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African and Caribbean people's attitude to sickle cell andthe risk of having a child with sickle cell anaemia

The project aimed to identifY socio-cultural factors influencing attitudes to sickle cell disease (SCD) and decisions about a pregnancy at risk ofproducing a child with sickle cell anaemia; and to identifY differences between African and Caribbean respondents. Sample: Phase 1 - General public African and Caribbean men and women; Phase 2 Pregnant African and Caribbean women with sickle cell trait (HbAS) Phase 3 - Pregnant women from Phase 2 and their partners, who have HbAS, placing the couple at-risk ofhaving a child with HbSS.Methodology: Phase 1 and 2 - a questionnaire (appendix 1) examining - knowledge ofSCD and five attitude variables - importance ofhaving children, locus ofcontrol in genetic decision-making, prevention ofbirth ofchildren with SCD, perception ofthe burden and severity ofSCD.. Phase 3 - semi structured interview (appendix 3), which examined attitude and response ofpregnant women and their partners to their being at-risk ofhaving a child with sickle cell anaemia.

Identiferoai:union.ndltd.org:bl.uk/oai:ethos.bl.uk:505104
Date January 2007
CreatorsOni, Iyabode O.
PublisherUniversity of Surrey
Source SetsEthos UK
Detected LanguageEnglish
TypeElectronic Thesis or Dissertation

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