The goal of this project is to re-evaluate patient awareness of Vanderbilts biobanking practices and whether patients are interested in having more information of the project. 61 exit-interviews were conducted with adult patients to answer the following questions:
(1) Are Vanderbilt patients aware of BioVU?
(2) Do patients actually know what BioVU is?
(3) Do patients realize their participation in BioVU?
(4) Do patients want more information?
(5) If the information is made available to them, will they access it?
The answers to these questions address the concerns that BioVU planners have expressed regarding the problem of confusion and help to illustrate the source of that confusion. It was hypothesized first that the confusion that BioVU planners cited as a reason to limit information is caused not by patients having too much information, but instead from having too little. In such case, is was hypothesized second that the confusion is a direct result of BioVU planners decisions on which information is or is not necessary for patients to have regarding their participation in the project. Using the results collected from the survey data, a constructive recommendation will be offered with the intention of improving Vanderbilts current biobanking practices.
| Identifer | oai:union.ndltd.org:VANDERBILT/oai:VANDERBILTETD:etd-07172014-232955 |
| Date | 28 July 2014 |
| Creators | Stephens, Ashley Lynne |
| Contributors | JuLeigh Petty, Elizabeth Heitman |
| Publisher | VANDERBILT |
| Source Sets | Vanderbilt University Theses |
| Language | English |
| Detected Language | English |
| Type | text |
| Format | application/pdf |
| Source | http://etd.library.vanderbilt.edu/available/etd-07172014-232955/ |
| Rights | restricted, I hereby certify that, if appropriate, I have obtained and attached hereto a written permission statement from the owner(s) of each third party copyrighted matter to be included in my thesis, dissertation, or project report, allowing distribution as specified below. I certify that the version I submitted is the same as that approved by my advisory committee. I hereby grant to Vanderbilt University or its agents the non-exclusive license to archive and make accessible, under the conditions specified below, my thesis, dissertation, or project report in whole or in part in all forms of media, now or hereafter known. I retain all other ownership rights to the copyright of the thesis, dissertation or project report. I also retain the right to use in future works (such as articles or books) all or part of this thesis, dissertation, or project report. |
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