There has been a growing awareness of human rights, specifically children rights, over the past 20 years. Children with intellectual disabilities are often described as a vulnerable group, with limited opportunities to fully participate in society and act as meaningful contributors. Primary caregivers are responsible to act in their child’s best interest and hence their perception of children’s rights is important. The role that they play in their child with disabilities’ life and how they promote their child’s rights, can never be ignored. The main aim of this study was to describe the extent to which Afrikaans-speaking primary caregivers perceive that the basic needs of their children between 8;0 and 14;11 (years;months) with intellectual disabilities are being met, in an attempt to describe their rights as set out by the United Nations Convention on the Rights of the Child (UNCRC). The UNCRC is a widely accepted body of which South Africa is a signatory. Forty-nine participants who met the selection criteria were asked to complete a questionnaire, consisting of biographical information, the Ten Questions Questionnaire (TQQ), and questions related to needs and rights of children with disabilities as set out by the UNCRC. Participants were mostly older, married mothers who had only a Grade 10 or lower qualification. Either themselves or their spouses were in full-time employment, and they were part of the low to middle socio-economic group. Results revealed that the majority of primary caregivers believed that their children with intellectual disabilities understood them when they told their children to do something and could speak and say recognizable words, whilst less than half of the primary caregivers reported that their children’s speech was different from normal. More than half of the primary caregivers indicated that their children learn to do things in the same way as typically developing peers. With regard to different assistive devices, the majority of primary caregivers felt that their children’s needs were met in respect to different assistive devices. This study revealed that primary caregivers most frequently mentioned intangible rights such as self-esteem rights (which included attitudes, acceptance, respect and equality. The study contributed to an improved understanding of Afrikaans-speaking primary caregivers’ perception of their children with intellectual disabilities’ needs as a starting point for claiming their human rights. / Dissertation (MA)--University of Pretoria, 2012. / Centre for Augmentative and Alternative Communication (CAAC) / unrestricted

Magister Public Health - MPH / Children in developing countries are now receiving both surgical and catheter-based interventions for the repair of congenital heart defects. Despite the technically advanced treatment options and improved survival rates of children with congenital heart defects, little is known about the experiences and challenges of primary caregivers whilst taking care of their child after a cardiac intervention in South Africa. This exploratory, descriptive study used a qualitative research approach to describe some of the key experiences of eight primary caregivers as they took care of their child in their home environment following a cardiac interventional procedure.

With an increase in diagnosis rates of autism in Trinidad, more parents of children with autism, especially single fathers, face numerous challenges on a daily basis. There is a lack of research on this topic and therefore an inadequate understanding of the experiences of Trinidadian single fathers as primary caregivers for children with autism. The purpose of this phenomenological study was to explore and depict the lived experiences of single fathers of children with autism. Social support theory was the guiding conceptual framework to explore and understand how single fathers effectively manage their daily challenges. Ten single fathers from Southern Trinidad were recruited through criterion sampling and they engaged in semi-structured interviews individually. Moustakas's steps to phenomenological analysis were used to analyze the data. There were seven major themes that emerged from describing the lived experience of single fathers of children with autism: (a) challenges, (b) social support systems, (c) day-to-day experiences, (d) the role of the father within the family, (e) effects on social life, (f) sibling reactions, and (g) adaptive coping mechanisms. This study may engender social change, as the findings may be used to support single fathers to continue to provide care for their children. This study could result in improved understanding and support for their children both at home, in school, and in the community. The findings will be available to other fathers who share similar experiences. Special education service providers may gain further information to improve their services to families of children with disabilities.

Lowered academic achievement and premature departure from high school continue to plague the educational system, creating the need for greater insight into experiences affecting students' classroom performance. Much is known about academic achievement; however, less research has focused on the role of familial attachment on premature departure from high school. Guided by attachment theory, the purpose of this interpretative phenomenological study was to gain insight into General Education Diploma (GED) students' familial attachment experiences influencing premature departure from high school. The research questions focused on GED students' primary caregiver and educational experiences. Participants (n = 14) consisted of current or previous GED students 18-30 years of age. Data were gathered from semistructured interviews and a Life Map used to capture expression of feelings through symbols. Interview transcriptions were hand-coded by bracketing words and phrases for composite textual descriptions. Data interpretations were bolstered by committee member checking and participants' review of extracted data. Findings revealed a close connection between the types of attachment formed with primary caregivers and early departure from high school, but participants were more strongly influenced by external influences such as relationship conflicts, health crises, domestic violence, abuse, loss, and paternal abandonment. This study offers insight to educators, counselors, and those within the criminal justice system on these students' emotional and mental needs.

Indiana University-Purdue University Indianapolis (IUPUI) / Indiana University-Purdue University Indianapolis (IUPUI) / According to the most recent US Census statistics, there is an estimated 2.5 million grandparents raising their grandchildren in the United States without the children's parents present in the household. In Indianapolis, the figure constitutes nearly 9,000 households. There are a disproportionately higher number of African American grandparents that are primary caregivers to their grandchildren. However, 6 percent of this population is grandfathers who are raising their grandchildren, while some 40 percent of the grandmothers are married. The research is a compilation of interviews with ten African American grandfathers living in Indianapolis who are raising their grandchildren in their households without the presence of the grandchildren’s parents. These men were either married or widowed and have either formal custody of their grandchildren through adoption, foster care/kinship care, court-appointed guardianship or informal living arrangements. The objective of the research was to capture the lived experiences of these grandfathers who were fulfilling their caregiving roles. Thus, the research methodology used was reflective of the phenomenological paradigm of inquiry.

Paternal incest is the intimate sexual contact between biological, step or foster fathers and their children. These father-figures include the live-in partners of the non-offending mother. The actual incidence of paternal incest in South Africa is not known; however, the South African Police Services report the incidence of incest in the Western Cape for 2011/2012 to be the second highest in South Africa. When children reveal the incest to any person, this is called disclosure. After disclosure and with the removal of the paternal figure from the family unit, the mother or grandmother is responsible for the sole care of the child-victim and becomes the primary caregiver. However, in the South African context it is traditionally accepted that the grandmother assumes the role of primary caregiver of the child where the child’s mother and/or father are unable to fulfil their parental role adequately. Therefore in this study, “primary caregivers” refers to mothers and maternal grandmothers. In the South African context, limited studies have been done that explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest. There is also a lack of information on how to support these primary caregivers in the abovementioned context. The aim of this study was firstly to explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest and secondly to use these experiences to suggest guidelines that may be utilised by practitioners (such as social workers and registered counsellors) to develop support programmes for these caregivers. The research was conducted at a non-profit organisation in the Western Cape Province of South Africa, that provides psychosocial services and where cases of paternal incest are referred for intervention. A qualitative, phenomenological research design was applied in this study to obtain rich data. Six primary caregivers were chosen through purposive sampling, on the basis that their children or grandchildren were exposed to paternal incest within the last five years. Of these, four were mothers and two were maternal grandmothers who were responsible for the children. Data was collected through in-depth interviews and was analysed thematically. Two main themes emerged from the study. The first theme involved reactions to the disclosure and its aftermath, which encompassed emotional, cognitive and physiological reactions that are similar to secondary traumatisation. The second theme was coping strategies that emerged to deal with the disclosure and its aftermath, which encompassed effective coping strategies (behavioural coping strategies to actively solve problems and the presence of social support), unhealthy or negative coping strategies (behavioural coping strategies of avoidance) and threats to coping (a lack of social support). The contribution of this study lies in the suggestion of guidelines for the support of primary caregivers whose children or grandchildren were exposed to paternal incest. These guidelines include the provision of emotional support, multidisciplinary practitioner support and educational support programmes. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

Paternal incest is the intimate sexual contact between biological, step or foster fathers and their children. These father-figures include the live-in partners of the non-offending mother. The actual incidence of paternal incest in South Africa is not known; however, the South African Police Services report the incidence of incest in the Western Cape for 2011/2012 to be the second highest in South Africa. When children reveal the incest to any person, this is called disclosure. After disclosure and with the removal of the paternal figure from the family unit, the mother or grandmother is responsible for the sole care of the child-victim and becomes the primary caregiver. However, in the South African context it is traditionally accepted that the grandmother assumes the role of primary caregiver of the child where the child’s mother and/or father are unable to fulfil their parental role adequately. Therefore in this study, “primary caregivers” refers to mothers and maternal grandmothers. In the South African context, limited studies have been done that explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest. There is also a lack of information on how to support these primary caregivers in the abovementioned context. The aim of this study was firstly to explore the experiences of primary caregivers whose children or grandchildren were exposed to paternal incest and secondly to use these experiences to suggest guidelines that may be utilised by practitioners (such as social workers and registered counsellors) to develop support programmes for these caregivers. The research was conducted at a non-profit organisation in the Western Cape Province of South Africa, that provides psychosocial services and where cases of paternal incest are referred for intervention. A qualitative, phenomenological research design was applied in this study to obtain rich data. Six primary caregivers were chosen through purposive sampling, on the basis that their children or grandchildren were exposed to paternal incest within the last five years. Of these, four were mothers and two were maternal grandmothers who were responsible for the children. Data was collected through in-depth interviews and was analysed thematically. Two main themes emerged from the study. The first theme involved reactions to the disclosure and its aftermath, which encompassed emotional, cognitive and physiological reactions that are similar to secondary traumatisation. The second theme was coping strategies that emerged to deal with the disclosure and its aftermath, which encompassed effective coping strategies (behavioural coping strategies to actively solve problems and the presence of social support), unhealthy or negative coping strategies (behavioural coping strategies of avoidance) and threats to coping (a lack of social support). The contribution of this study lies in the suggestion of guidelines for the support of primary caregivers whose children or grandchildren were exposed to paternal incest. These guidelines include the provision of emotional support, multidisciplinary practitioner support and educational support programmes. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

This research involves the exploration of the potential, as well as the problems, of early adolescents’ relationships in the context of the school-and-home in a high-risk community in South Africa. Although researchers indicate that school performance and academic success is of key importance concerning positive youth development (You & Nguen, 2011), many South African adolescents are still part of the high incidence of repeating greades and drop-out statictics in this country (Louw, Bayat & Eigelaar-Meets, 2011). This study highlights one of the factors for school success, namely, the involvement of primary care givers in the school community. There is a need to explore adolescents’ perceptions of their primary care givers’ involvement in the school community, within the context of a high-risk South African community, since research within Positive Psychology also explores those resources which promote wellbeing and resilient coping. This study made use of the qualitative method and the results have been presented in an article format, as part of the dissertation. The aim of the article was to explore early adolescents’ perceptions of their primary care-givers’ involvement in the school community in a high-risk community. Participants (N=12) between the ages of twelve to fourteen years, from one school in the Delft Community, Cape Peninsula, were chosen in an un-biased fashion. The Delft community is one of the twenty identified high-risk communities in South Africa. Demographic information shows that the majority of the participants’ care-givers are not the biological parents. The findings indicate that early adolescents percieve their primary caregivers’ involvement in the school community, in a high-risk community, in the following ways: The meeting of basic needs, such as the provision of food, clothing and a home is essential for the adolescent’s school career; the emotional colour of the involvement of care givers is mostly negative, since school visitations involve the handling of problems, or the prevention of further problems; the early adolescent’s understanding of school success greatly matches that of his/her primary care- givers and is seen mostly in terms of either “pass” or “fail”; and early adolescents’ school careers and primary care-givers’ involvement within the context of a high-risk community involve experiences such as the exposure to continued poverty with various implications such as hunger, walking to school in an unsafe environment, as well as gang-violence, crime and substance abuse. This study shows that, besides the challenges that are associated with the adolescent life-phase, early adolescents also have to deal with various other problems that emanate from a high-risk community. These problems are generally matters of survival, and it is clear that these risks further strain well-being and the development thereof. Poor involvement of primary caregivers in the school community is one of the realities which early adolescents in a high-risk community have to deal with, and this poor involvement is indicative of not providing life essentials, as well as personal interest and encouragement. It is further the experience of negative emotions, such as fear in general and the “scared-ness” indicates adolescents’ fear for their own safety, as well as that of their friends and family. The participants in this study have all been affected directly and/or indirectly by the trauma of gang violence and the untimely death of a family member. In the midst of these challenges, the primary caregivers are mostly uninvolved in these vulnerable adolescents’ lives. Primary care-givers visit the school community mainly when they are summoned to handle “problems”. Primary care-givers generally have a negative association with the school community. The less negative experience of emotions indicates the absence of serious problems, such as the not-completion of school work. The scarce occurrence of positive emotions, such as primary care-givers that show compassion with early adolescents when they experience disappointment, is actually part of the participants’ experiences. The primary care- givers’ active helping with the early adolescents’ school tasks is uncommon and it is mostly focused on the prevention of the repetition of school grades. The presence of a family member (extended family) with school meetings has great value for the early adolescents’ perception of family as a protective factor for the well-being of the young person. This study presents an important contribution to Positive Psychology, as valuable information is presented to understand the early adolescent’s well-being and the context thereof. The specific descriptions of early adolescents’ perceptions of the involvement of their primary care-givers in the school community provide a description of the potential which can be unlocked in school-and-life choices. Findings have implications for policies regarding the promotion of well-being. Recommendations for further study are given. Possibilities for application includes the importance of the ecological impact and of partnerships, so that problems and the development of well-being can be addressed by primary care givers, school communities, faith communities, NGOs and universities. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

This research involves the exploration of the potential, as well as the problems, of early adolescents’ relationships in the context of the school-and-home in a high-risk community in South Africa. Although researchers indicate that school performance and academic success is of key importance concerning positive youth development (You & Nguen, 2011), many South African adolescents are still part of the high incidence of repeating greades and drop-out statictics in this country (Louw, Bayat & Eigelaar-Meets, 2011). This study highlights one of the factors for school success, namely, the involvement of primary care givers in the school community. There is a need to explore adolescents’ perceptions of their primary care givers’ involvement in the school community, within the context of a high-risk South African community, since research within Positive Psychology also explores those resources which promote wellbeing and resilient coping. This study made use of the qualitative method and the results have been presented in an article format, as part of the dissertation. The aim of the article was to explore early adolescents’ perceptions of their primary care-givers’ involvement in the school community in a high-risk community. Participants (N=12) between the ages of twelve to fourteen years, from one school in the Delft Community, Cape Peninsula, were chosen in an un-biased fashion. The Delft community is one of the twenty identified high-risk communities in South Africa. Demographic information shows that the majority of the participants’ care-givers are not the biological parents. The findings indicate that early adolescents percieve their primary caregivers’ involvement in the school community, in a high-risk community, in the following ways: The meeting of basic needs, such as the provision of food, clothing and a home is essential for the adolescent’s school career; the emotional colour of the involvement of care givers is mostly negative, since school visitations involve the handling of problems, or the prevention of further problems; the early adolescent’s understanding of school success greatly matches that of his/her primary care- givers and is seen mostly in terms of either “pass” or “fail”; and early adolescents’ school careers and primary care-givers’ involvement within the context of a high-risk community involve experiences such as the exposure to continued poverty with various implications such as hunger, walking to school in an unsafe environment, as well as gang-violence, crime and substance abuse. This study shows that, besides the challenges that are associated with the adolescent life-phase, early adolescents also have to deal with various other problems that emanate from a high-risk community. These problems are generally matters of survival, and it is clear that these risks further strain well-being and the development thereof. Poor involvement of primary caregivers in the school community is one of the realities which early adolescents in a high-risk community have to deal with, and this poor involvement is indicative of not providing life essentials, as well as personal interest and encouragement. It is further the experience of negative emotions, such as fear in general and the “scared-ness” indicates adolescents’ fear for their own safety, as well as that of their friends and family. The participants in this study have all been affected directly and/or indirectly by the trauma of gang violence and the untimely death of a family member. In the midst of these challenges, the primary caregivers are mostly uninvolved in these vulnerable adolescents’ lives. Primary care-givers visit the school community mainly when they are summoned to handle “problems”. Primary care-givers generally have a negative association with the school community. The less negative experience of emotions indicates the absence of serious problems, such as the not-completion of school work. The scarce occurrence of positive emotions, such as primary care-givers that show compassion with early adolescents when they experience disappointment, is actually part of the participants’ experiences. The primary care- givers’ active helping with the early adolescents’ school tasks is uncommon and it is mostly focused on the prevention of the repetition of school grades. The presence of a family member (extended family) with school meetings has great value for the early adolescents’ perception of family as a protective factor for the well-being of the young person. This study presents an important contribution to Positive Psychology, as valuable information is presented to understand the early adolescent’s well-being and the context thereof. The specific descriptions of early adolescents’ perceptions of the involvement of their primary care-givers in the school community provide a description of the potential which can be unlocked in school-and-life choices. Findings have implications for policies regarding the promotion of well-being. Recommendations for further study are given. Possibilities for application includes the importance of the ecological impact and of partnerships, so that problems and the development of well-being can be addressed by primary care givers, school communities, faith communities, NGOs and universities. / MA (Psychology), North-West University, Potchefstroom Campus, 2014

<p dir="ltr"><a href="" target="_blank">The goal of this study was to contribute to the research on determinants of caregiving by exploring whether adult children’s health problems shape their involvement in their mothers’ care. Drawing from equity theory and contingent exchange theory (Davey & Eggebeen, 1998; Davey & Norris, 1998; Walster et al., 1978), I proposed that adult children with health problems would be less likely to be their mothers’ primary caregivers but more likely to be their mothers’ secondary caregivers compared to their healthier siblings. Additionally, based on gender role development theories (Chodorow, 1978; Gilligan, 1982; Leaper & Friedman, 2007), I hypothesized that health problems would reduce sons’, but not daughters’, likelihood of serving as their mothers’ primary caregivers. The results of both the quantitative and qualitative analyses revealed that from both the mothers’ and children’s perspectives, adult children with and without health problems were equally as likely to serve as their mothers’ primary or secondary caregivers. Furthermore, the results suggested that daughters were expected to provide care despite their own health obstacles, whereas this expectation was not present for sons. The findings suggested that adult children with health problems are still participants in their mothers’ care and should be included in conversations regarding planning for their mothers’ future care needs and current caregiving arrangements. Additionally, the findings highlighted how providing care comes at a higher cost for children with health problems compared to their healthier siblings. Future research should investigate how additional support to caregivers with health problems may lead to better caregiving outcomes for both the caregivers and care recipients.</a></p>