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When You Run Out of IDEA: Meaningful Transition for Emerging Adults with Low Incidence Disabilities

In the U.S. students in public schools with disabilities are protected via special education services under the Individuals with Disabilities Education Act (Individuals with Disabilities Education Act, 2004). As part of these regulations, schools are required to provide students aged 16 years and older with transition services to prepare them for life as adults. Research shows that there are links between participation, social engagement, work and well-being (Cacioppo, et al., 2014; Gilson, et al., 2022; Holt-Lunstad, 2018; Macdonald, et al., 2018) as well as a link between social isolation and increased mortality and morbidity (Snyder-Mackler, et al., 2020; Yang, et al., 2016), and yet parents of individuals with moderate to severe/profound, complex, or low-incidence disabilities do not always have transition experiences they feel set their child up for success in real-life situations (Lee & Kim, 2021; Snell-Rood, et al., 2020). This research study used a mixed methods structure to obtain research regarding parent perspectives on specific areas schools need to address to create strong and meaningful transition plans for their students who have more involved disabilities and may require more support. A literature review, a web-based parent survey, 6 one-to-one interviews, and a focus group of 4 interview participants were conducted to drive development of an online, self-paced instructional course comprised of five modules designed to be implemented with school administrators and IEP team members (including, but not limited to teachers, related service providers, psychologists, support staff, parents and students) highlighting immediately implementable strategies to strengthen the IEP transition process in which they participate. Results compiled from all sources support five main areas or themes for creating meaningful transition: collaboration/team/relationships, community based/real-life instruction, presumed competence/mindset, knowledge, and skills (of the parent and school team members), and individualizing the IEP. Additional research supports the use of specific team members (e.g. vocational rehab transition specialist (Plotner & Dyamond, 2017)) and a case is made for ensuring transition teams for students with moderate to severe/profound, complex or low-incidence disabilities include occupational therapists who are trained in the value of using meaningful participation to improve quality of life for their clients (AOTA, 2020). / Temple University. College of Public Health / Health and Rehabilitation Sciences

Identiferoai:union.ndltd.org:TEMPLE/oai:scholarshare.temple.edu:20.500.12613/8863
Date January 2023
CreatorsEdwards, Tisha
ContributorsAbbott-Gaffney, Cynthia, Pachik, Kimberly
PublisherTemple University. Libraries
Source SetsTemple University
LanguageEnglish
Detected LanguageEnglish
TypeThesis/Dissertation, Text
Format142 pages
RightsIN COPYRIGHT- This Rights Statement can be used for an Item that is in copyright. Using this statement implies that the organization making this Item available has determined that the Item is in copyright and either is the rights-holder, has obtained permission from the rights-holder(s) to make their Work(s) available, or makes the Item available under an exception or limitation to copyright (including Fair Use) that entitles it to make the Item available., http://rightsstatements.org/vocab/InC/1.0/
Relationhttp://dx.doi.org/10.34944/dspace/8827, Theses and Dissertations

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