No / Through qualitative in-depth interviews, we collected the views of
persons with Parkinson¿s disease (pwPD) and their close relatives in care homes to
establish their collective views of the effectiveness of care. We also reviewed the
corresponding care plans. Drawing on these two forms of data collection, we
compared similarities and differences between the qualitative interview data and the
care plan analysis to elaborate on the experience of residential care for pwPD. Close
relatives of care home residents can be a fruitful source of information for care home
staff, throughout the care planning process, especially in relation to the specific needs
of a pwPD. Although health and social policy advocate active collaboration between people with long-term conditions, their families, and their formal carers, there is
limited evidence of such collaboration in the data examined here. There is an
apparent shortfall in the knowledge and understanding of PD among care home staff.
There are important pragmatic (e.g. drug administration) as well as psycho-social
reasons for flexibility in routine care provision to meet the dynamic needs of pwPD.
The findings here support the need for further, larger scale research into the quality
of care for pwPD who are care home residents.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/4516 |
| Date | 01 April 2009 |
| Creators | Armitage, Gerry R., Adams, Jenny E., Newell, Robert J., Coates, David, Ziegler, Lucy, Hodgson, Ian J. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article |
Page generated in 0.0017 seconds