The thesis focused on the issues of nursing care of children with serious combined handicap. Thanks to scientific progress in the field of medicine and nursing care lives of children with such a handicap are extending. This is why correct understanding of the issue, its link to nursing care, but also finding the right approach to these children and their parents are so important. The theoretical part deals with nursing care in paediatrics, needs of handicapped children and their families, specifics of communication and complex care of children with combined handicap. Three goals were set within the research. The first goal was to find out the experience and opinions of nurses related to specifics of nursing care of children with serious combined handicap. The second goal was to map services provided to parents of children with serious combined handicap in Prague and in the Central Bohemia Region. The third goal was to map the problems of cooperation between nurses and parents taking care about a child with serious combined handicap. Qualitative research was used in the empiric part of the thesis. We used a questioning method in the form of semi standardized interview. The first test sample consisted of 9 nurses working in facilities providing care to children with serious combined handicap in Prague and Central Bohemia. There were nurses from a child centre, a social service centre, a paediatric neurology ambulatory surgery and a paediatric neurology ward. The second research sample consisted of 9 parents caring for children under 18 years of age with the third or fourth dependence degree. An open coding technique ? the paper & pencil method ? was used for processing the interviews. Document analysis was applied to mapping the services in Prague and Central Bohemia. Three research questions were set: 1 - What experience do nurses providing care to children with serious combined handicap have? 2 - What services are available to parents with children with serious combined handicap in Prague and Central Bohemia? 3 - How does cooperation between a nurse and parents caring about a child with serious combined handicap work? The quantitative research results show clearly that nursing care of children with serious combined handicap has its specifics in the field of communisation, in the files of the needs of the children and their families and is affected by obstacles to the care and competence of nurses caring for these children. Answers of the nurses and the children differ in some cases. The interviews with the respondents showed that cooperation is based on mutual information, education in nursing procedures, mutual confidence and involvement of the family in the care for the handicapped child. Answers of the respondents were identical in the category of cooperation between nurses and parents. The second aim was to map the services provided to parents of children with serious combined handicap. We found 48 facilities upon document analysis, of which 9 were in Prague and 39 in the Central Bohemia region. A table and a map where the individual facilities are located were prepared upon content analysis and consequently a graph describing the form of the care provided there. The research results will be provided to nursing managements of the facilities that showed interest during the research and presented in specialized seminars. An informative brochure for parents of the children and nurses providing nursing care to children with serious combined handicap will be based on the information obtained during elaboration of the thesis.
| Identifer | oai:union.ndltd.org:nusl.cz/oai:invenio.nusl.cz:156330 |
| Date | January 2013 |
| Creators | MARŠÁLKOVÁ GREŠOVÁ, Jana |
| Source Sets | Czech ETDs |
| Language | Czech |
| Detected Language | English |
| Type | info:eu-repo/semantics/masterThesis |
| Rights | info:eu-repo/semantics/restrictedAccess |
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