Literature assessing behavior among individuals with disabilities largely focuses on individuals with high incidence disabilities leaving a gap for those with rare, or low incidence, genetic syndromes. Specifically, individuals with CHARGE syndrome who exhibit a unique behavioral phenotype, as a result of numerous medical complexities, are absent in literature functionally assessing behavior. Because of this unique behavioral phenotype, caregivers of individuals with CHARGE Syndrome are likely to be most familiar and knowledgeable about their child’s behavior and should therefore be trained to be included in the functional assessment of behavior. Because CHARGE Syndrome is rare, families may have limited access to resources to adequately assess their child’s problem behavior, as well due to medical complexities, individuals with CHARGE may not be able to attend in-person assessment and ultimately treatment as a result of potential exposure to the novel COVID-19 virus. As a result, virtual training methods will allow more families to learn how to identify the cause of their child’s behavior and how to be involved in virtual behavioral assessments. This study evaluates virtual training methods focusing on training caregivers of individuals with CHARGE Syndrome to conduct brief functional analysis conditions.
| Identifer | oai:union.ndltd.org:MSSTATE/oai:scholarsjunction.msstate.edu:td-6629 |
| Date | 09 August 2022 |
| Creators | Anderson, Megan N |
| Publisher | Scholars Junction |
| Source Sets | Mississippi State University |
| Detected Language | English |
| Type | text |
| Format | application/pdf |
| Source | Theses and Dissertations |
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