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Previous issue date: 2014 / Funda??o de Amparo ? Pesquisa do estado de Minas Gerais (FAPEMIG) / A doen?a falciforme ? uma das doen?as heredit?rias mais comuns no mundo e com alta preval?ncia no Brasil. Apesar de ser considerada um problema de sa?de p?blica no Brasil e possuir s?rias consequ?ncias para o indiv?duo acometido, para sua fam?lia e para a sociedade, durante muito tempo, pouco se investiu na melhoria da aten??o ? sa?de das pessoas que convivem com ela. A complexidade das quest?es hist?ricas, sociais e ?tnicas que envolvem a doen?a falciforme levou ? realiza??o desse trabalho de cunho qualitativo, com o objetivo principal de conhecer aspectos da realidade de vida e as condi??es de sa?de das pessoas com doen?a falciforme no munic?pio de Diamantina, no Vale do Jequitinhonha/MG. Foi realizada uma revis?o de literatura que buscou entender a hist?ria da ocupa??o do territ?rio do munic?pio de Diamantina e sua rela??o com a ocorr?ncia da doen?a falciforme. Foram realizadas entrevistas com pessoas com doen?a falciforme residentes no munic?pio e as mensagens foram analisadas segundo a an?lise de conte?do proposta por Bardin (2011). Foram identificadas cinco categorias de an?lise com os seguintes temas: a percep??o da pessoa com doen?a falciforme sobre a pr?pria sa?de; religiosidade, espiritualidade; o impacto da doen?a falciforme na vida cotidiana das pessoas entrevistadas; preconceito; e, aten??o prim?ria ? sa?de. Foi poss?vel a compreens?o de que a presen?a da doen?a tem importante impacto na vida social e familiar das pessoas, que geralmente temem uma vida de limita??es decorrente das poss?veis complica??es da doen?a. Um intenso debate entre gestores, profissionais de sa?de, comunidade acad?mica e usu?rios para a proposi??o de estrat?gias de atendimento integral da pessoa com doen?a falciforme se faz necess?rio, considerando e respeitando v?rios aspectos que envolvem sua hist?ria de vida, sua cultura e suas cren?as, de forma a tentar reparar um processo hist?rico de iniquidades cometidas contra as pessoas de etnia negra. / Disserta??o (Mestrado Profissional) ? Programa de P?s-Gradua??o em Sa?de, Sociedade e Ambiente, Universidade Federal dos Vales do Jequitinhonha e Mucuri, 2014 / ABSTRACT
Sickle cell disease is one of the most common hereditary diseases worldwide and has a high prevalence in Brazil. Although currently considered a public health problem in Brazil, with serious consequences for the individual affected, their family and society, for a long time, very little was invested in improving health care in this area. The complexity of historical, social and ethnic questions that affect sickle cell disease led to the development of this quantitative study. The aim of the present study was to determine aspects of the reality of life and health conditions of people affected by sickle cell disease in the district of Diamantina in the Jequitinhonha Valley/MG. A literature review was conducted in order to understand the history of the occupation of the territory of the Diamantina district and its association with the occurrence of sickle cell disease. Interviews were conducted with residents of the district who suffered from sickle cell disease. The responses were analyzed according to the analysis of content proposed by Bardin (2011). Five categories of analysis were identified, with the following themes: perceptions of people with sickle cell disease on their own health; religion and spirituality; the effects of sickle cell disease on the daily life of those interviewed; prejudice and primary health care. It was clear that the disease has had a significant impact on the social and familiar life of these people, who usually fear a life of limitations, as a result of possible complications associated with the disease. There is a need for urgent debates between managers, health professionals, the academic community and users in order to propose complete health care strategies for those affected by this disease, bearing in mind and respecting the different aspects involved in their medical history, culture and religious beliefs. This type of strategy can facilitate attempts to repair the historical process of iniquities committed against individuals of black ethnicity.
| Identifer | oai:union.ndltd.org:IBICT/oai:acervo.ufvjm.edu.br/jspui:1/823 |
| Date | 17 December 2014 |
| Creators | Rocha, Euza Mara |
| Contributors | Carvalho, Marivaldo Aparecido de, Universidade Federal dos Vales do Jequitinhonha e Mucuri (UFVJM), Can?as, Silvia Swain |
| Publisher | UFVJM |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Source | reponame:Repositório Institucional da UFVJM, instname:Universidade Federal dos Vales do Jequitinhonha e Mucuri, instacron:UFVJM |
| Rights | A concess?o da licen?a deste item refere-se ao ? termo de autoriza??o impresso assinado pelo autor, assim como na licen?a Creative Commons, com as seguintes condi??es: Na qualidade de titular dos direitos de autor da publica??o, autorizo a Universidade Federal dos Vales do Jequitinhonha e Mucuri e o IBICT a disponibilizar por meio de seus reposit?rios, sem ressarcimento dos direitos autorais, de acordo com a Lei n? 9610/98, o texto integral da obra disponibilizada, conforme permiss?es assinaladas, para fins de leitura, impress?o e/ou download, a t?tulo de divulga??o da produ??o cient?fica brasileira, e preserva??o, a partir desta data., info:eu-repo/semantics/openAccess |
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