OBJECTIVES: Alzheimers disease (AD), the most common form of dementia, the group of brain disorders that cause memory loss and decline in mental function over time is the third most expensive disease in the nation, after heart disease and cancer. Average lifetime costs per patient are $174,000 with annual estimates of $80 to $100 billion dollars in health care expenses and lost wages for the AD patient or their family caregivers. The research study was designed to describe social policy and its affects on the eligibility and determination of benefits for two community-dwelling patients with AD and their caregivers in Southwestern Pennsylvania. METHODS: Secondary data analysis was conducted from data drawn from a previous study, The Process of Medication Taking. Data for this study included participant observations, interactive unstructured informal interviews, open-ended formal interviews and case description. Constant comparative analysis is used to determine similarities and differences between cases. RESULTS: Family caregivers aim to achieve quality care and services for the AD patient. To achieve this objective, the family and patients traverse a pathway of social care needs. Along the way, the family and caregivers approach milestones. These landmarks include accessing social services, cultivating a social support network, maintaining continuity of care, and managing the health care needs beyond the diagnosis of AD. Along the pathway to achieving the objective of quality care and services, there appear barriers and setbacks such as social service eligibility, location to eligible services and lack of support by family and friends. PUBLIC HEALTH SIGNIFICANCE: The amount of AD patients has doubled since 1980 and is expected to continue to expand to 11.3 to 16 million people by the year 2050. Furthermore, much of the long-term care is being provided by the family caregivers. Programs such as Medicare, Medicaid and Social Security Disability Insurance do not cover all of the needs and financial obligations for patients and their families. Even after these public programs, families continue to remain financially responsible for the care of their family member. Therefore, policy focused on evaluating AD on the basis of diagnosis rather than social policy eligibility criteria, such as age, may be warranted to provide optimal benefits for patients and family caregivers.
| Identifer | oai:union.ndltd.org:PITT/oai:PITTETD:etd-04132007-090144 |
| Date | 27 June 2007 |
| Creators | DiVirgilio-Thomas, Dana |
| Contributors | Mary E. Happ, PhD, RN, Howard B. Degenholtz, PhD, Steven M. Albert, PhD, MSPH, MA |
| Publisher | University of Pittsburgh |
| Source Sets | University of Pittsburgh |
| Language | English |
| Detected Language | English |
| Type | text |
| Format | application/pdf |
| Source | http://etd.library.pitt.edu/ETD/available/etd-04132007-090144/ |
| Rights | unrestricted, I hereby certify that, if appropriate, I have obtained and attached hereto a written permission statement from the owner(s) of each third party copyrighted matter to be included in my thesis, dissertation, or project report, allowing distribution as specified below. I certify that the version I submitted is the same as that approved by my advisory committee. I hereby grant to University of Pittsburgh or its agents the non-exclusive license to archive and make accessible, under the conditions specified below, my thesis, dissertation, or project report in whole or in part in all forms of media, now or hereafter known. I retain all other ownership rights to the copyright of the thesis, dissertation or project report. I also retain the right to use in future works (such as articles or books) all or part of this thesis, dissertation, or project report. |
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