The lack of a relevant and responsive health-related quality of life (HRQoL) measure for lung transplantation has prevented the estimation of HRQoL changes during the prolonged wait for donors and post-operatively in the long-term. The objective of this thesis study was to streamline 58 existing patient-generated items into a short and reliable lung transplant module for use with the Medical Outcomes Study Short Form 36-Item Health Status Survey (SF-36) which would improve the measurement of change. Seventy-six patients responded to both SF-36 and 58-item inventory at intervals pre- and post-operatively. Data were used to reduce the inventory. Concurrent clinical data were obtained to enable validation. Reliability was assessed through a simple replication study involving 39 patients. Content was verified with a group of lung transplant specialists who had no prior contact with the study. Two resulting scales were proposed: a 10-item "Functions and Feelings" and an 8-item "Symptom" scale. Preliminary psychometric properties, including responsiveness to change, were excellent for the "Functions and Feelings," however, the "Symptom" items could not be aggregated. With further testing of the proposed module, it can become a clinically-useful HRQoL measure for lung transplantation.
| Identifer | oai:union.ndltd.org:LACETR/oai:collectionscanada.gc.ca:QMM.20268 |
| Date | January 1997 |
| Creators | Lu, Ann Jeannette. |
| Contributors | Dauphinee, Sharon Wood (advisor) |
| Publisher | McGill University |
| Source Sets | Library and Archives Canada ETDs Repository / Centre d'archives des thèses électroniques de Bibliothèque et Archives Canada |
| Language | English |
| Detected Language | English |
| Type | Electronic Thesis or Dissertation |
| Format | application/pdf |
| Coverage | Master of Science (School of Physical and Occupational Therapy.) |
| Rights | All items in eScholarship@McGill are protected by copyright with all rights reserved unless otherwise indicated. |
| Relation | alephsysno: 001604713, proquestno: MQ44208, Theses scanned by UMI/ProQuest. |
Page generated in 0.1832 seconds