A North American man has approximately a one in six chance of being diagnosed with prostate cancer in his lifetime. In most cases, there is no clearly optimal treatment, so he may be invited to participate in a treatment decision between several medically reasonable options, each with potential short- and long-term side effects. Information needs are high at diagnosis and can continue to be elevated for years or decades. Many men and their families seek information online, where, due partly to the array of websites available and high variation in information preferences, it can be difficult to find personally relevant and useful websites.
This research sought to address this issue by developing methods to categorize prostate cancer websites and exploring quantitative and qualitative relationships between websites, information-seekers, and individuals’ assessments of websites. The research involved a series of three studies. In the first study, 29 men with prostate cancer participated in a needs assessment involving questionnaires, an interview, and interaction with a prototype website. In the second study, a detailed classification system was developed and applied to a set of forty websites selected to be representative of the variety of prostate cancer websites available. The third (online) study collected clinical, cognitive, and psychosocial details from 65 participants along with their ratings of websites from study two. A number of hypotheses were tested. One finding was that, compared to men with greater trust, men with lower trust in their physician tended to judge commercial websites as less relevant and useful, and found websites with descriptions of personal experiences more relevant and useful. Analyses also addressed a number of exploratory questions, including whether website and individual attributes might predict preferences for websites. Using discriminant analysis on 80% of the data, two functions were identified that predicted ratings significantly better than chance. These relationships were then validated with 20% of the data held back for testing.
The results are discussed in terms of their implications for information tailoring and recommender systems for prostate cancer patients searching for information online. Limitations of the current research and recommendations for future research are also presented.
| Identifer | oai:union.ndltd.org:LACETR/oai:collectionscanada.gc.ca:OTU.1807/32958 |
| Date | 05 September 2012 |
| Creators | Witteman, Holly |
| Contributors | Chignell, Mark |
| Source Sets | Library and Archives Canada ETDs Repository / Centre d'archives des thèses électroniques de Bibliothèque et Archives Canada |
| Language | en_ca |
| Detected Language | English |
| Type | Thesis |
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