Yes / Research suggests a decline in the mental health and wellbeing of people
with dementia (PwD) during the COVID-19 pandemic; however few studies have
compared data collected pre-pandemic and during the pandemic. Moreover, none have
compared this change with what would be expected due to dementia progression.
We explored whether PwD experienced changes in mental health and wellbeing by
comparing pre-pandemic and pandemic data, and drew comparisons with another
group of PwD questioned on two occasions prior to the pandemic.
Methods: Community-dwelling PwD enrolled in the IDEAL programme were split into
two groups matched for age group, sex, dementia diagnosis, and time since diagnosis.
Although each group was assessed twice, one was assessed prior to and during the
pandemic (pandemic group; n = 115) whereas the other was assessed prior to the
pandemic (pre-pandemic group; n = 230). PwD completed measures of mood, sense
of self, wellbeing, optimism, quality of life, and life satisfaction.
Results: Compared to the pre-pandemic group, the pandemic group were less likely
to report mood problems, or be pessimistic, but more likely to become dissatisfied with
their lives. There were no changes in continuity in sense of self, wellbeing, and quality
of life.
Discussion: Results suggest the pandemic had little effect on the mental health and
wellbeing of PwD, with any changes observed likely to be consistent with expected
rates of decline due to dementia. Although personal accounts attest to the challenges
experienced, PwD appear to have been resilient to the impact of lockdown and social
restrictions during the pandemic. / Identifying and mitigating the individual and dyadic impact of COVID-19 and life under physical distancing on people with dementia and carers (INCLUDE) was funded by the Economic and Social Research Council (ESRC) through grant ES/V004964/1. Investigators: LC, Victor, C., FM, CQ, Hillman, A., AB, LA, RA, AM, RC, and CP. ESRC is part of UK Research and Innovation (UKRI). Improving the experience of Dementia and Enhancing Active Life: living well with dementia. The IDEAL study was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR) through grant ES/L001853/2. Investigators: LC, I. R. Jones, C. Victor, J. V. Hindle, R. W. Jones, M. Knapp, M. Kopelman, RL, A. Martyr, FM, R. G. Morris, S. M. Nelis, J. A. Pickett, CQ, J. Rusted, and J. Thom. IDEAL data were deposited with the UK data archive in April 2020 and will be available to access from April 2023. Details of how the data can be accessed after that date can be found at: http://reshare.ukdataservice.ac.uk/854293/. Improving the experience of Dementia and Enhancing Active Life: a longitudinal perspective on living well with dementia. The IDEAL-2 study was funded by Alzheimer’s Society, grant number 348, AS-PR2-16-001. Investigators: LC, I. R. Jones, C. Victor, C. Ballard, A. Hillman, J. V. Hindle, J. Hughes, R. W. Jones, M. Knapp, RL, AM, FM, R. G. Morris, S. M. Nelis, CQ, and J. Rusted.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/18775 |
| Date | 09 March 2022 |
| Creators | Sabatini, S., Bennett, H.Q., Martyr, A., Collins, R., Gamble, L.D., Matthews, F.E., Pentecost, C., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Lither, R., Quinn, Catherine, Clare, L. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article, Published version |
| Rights | Copyright © 2022 Sabatini, Bennett, Martyr, Collins, Gamble, Matthews, Pentecost, Dawson, Hunt, Parker, Allan, Burns, Litherland, Quinn and Clare. This is an openaccess article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms. |
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