No / Aim The aim of this review is to summarise the
literature relating to patients’ experiences with home
parenteral nutrition (HPN).
Method This literature review is based on searches of
CINAHL, PubMed, Web of Knowledge and Web of Science
for articles published between 1970 and 2013. Additional
studies were included from Department of Health
publications, NICE clinical guidance, UK patient support
group with interests in HPN or intestinal failure (IF).
Results Patients with severe IF have been successfully
treated with HPN since the 1970s. Early published studies
evaluated clinical outcomes such as catheter-related
infections, metabolic complications, thrombosis of the
catheterised vein and liver impairment. Since the 1980s
questionnaire studies were used to evaluate the quality of
life (QoL) of patients treated with HPN. These early studies
used QoL assessment tools which were not validated for
patients treated with HPN. Internationally, there were
published qualitative research studies which explored the
experiences of patients treated with HPN.
Conclusions The long-term outcome of patients treated
with HPN continues to attract research interest. The review
of the literature did not identify any published qualitative
studies on the experiences of patients treated with HPN in
the UK, suggesting a gap in the research. The UK
National Health Service advocates a patient-centred
approach for service design and delivery in primary and
secondary care. This literature review has highlighted
opportunities for qualitative research into the experiences
of patients living with HPN to achieve better
understanding and awareness of the rehabilitation of
these patients
| Identifer | oai:union.ndltd.org:BRADFORD/oai:bradscholars.brad.ac.uk:10454/10165 |
| Date | 21 August 2014 |
| Creators | Wong, C., Lucas, Beverley J., Wood, Diana |
| Source Sets | Bradford Scholars |
| Language | English, English |
| Detected Language | English |
| Type | Article, No full-text in the repository |
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