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Understanding Physical Activity from the Perspectives of Children with Complex Heart Defects, their Parents and their Cardiologists

Children with complex heart defects lead sedentary lives that limit involvement in peer activities, impact their growth and development, and jeopardize their long-term health. The goal of this research was to better understand the factors that influence daily moderate-to-vigorous physical activity (MVPA), which is associated with physical and psychological health. The physical activity levels of 64 children (25 female, 5 to 11 years of age) with a single pumping chamber in the heart were measured by accelerometry. Fitness and gross motor skill measures and medical history information were analyzed to identify factors associated with MVPA participation. Increased activity was related to the use of antithrombotic medication, spring season of the year, better motor skill and male sex. Group and individual discussions further explored psychosocial influences on the children’s level of MVPA. The children indicated physical activity was primarily motivated by having fun and being with their friends, while other children being more skilled discouraged participation. Parents of children with complex heart defects had dramatically different perceptions. They believe their child’s activity is primarily influenced by the heart condition and report often feeling uncertain about which activities are appropriate for their child. Finally, sources of parental uncertainty were examined by comparing the physical activity advice provided by the cardiologist to parent reports of the child’s activity restrictions, a content analysis of published activity guidelines and interviews with paediatric cardiologists. Parent uncertainty about activity was supported by the lack of agreement between parent and cardiologist reports of medically necessary activity restrictions. Parent reports of vague or variable activity advice were reflected in the published literature and cardiologist perspectives on activity counselling. These results suggest enabling children with complex heart defects to achieve an active lifestyle may rest on ensuring that the child and parents have appropriate physical activity beliefs and expectations.

Identiferoai:union.ndltd.org:TORONTO/oai:tspace.library.utoronto.ca:1807/32942
Date05 September 2012
CreatorsLongmuir, Patricia Elayne
ContributorsMcCrindle, Brian W.
Source SetsUniversity of Toronto
Languageen_ca
Detected LanguageEnglish
TypeThesis

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