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A pilot study on the health related quality of life of symptomatic pediatric patients with celiac disease

Background:
Celiac disease affects 1% of the population and the only treatment for CD is life-long adherence to a gluten-free diet, this affects every aspect of life including emotional, social, physical and psychological which in turn has an effect on patient quality of life.
Objective:
This pilot study is an effort in understanding the quality of life in the pediatric CD population and is a guide for a future, large sample research study.
Design & Methods:
Thirteen children diagnosed with CD by intestinal biopsy (mean 6 months) and their parent pair were asked to complete a generic QoL questionnaire (EQ-5D-CY) and a disease-specific questionnaire (TACQoL-CD).
Results:
The overall QoL was higher on the generic questionnaire, while the effects of CD and the GFD resulted in a lower quality of life as determined by the TACQoL-CD. Future research with a large sample at multiple timepoints is imperative.

Identiferoai:union.ndltd.org:LACETR/oai:collectionscanada.gc.ca:AEU.10048/1903
Date06 1900
CreatorsSamuel, Tarah M
ContributorsNorris, Colleen (Nursing), Lasiuk, Gerri (Nursing), Norris, Colleen (Nursing), Rempel, Gwen (Nursing), Turner, Justine (Medicine)
Source SetsLibrary and Archives Canada ETDs Repository / Centre d'archives des thèses électroniques de Bibliothèque et Archives Canada
Languageen_US
Detected LanguageEnglish
TypeThesis
Format614952 bytes, application/pdf

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