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THE SYSTEMATIC ASCERTAINMENT OF STRUCTURED FAMILY HEALTH INFORMATION USING AN ONLINE PATIENT PORTAL

Family Health Information (FHI) helps identify individuals who are at increased risk for adverse health conditions due to inherited genetic or environmental predisposition. Appropriate stratification of patients based on familial risk relies on the clinicians ability to ascertain and the patients ability to report complete and accurate FHI. Complicating this factor, the collection of detailed FHI often requires more time than is available in the typical patient encounter in the primary care setting. As a result, FHI is often inconsistently and ineffectively communicated during clinical encounters, leading to FHI that is often incomplete, thus limiting its potential use for clinical decision-making. Yet, FHI epitomizes a cost effective strategy, and is critical to the emerging practice of genome-informed and personalized medicine. This thesis describes the development and evaluation of the www.MyFamilyatVanderbilt.com (MyFaV), a web-based portal for ascertaining structured FHI directly from patients.

Identiferoai:union.ndltd.org:VANDERBILT/oai:VANDERBILTETD:etd-07252012-162243
Date30 July 2012
CreatorsHolt, Jonathan Andrew
ContributorsPaul Harris, Dario Giuse, Cindy Gadd
PublisherVANDERBILT
Source SetsVanderbilt University Theses
LanguageEnglish
Detected LanguageEnglish
Typetext
Formatapplication/pdf
Sourcehttp://etd.library.vanderbilt.edu/available/etd-07252012-162243/
Rightsunrestricted, I hereby certify that, if appropriate, I have obtained and attached hereto a written permission statement from the owner(s) of each third party copyrighted matter to be included in my thesis, dissertation, or project report, allowing distribution as specified below. I certify that the version I submitted is the same as that approved by my advisory committee. I hereby grant to Vanderbilt University or its agents the non-exclusive license to archive and make accessible, under the conditions specified below, my thesis, dissertation, or project report in whole or in part in all forms of media, now or hereafter known. I retain all other ownership rights to the copyright of the thesis, dissertation or project report. I also retain the right to use in future works (such as articles or books) all or part of this thesis, dissertation, or project report.

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