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A Dementia Care Mapping (DCM) data warehouse as a resource for improving the quality of dementia care. Exploring requirements for secondary use of DCM data using a user-driven approach and discussing their implications for a data warehouse

The secondary use of Dementia Care Mapping (DCM) data, if that data were
held in a data warehouse, could contribute to global efforts in monitoring and
improving dementia care quality. This qualitative study identifies
requirements for the secondary use of DCM data within a data warehouse
using a user-driven approach. The thesis critically analyses various technical
methodologies and then argues the use and further demonstrates the
applicability of a modified grounded theory as a user-driven methodology for
a data warehouse. Interviews were conducted with 29 DCM researchers,
trainers and practitioners in three phases. 19 interviews were face to face
with the others on Skype and telephone with an average length of individual
interview 45-60 minutes. The interview data was systematically analysed
using open, axial and selective coding techniques and constant comparison
methods.
The study data highlighted benchmarking, mappers’ support and research as
three perceived potential secondary uses of DCM data within a data
warehouse. DCM researchers identified concerns regarding the quality and
security of DCM data for secondary uses, which led to identifying the
requirements for additional provenance, ethical and contextual data to be
included in a warehouse alongside DCM data to meet requirements for
secondary uses of this data for research. The study data was also used to
extrapolate three main factors such as an individual mapper, the organization
and an electronic data management that can influence the quality and
availability of DCM data for secondary uses. The study makes further
recommendations for designing a future DCM data warehouse.

Identiferoai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/14625
Date January 2016
CreatorsKhalid, Shehla
ContributorsNeagu, Daniel, Small, Neil A.
PublisherUniversity of Bradford, Faculty of Health Studies
Source SetsBradford Scholars
LanguageEnglish
Detected LanguageEnglish
TypeThesis, doctoral, PhD
Rights<a rel="license" href="http://creativecommons.org/licenses/by-nc-nd/3.0/"><img alt="Creative Commons License" style="border-width:0" src="http://i.creativecommons.org/l/by-nc-nd/3.0/88x31.png" /></a><br />The University of Bradford theses are licenced under a <a rel="license" href="http://creativecommons.org/licenses/by-nc-nd/3.0/">Creative Commons Licence</a>.

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