Dialysis treatment is demanding for adult patients let alone for children. The families can have financial problems and the relations within the family are disrupted. The school attendance of children on dialysis is affected by the treatment. Because of the insertion of a peritoneal catheter and the necessity to wear a mouthpiece among other children the children can feel "different". The aim of the thesis is to determine the needs of child patients on dialysis and the views of their families regarding the illnesses and the dialysis treatment. A further goal was to examine the life of the dialysed children and their families with regards to social elements and how the dialysed children perceive the treatment. We have set down five questions. How do the dialysed children and their families adapt? How does dialysis of the child patients affect their families? How do the dialysed children perceive their illness? What information do the children have about their medical condition? What is the difference between the children with inherent and acquired illness? A qualitative research was used to assess the data acquired by semi-structured interviews. Two sets of questions for the dialysed children and their parents were created for the interviews. The interviews helped to find out how the children spend their time and how they perceive their regular visits to the dialysis centres and the process of dialysis itself. The questions for parents focused on issues regarding family, personal and social situations and the life of their dialysed children. The first research group was composed of 8 children of different ages and the criterion for including them into the group was their treatment by elimination methods. The second research group was formed by 8 parents who regularly accompany their children to the dialysis centres. The research group thus represented 53 % of the possible respondents in the Czech Republic. The chapter on data categorization defines several issues that were most problematic for the respondents. The information acquired from children and parents show that the children in the chronic dialysis program and their parents are subject to involuntary changes in their lives. The changes affect the social inclusion of the children, relations within the family; the school attendance of the children is limited due to their visits of the dialysis centres or hospitalisations. The children are separated from their families, peers and the financial situation is of the family is also affected as the mother often has to stay at home and take care of the child. There are, of course, efforts to improve not only the results of the treatment but also the subjective perception of the patient. The results of the research indicate that the children treated by peritoneal dialysis have thanks to better time options more opportunities to join a collective e.g. in school. An interesting fact is that the children often handle the dialysis process better than their parents because they support their children who rely on them. This thesis should help not only the medical staff in everyday contact with dialysed patients but can also serve as a basis for improvement in other areas of care of chronically ill children. Chapter Recommendations for practice lists sets of activities that with the help of the whole team of doctors and non-doctors contribute to the treatment. The care must always revolve around the question "What can I do to help"? The most important areas are psychical suffering of the children and their families, the dialysed patients? discomfort, dietary restrictions and problematical areas of care.
| Identifer | oai:union.ndltd.org:nusl.cz/oai:invenio.nusl.cz:154668 |
| Date | January 2013 |
| Creators | BUDÍNOVÁ, Eva |
| Source Sets | Czech ETDs |
| Language | Czech |
| Detected Language | English |
| Type | info:eu-repo/semantics/masterThesis |
| Rights | info:eu-repo/semantics/restrictedAccess |
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