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Child-parent shifting and shared decision-making for asthma management

Introduction: Asthma is the most common long-term illness in children and for the majority of these children asthma continues into adult life. Therefore, developing good decision-making skills at a young age could optimise long-term health outcomes. There is a paucity of research that examines how a child and their parent may share decisions with respect to asthma management, particularly from the child’s perspective. Methods: A qualitative descriptive study that explored who, what, when and why asthma management decisions occur and are shared between children, 7 to 11 years of age, and their parents. Seventeen participants were recruited, 8 children, 8 parents and 1 grandparent. Data was captured undertaking in-depth individual interviews, using an arts based activity at the beginning of the child interviews to build rapport with the child. Framework approach underpinned data analysis. Findings: A dynamic model of the way children and parents transfer, shift and share asthma management decisions was uncovered. A conceptual framework was initially developed from the theoretical perspectives relating to child and parent shared decision-making and subsequently revised to integrate findings from the data analysis of the children’s and parent’s accounts. Conclusion: The thesis uncovers new knowledge that asthma management decisions between children and parents are non-linear, with responsibility transfers from child to parent under different conditions; whether the child or parent dominates, across contexts and individual child/parent preferences. Understanding the shifting/sharing process of decisions has the potential to assist health care professional practice to support child-parent decision-making in asthma, working with the family and as the child develops.

Identiferoai:union.ndltd.org:bl.uk/oai:ethos.bl.uk:668738
Date January 2014
CreatorsGarnett, V. E.
PublisherUniversity of Salford
Source SetsEthos UK
Detected LanguageEnglish
TypeElectronic Thesis or Dissertation
Sourcehttp://usir.salford.ac.uk/33248/

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