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Caregivers' experiences of service provision for their children diagnosed with Autism Spectrum Disorder

MSc Occupational Therapy, Faculty of Health Sciences, University of the Witwatersrand, 2009 / An increase in the prevalence of ASD has led to increased demands on service provision.
This questionnaire-based, descriptive study aimed to explore service use and experiences of
health and education service delivery by caregivers and their children with ASD in
Johannesburg. The sample size was 39. Comparisons were drawn between the experiences of
the participants accessing the private and public service sectors.
Children were diagnosed at an average age of 4 years; 2 years after the first symptoms were
noted by their caregivers. Families accessed a mean of 3 institutions and 6 professionals in
seeking diagnosis and treatment. No specific referral patterns could be established.
Challenges to service access identified by caregivers included: logistical problems, lack of
professional knowledge and experience, poor parental coping and insight, and lack of
community support. Solutions identified by the caregivers included: marketing, training,
better referral procedures, and establishment of educational facilities.

Identiferoai:union.ndltd.org:netd.ac.za/oai:union.ndltd.org:wits/oai:wiredspace.wits.ac.za:10539/8230
Date28 June 2010
CreatorsHooper, Jennifer Jane
Source SetsSouth African National ETD Portal
LanguageEnglish
Detected LanguageEnglish
TypeThesis
Formatapplication/pdf

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