Background:
Celiac disease affects 1% of the population and the only treatment for CD is life-long adherence to a gluten-free diet, this affects every aspect of life including emotional, social, physical and psychological which in turn has an effect on patient quality of life.
Objective:
This pilot study is an effort in understanding the quality of life in the pediatric CD population and is a guide for a future, large sample research study.
Design & Methods:
Thirteen children diagnosed with CD by intestinal biopsy (mean 6 months) and their parent pair were asked to complete a generic QoL questionnaire (EQ-5D-CY) and a disease-specific questionnaire (TACQoL-CD).
Results:
The overall QoL was higher on the generic questionnaire, while the effects of CD and the GFD resulted in a lower quality of life as determined by the TACQoL-CD. Future research with a large sample at multiple timepoints is imperative.
| Identifer | oai:union.ndltd.org:LACETR/oai:collectionscanada.gc.ca:AEU.10048/1903 |
| Date | 06 1900 |
| Creators | Samuel, Tarah M |
| Contributors | Norris, Colleen (Nursing), Lasiuk, Gerri (Nursing), Norris, Colleen (Nursing), Rempel, Gwen (Nursing), Turner, Justine (Medicine) |
| Source Sets | Library and Archives Canada ETDs Repository / Centre d'archives des thèses électroniques de Bibliothèque et Archives Canada |
| Language | en_US |
| Detected Language | English |
| Type | Thesis |
| Format | 614952 bytes, application/pdf |
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