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Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

Yes / We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers.
Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic.
There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving. / Economic and Social Research Council (ESRC) through grant ES/V004964/1. Economic and Social Research Council (ESRC) and the National Institute for Health and Care Research (NIHR) through grant ES/L001853/2. Alzheimer’s Society, grant number 348, AS-PR2-16-001. / The full-text of this article will be released for public view at the end of the publisher embargo on 29 Aug 2024.

Identiferoai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/19574
Date01 September 2023
CreatorsCollins, R., Dawson, E., Pentecost, C., Stapley, S., Quinn, Catherine, Charlwood, C., Allan, L., Victor, C., Clare, L.
Source SetsBradford Scholars
LanguageEnglish
Detected LanguageEnglish
TypeArticle, Accepted manuscript
Rights© Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version [Collins R, Dawson E, Pentecost C et al (2023) Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. Accepted for Publication.] is available online at: https://doi.org/10.1332/239788223X16893442145108, Unspecified

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