Quality of life and chronic diseases are globally debated topics with different definitions, where even the professional community struggles to define them. This paper attempts to provide definitions of these concepts and to relate them to the disease of CF. This very rare disease severely limits the functioning of the patient and the whole family. The empirical part targets the population of outpatients and inpatients with CF. Using a generic and a specific questionnaire, it tries to map the quality of life of the individuals concerned and to compare some psychometric qualities of both questionnaires. Data collection was performed on a sample of 34 individuals and the results show a satisfactory quality of life and better qualities of the specific CFQ-R 14+ questionnaire. In conclusion, the interaction between professionals, patients and their loved ones is very important to maintain the best quality of life in adolescents with CF.
| Identifer | oai:union.ndltd.org:nusl.cz/oai:invenio.nusl.cz:451314 |
| Date | January 2021 |
| Creators | Slezák, Tomáš |
| Contributors | Hrachovinová, Tamara, Dragomirecká, Eva |
| Source Sets | Czech ETDs |
| Language | Czech |
| Detected Language | English |
| Type | info:eu-repo/semantics/masterThesis |
| Rights | info:eu-repo/semantics/restrictedAccess |
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