Yes / Introduction
We examined 3-month service use and costs of care for people with mild-to-moderate dementia in Great Britain.
Methods
We analyzed Improving the experience of Dementia and Enhancing Active Life cohort study baseline data on paid care, out-of-pocket expenditure, and unpaid care from participants with dementia (N = 1547) and their carers (N = 1283). In regression analyses, we estimated per-group mean costs of diagnostic and sociodemographic subgroups.
Results
Use of services apart from primary and outpatient hospital care was low. Unpaid care accounted for three-quarters of total costs (mean, £4008 [standard error, £130] per participant). Most participants (87%) received unpaid care equating to 36 hours weekly. Estimated costs for people with Parkinson's dementia were £8609, £4359 for participants with mixed dementia, and £3484 for those with Alzheimer's disease. Total costs were lower for participants with dementia living alone than living with others (£2484 vs. £4360); costs were lower for female than for male participants (£3607 vs. £4272).
Discussion
Costs varied by dementia subtype, carer status, and living arrangement. Policy makers should recognize the high costs of unpaid care for people with dementia, who do not always get the support that they need or would like to receive. / The first phase of the IDEAL program was funded jointly by the Economic and Social Research Council (ESRC, United Kingdom) and the National Institute for Health Research (NIHR, United Kingdom) through grant ES/L001853/2. “Improving the experience of dementia and enhancing active life: living well with dementia”.
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/17502 |
| Date | 08 November 2019 |
| Creators | Henderson, C., Knapp, M., Nelis, S.M., Quinn, Catherine, Martyr, A., Wu, Y.T., Jones, I.R., Victor, C.R., Pickett, J.A., Hindle, J.V., Jones, R.W., Kopelman, M.D., Matthews, F.E., Morris, R.G., Rusted, J.M., Thom, J.M., Clare, L. |
| Source Sets | Bradford Scholars |
| Language | English |
| Detected Language | English |
| Type | Article, Published version |
| Rights | © 2019 The Author. Published by Elsevier Inc. on behalf of the Alzheimer's Association. This is an open access article under the CC BY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/ 4.0/). |
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