation and social sharing of emotions.Based on the principles of methodological and data triangulation, our exploration was based on two complementary qualitative studies. The first study aimed to investigate sense making processes related to professional activities and how health professionals working in genetic testing for cancer imagine their future and the future of genetic testing. We led 27 semi-structured interviews with genetic counsellors and clinical geneticists. An Interpretative Phenomenological Analysis (IPA) was performed analyze the data gathered, with the assistance of N-Vivo software. The second study aimed to explore the co-construction of representations related to new uses to genetic testing of cancer, and to investigate the impact of lived experience on the understanding of ethical issues related to genetic testing. We led ten focus groups, based mostly on the resolution of ethical dilemmas, with 18 women who attended at least one genetic counselling consultation, and 21 women who did not have a similar experience. All women were recruited thanks to the online collaborative research platform “Les Seintinelles”, which constitutes a cancer related community of interest.This research allowed us to highlight the social nature of genetic testing of cancer. This medical field is defined by two main goals: allowing carriers of genetic predisposition to undergo preventive measures, and making sense of a family history of cancer. Genetic counselling professionals report a high level of personal involvement in their work and emotion regulation strategies acquired on purpose and based on a strict division between their personal and professional life. The acknowledgement oftheir professional skills and the perceived quality of their relationships with their patients contribute highly to the work-related satisfaction of genetic testing professionals. The doctor-patient relationship is structured by an ideal of non-directivity, which can be questioned by the need to accompany and protect the patients, who are considered as vulnerable. Because of the risks of misuses of genetic testing, the strict legislation related to these practices in France is most often considered as valuable.Clinical geneticists and genetic counsellors are considered the most likely to provide genetic testing within an ethical framework.