Yes / People with dementia and their relatives find decisions about the person with dementia living in a care home difficult.
Methods: We interviewed 20 people with dementia or family carers around the time of this decision in order to design a decision-aid.
Results: Decision-makers balanced the competing priorities of remaining somewhere familiar, family’s wish they
remain at home, reduction of risk and effects on carer’s and person with dementia’s physical health. The person with dementia frequently resented their lack of autonomy as decisions about care home moves were made after insight and judgment were impaired. Family consultation usually helped carers but sometimes exacerbated tensions. Direct professional support was appreciated where it was available. There is a need for healthcare
professionals to facilitate these conversations around decision-making and to include more than signposting to
other organisations.
Conclusions: There is a need for a healthcare professional facilitated decision-aid. This should detail what might change for the person with dementia and their carer, possible resources and alternatives and assist in facilitating discussion with the wider family; further research will develop and test a tool to facilitate decision making about
place of care needs.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/10381 |
| Date | 13 March 2016 |
| Creators | Lord, Kathryn, Livingston, G., Robertson, S., Cooper, C. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article, Published version |
| Rights | © 2016The Authors. This article is distributed under the terms of the Creative Commons CC-BY License (http://creativecommons.org/licenses/by/4.0/), CC-BY |
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