The goal of my thesis I have chosen is to identify the way hospice care is perceived in the Telč region by family members of terminally ill patients. I based my thesis on available specialised literature, current legislation and internet sources dealing with home hospice care. In the first theoretical part, I deal with the definition of hospice care trying to explain the term of general and specialised care that have a common objective, namely dignified and tranquil dying. The second section deals with family in the context of palliative care that plays the key role in the patient care. If the family decides to care for the incurable patient at home, it is vital to support it. Moreover, in this section I define needs of family members summarised in three core topics. Including the care for the patient family that I included to the hospice care as not only the patient suffers from the illness but all his/her family does. That means that each family member needs palliative care. The end of this section deals with mourning of the survivors. The core point is not leaving them alone in their mourning, to have them accompanied by someone in their grief. The third chapter focuses on the role and position of the patient. It changes when a seriously ill human becomes dependent on third party´s help losing his/her capacity to fulfil his/her professional and family role. This enormously affects his/her physical and emotional condition. Moreover, I describe needs on terminally ill people that change when the patient approaches his/her death depending on his/her family and social situation. It changes also during his/her adaptation to adverse diagnoses and forecast and emergence of difficulties and complications. I describe four groups of needs: biological, psychological, social and spiritual. The fourth chapter characterises home hospice care that is described as specialised palliative care provided in the home environment amidst patient´s family and friends. I describe the history of Czech hospice care stating that before the WWII it was quite normal to care for terminally ill patients at home till the end. This trend emerges again in the 90s. I define objectives of the home hospice care and related activities. The fourth chapter includes the description of a multi-disciplinary team and funding of home hospice care. In the fifth chapter, I characterise the home care organisation that try to expand the range of services by including the home palliative care and also deal with the home care history, objectives, delimitation of the scope of activities, agency human resources management and home funding methods. In the sixth chapter, I represent the organisation Sdílení, o.p.s. Telč, services provided by it and basic duties according to the Act No.108/2006 Coll. as well as the mission and objectives of this organisation concentrating on help and support of seriously ill people and their family members/friends in such difficult life situation. The key objective of Sdílení is to preserve maximum possible self-sufficiency and dignity of seriously ill people and support of families that are able to find the courage and force to accompany a terminally ill family member to the end of his/her life. In the practical part of my thesis, I analyse data collected by means of qualitative research based on an inquiry in the form of semi-standardised and open-code processing. Who was included to the basic file were family members of terminally ill patients who were divided to two parts. The first group consists of 3 respondents who were entrusted to the care of the home hospice Sdílení. The second group are 3 respondents entrusted to the Home Care hospice. In the practical part, I describe the process of collection of data, record results of the interview process by the open-code method.
| Identifer | oai:union.ndltd.org:nusl.cz/oai:invenio.nusl.cz:254109 |
| Date | January 2016 |
| Creators | SVOBODOVÁ, Anna |
| Source Sets | Czech ETDs |
| Language | Czech |
| Detected Language | English |
| Type | info:eu-repo/semantics/masterThesis |
| Rights | info:eu-repo/semantics/restrictedAccess |
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