Yes / A study to determine the feasibility of conducting a future population-based trial into a selfmanagement
intervention for community-living adults with early stage dementia included evaluation of
intervention content and modes of delivery, staffing requirements, recruitment methods and the utility and usability
of patient reported outcomes.
Methods: Participants identified through memory clinics in one city took part in an intervention called ‘Journeying
through Dementia’. The 12-week programme incorporating four individual sessions with one of the facilitators
encourages participants to engage in discussion and activities related to health and well-being positioning them as
the expert enabling long-term behavioural change. Participants (n = 10) and their nominated carers (n = 7) were all
asked to complete selected outcomes at baseline, 8 weeks (participants only) and post intervention and invited to
comment on their usability. All participants and carers were qualitatively interviewed before intervention delivery
about their expectations and participants; nominated carers and facilitators were all interviewed after cessation
about their experiences.
Results: The manualised intervention and modes of delivery proved acceptable to participants and carers. Reported
benefits included increased confidence and self-efficacy, engagement in new or lapsed activities and reengagement
in fun and friendships. People with dementia and carers were able to self-complete all outcome
measures, but time required to complete the measures is a key factor. Strategies for recruitment need to include
direct contact within 24–48 h post invitation to the study. Analysis of data on the primary outcome did not reveal
any trends. Facilitators found the training and support to be appropriate and helpful.
Conclusions: The tailored intervention reportedly met the needs of all participants. The study confirmed the need
for careful identification and application of patient-reported outcome measures. Outcomes to measure some
dimensions of reported benefit are not available. / The study was supported and funded by the Medical Research Council (MRC) Lifelong Health and Wellbeing (LLHW) programme; grant number G1001406, ISRCTN is 67209155.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/11026 |
| Date | 24 November 2015 |
| Creators | Sprange, K., Mountain, Gail, Shortland, K., Craig, C., Blackburn, D., Bowie, P., Harkness, K., Spencer, M. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article, Published version |
| Rights | © 2015 The Authors. This is an Open Access article distributed under the Creative Commons CC-BY license (https://creativecommons.org/licenses/by/4.0/), CC-BY |
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