Sammenfatning Baggrund: Silversplints som behandling af hypermobilitet i fingrene hos personer med Ehlers-Danlos syndrom (EDS), er blevet mere udbredt i Danmark igennem de sidste 10 år, men der findes endnu ingen publicerede artikler om denne ortosebehandling og målgruppe. EDS er en gruppe sjældne heterogene bindevævssygdomme der kendetegnes ved generel hypermobilitet og smerte. Silversplints er håndlavede finger- og håndledsskinner af sølv, der er opbygget som et 3-punkts kraftsystem, der kan støtte og korrigere hypermobile led, modvirke fejlstillinger, samt begrænse bevægeligheden af fingrene. Formål: Bacheloropgaven har til formål at undersøge hvordan personer med EDS oplever at have silversplints på og hvilke vanskeligheder de oplever at have i hverdagen ud fra ICF. Metode: Bacheloropgaven anvender semi-structured interviews for at undersøge hvordan 3 deltagere med EDS oplever silversplints som behandling af hypermobilitet i fingrene. Den teoretiske referenceramme er Interpretative Phenomenological Analysis, som er en induktiv tilgang og iterativ proces. Resultat: Ud fra analysen opstod følgende 4 temaer: jeg er ikke min sygdom, energiforbrug, smertens mange ansigter, et farverigt liv. Gennem disse temaer gives et indblik i den positive effekt silversplints kan have for nogle personer med EDS. Anvendelsen af ICF viste at især funktionsevnen blev påvirket. Dette indebærer at kroppens funktioner og anatomi opleves vanskeligt, hvilket fører til begrænsninger i deltagernes mulighed for aktivitet og deltagelse. Konklusion: De identificerede temaer demonstrerer silversplints effekt på deltagernes mentale og fysiske helbred, samt giver et detaljeret billede af deltagernes oplevede problemer og funktionsevne, med og uden silversplints. Bacheloropgaven identificerer hvilke dele, kategorier og domæner indenfor ICF, personer med EDS oplever som problematiske, hvilket kan anvendes til at skabe et core set i videre forskning. / Abstract Background: Silversplints as orthotic management of finger hypermobility for people with Ehlers-Danlos Syndrome (EDS) has become more widespread in Denmark during the last 10 years, but no articles has yet been published about this orthotic management and population. EDS is a group of rare heterogeneous connective tissue disorders which is characterized by general hypermobility and pain. Silversplints are handmade finger and wrist splints made of silver, which are structured as 3-point force systems, which supports, corrects hypermobile joints, and corrects deformities as well as limits the movement of the fingers. Purpose: The aim of the thesis is to explore how people with EDS experience the use of silversplints and which difficulties they experience in their daily life based on ICF. Methods: The thesis uses semi-structured interviews to explore how 3 participants with EDS experience silversplints as orthotic management of hypermobility in the fingers. The theoretical framework is Interpretative Phenomenological Analysis, which is an inductive approach and iterative process. Results: From the analysis 4 themes emerged: I am not my disorder, energy consumption, the many faces of pain, a colorful life. Through these themes an insight is gained into the positive effects silversplints may display for some people with EDS. The use of ICF showed that especially functioning and disability was affected. This involves that the body functions and structures are experienced as difficult, which leads to limitations in the participants possibility of activities and participation. Conclusion: The identified themes demonstrates silversplints’ effect on the participants mental and physical health, as well as provides a detailed picture of the participants’ experienced problems and functional capability, with and without silversplints. The thesis identifies which parts, categories, and domains within ICF, people with EDS experience as problematic, which can be used to generate a core set for further research.
| Identifer | oai:union.ndltd.org:UPSALLA1/oai:DiVA.org:hj-48462 |
| Date | January 2020 |
| Creators | Wejse, Daniel Langborg, Christensen, Linea Hua Bjerre |
| Publisher | Hälsohögskolan, Jönköping University, HHJ. Ortopedteknisk plattform, Hälsohögskolan, Jönköping University, HHJ, Avd. för rehabilitering, Hälsohögskolan, Jönköping University, HHJ. Ortopedteknisk plattform, Hälsohögskolan, Jönköping University, HHJ, Avd. för rehabilitering |
| Source Sets | DiVA Archive at Upsalla University |
| Language | Danish |
| Detected Language | English |
| Type | Student thesis, info:eu-repo/semantics/bachelorThesis, text |
| Format | application/pdf |
| Rights | info:eu-repo/semantics/openAccess |
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