Yes / Objectives: Inconsistency in outcome measurement in dementia care trials impedes the comparisons of effectiveness between
trials. The key aim of this study is to establish an agreed standardised core outcome set (COS) for use when evaluating
non-pharmacological health and social care interventions for people with dementia living at home.
Method: We used a mixed-methods research design, including substantive qualitative research with five key stakeholders
groups. We consulted with people living with dementia for many aspects of this research. We applied a modified two-round
54 item Delphi approach to attain consensus on core outcomes. The COS was finalised in a face-to-face consensus meeting
in 2018.
Results: Of the 288 who completed round 1 (21 people living with dementia, 58 care partners, 137 relevant health and
social care professionals, 60 researchers, 12 policy makers), 246 completed round 2 (85% response rate). Twenty participants
attended the consensus meeting. We reached consensus for the inclusion of 13 outcome items.
Conclusion: We identified 13 outcome items which are considered core; many relate to social health. Providing there are
adequate measures, measuring these core outcome items will enhance comparisons for effectiveness making trial evidence more
useful. The items will provide commissioners and service planners with information on what types of interventions are most
likely to be valued highly by people living with dementia. / This study was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR). ESRC is part of UK Research and Innovation.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/18579 |
| Date | 29 July 2021 |
| Creators | Reilly, Siobhan T., Harding, A.J.E., Morbey, H., Ahmed, F., Williamson, P.R., Swarbrick, C., Leroi, I., Davies, L., Reeves, D., Holland, F., Hann, M., Keady, J. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article, Published version |
| Rights | © The Author(s) 2020. Published by Oxford University Press on behalf of the British Geriatrics Society. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited. |
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