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Previous issue date: 2005-11-25 / The Syndrome of Berardinelli or Congenital Generalized Lipodystrophy, known popularly in Serid? as "The Magicians", it is considered in the world as a rare syndrome and of few studies. In Rio Grande do Norte, specifically, in the Area of
Serid?, an important incidence of bearers was verified. Face to present subject, this work describes in beginning the origin and evolution of the referred syndrome, standing out the genealogy of the families of the bearers in the temporary cutting that dates of the beginning of the century XIX to the current days and, later, it s has as purpose to justify the territorialities and the imaginary of the Syndrome and
Berardinelli starting from the lived experiences, of the conidian and of the social practices. That implicates to verify as those people they fragmented certain places, like them they noticed her and they were noticed by the society. The methodological approach for the accomplishment of that research is of qualitative order in a perspective phenomenological, ethnography and historical, once the analysis is not just ruled in the product, but it takes in consideration the life history.
The analysis presents the way as the depositions they make sense in the context of the study of the genealogy, of the perception imagery of the society before them and the image constituted by them, of himself and of the other. The data, still, demonstrate that the a lot of people's existence with to Syndrome in Serid? happens due to the consanguinities among the families / A S?ndrome de Berardinelli ou Lipodistrofia Generalizada Cong?nita, conhecida popularmente no Serid? como Os Magos , ? considerada no mundo como uma s?ndrome rara e de poucos estudos. No Rio Grande do Norte, especificamente, na Regi?o do Serid?, constatou-se uma incid?ncia relevante de portadores. Face ? presente quest?o, este trabalho descreve em princ?pio a origem e evolu??o da referida s?ndrome, destacando-se a genealogia das fam?lias dos portadores no recorte temporal que data do in?cio do s?culo XIX at? os dias atuais e, posteriormente, tem como prop?sito justificar as territorialidades e o imagin?rio da S?ndrome e Berardinelli a partir das experi?ncias vividas, do cotidiano e das pr?ticas sociais. Isso implica verificar como essas pessoas fragmentavam determinados lugares, como elas se percebiam e eram percebidas pela sociedade. A abordagem metodol?gica para a realiza??o dessa pesquisa ? de ordem qualitativa em uma perspectiva fenomenol?gica, etnogr?fica e hist?rica,
uma vez que a an?lise n?o se pauta apenas no produto, mas leva em considera??o a hist?ria de vida. A an?lise apresenta o modo como os depoimentos fazem sentido no contexto do estudo da genealogia, da percep??o imag?tica da sociedade diante deles e a imagem constitu?da por eles, de si mesmo e do outro. Os dados, ainda, demonstram que a exist?ncia de muitas pessoas com a S?ndrome no Serid? ocorre devido ? consang?inidade entre as fam?lias
| Identifer | oai:union.ndltd.org:IBICT/oai:repositorio.ufrn.br:123456789/18893 |
| Date | 25 November 2005 |
| Creators | Dantas, Virginia Kelly de Sousa C?ndido |
| Contributors | CPF:05743109400, http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4788272U1, Gomes, Rita de C?ssia da Concei??o, CPF:09811516472, http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4785750H3, Castro, Ina Elias de, CPF:09713409787, http://buscatextual.cnpq.br/buscatextual/visualizacv.do?id=K4783843H2, Felipe, Jos? Lacerda Alves |
| Publisher | Universidade Federal do Rio Grande do Norte, Programa de P?s-Gradua??o em Geografia, UFRN, BR, Din?mica e Reestrutura??o do Territ?rio |
| Source Sets | IBICT Brazilian ETDs |
| Language | Portuguese |
| Detected Language | English |
| Type | info:eu-repo/semantics/publishedVersion, info:eu-repo/semantics/masterThesis |
| Format | application/pdf |
| Source | reponame:Repositório Institucional da UFRN, instname:Universidade Federal do Rio Grande do Norte, instacron:UFRN |
| Rights | info:eu-repo/semantics/openAccess |
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