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Perceived Barriers to Autism Spectrum Disorder Services

Autism Spectrum Disorder (ASD) is a lifelong neurodevelopmental disorder with hallmark symptoms that can be severely impairing to both the individual and the overall family dynamic. The path to diagnostic and therapy services is often lengthy and complex. Despite various state and federal efforts to improve service access, disparities remain evident across ethnic, socioeconomic, and geographic lines with caregivers reporting financial, cultural, geographic, and practical (e.g., transportation, scheduling) barriers. For those able to access treatment, several interventions have been proven efficacious in addressing ASD symptoms, problem behaviors, and adaptive skills deficits. Other often-used interventions include those without established merit for ASD. This study found a tendency for income, insurance type, and ethnicity to affect service access. Out of pocket costs remain a significant barrier to evidence-based services. Scheduling difficulties and long wait lists impact diagnostic services, as do perceptions of misguided reassurances from professionals (e.g., healthcare worker stating hell grow out of it). Disparities in service use indicate a need to develop policy, practice, and family-level strategies to address barriers to ASD services.

Identiferoai:union.ndltd.org:LSU/oai:etd.lsu.edu:etd-08142016-173027
Date29 August 2016
CreatorsWilliams, Lindsey Willis
ContributorsMatson, Johnny L., Elliott, Emily, Davis, Thompson, Casbergue, Renee
PublisherLSU
Source SetsLouisiana State University
LanguageEnglish
Detected LanguageEnglish
Typetext
Formatapplication/pdf
Sourcehttp://etd.lsu.edu/docs/available/etd-08142016-173027/
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