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My child has a disability : an IPA study and meta-synthesis exploring the experience of parents

Raising a child is not easy for any parent, however for those whose child also has a disability, the process is even more complex. The papers presented here explore the experiences of parents who have a child with a disability. From understanding parents’ experiences in more details, it is hoped that support can be tailored to serve the needs of parents better and improve the outcomes for children. Chapter one details a meta-synthesis, reviewing qualitative articles which address the experience of parents’ with a child with congenital heart disease. Twelve overarching themes are presented, capturing parents’ responses, the parent-child attachment and parental resilience. Recommendations are made for how to support parents and areas of development for healthcare professionals are identified. Chapter two details a qualitative study examining the experiences of eight fathers of children with autism. Interpretative Phenomenological Analysis is used to provide an in-depth account of their lived experiences and three superordinate themes are presented. The results identify resilience and challenges fathers experience, both within themselves and within their relationships. Clinical implications and future directions are discussed. Chapter three provides a reflective account of the research process. It addresses the issue of reflexivity, considering how the researcher’s position may have influenced the research and how the process of undertaking the research influenced the researcher.

Identiferoai:union.ndltd.org:bl.uk/oai:ethos.bl.uk:714884
Date January 2016
CreatorsHampson, Emma
PublisherUniversity of Warwick
Source SetsEthos UK
Detected LanguageEnglish
TypeElectronic Thesis or Dissertation
Sourcehttp://wrap.warwick.ac.uk/88057/

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