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An Examination of Parent Perspectives on Augmentative and Alternative Communication Systems in Children with Fragile X Syndrome

The purposes of this qualitative inquiry were as follows: (a) to understand how mothers of children with fragile X syndrome (FXS) used augmentative and alternative communication (AAC) systems in the home, (b) to capture their views regarding AAC use, and (c) to examine the support they received in the process. Data was collected using participant observations, semi-structured interviews and review of archival educational records and were analyzed using grounded theory methods. Results revealed that for children with FXS, the interplay of children’s complex developmental challenges, mothers’ internal struggles, and the absence of external supports leads to limited and variable use of AAC in the home.

Identiferoai:union.ndltd.org:UMIAMI/oai:scholarlyrepository.miami.edu:oa_dissertations-1534
Date20 April 2011
CreatorsSchladant, Michelle
PublisherScholarly Repository
Source SetsUniversity of Miami
Detected LanguageEnglish
Typetext
Formatapplication/pdf
SourceOpen Access Dissertations

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