Congenital heart disease (CHD) is the most common birth defect and often resultsin neurodevelopmental impairments and psychological problems which impede
educational and occupational attainment and decrease overall quality of life into
adulthood. While morbidity and mortality outcomes have improved over the last several
decades, non-Hispanic black and Hispanic children continue to experience a
disproportionate burden of CHD. An urban bioethics approach to disparities in cardiac
neurodevelopmental outcomes necessitates an examination of the context, setting, and
structures in which CHD care is delivered. This thesis proposes a model through which
access to and quality of cardiac care impact disparities in neurodevelopmental outcomes.
The thesis describes an initial evaluation of the proposed model conducted through
retrospective record review. Though research funding and hospital resources have
historically flowed toward optimizing surgical and other clinical care techniques, results
indicate that factors such as poverty and other social determinants of health have a greater
impact on many CHD outcomes. An urban bioethics framework asks us to additionally
consider the ways in which cardiac care teams act as barriers to high quality care.
Findings are discussed in terms of next steps and a proposed qualitative study to further
evaluate results. / Urban Bioethics
| Identifer | oai:union.ndltd.org:TEMPLE/oai:scholarshare.temple.edu:20.500.12613/7989 |
| Date | January 2022 |
| Creators | Gramszlo, Colette, 0000-0003-2644-936X |
| Contributors | Jones, Nora L. |
| Publisher | Temple University. Libraries |
| Source Sets | Temple University |
| Language | English |
| Detected Language | English |
| Type | Thesis/Dissertation, Text |
| Format | 50 pages |
| Rights | IN COPYRIGHT- This Rights Statement can be used for an Item that is in copyright. Using this statement implies that the organization making this Item available has determined that the Item is in copyright and either is the rights-holder, has obtained permission from the rights-holder(s) to make their Work(s) available, or makes the Item available under an exception or limitation to copyright (including Fair Use) that entitles it to make the Item available., http://rightsstatements.org/vocab/InC/1.0/ |
| Relation | http://dx.doi.org/10.34944/dspace/7961, Theses and Dissertations |
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