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Understanding quality of life : investigating the effects of individualised feedback on wellbeing

Recent initiatives in healthcare have begun to take a person-centred approach to treatment and consultation. Quality of Life (QoL) measures have also developed, bringing a precision that enables their use with individuals. However, applications of QoL data have tended to focus on its use by care providers. This programme of research investigated whether QoL information, applied at an individual level, was associated with changes in people's perceptions of their wellbeing. A unique protocol was developed for feeding back results from the WHOQOL-BREF and WHOQOL Importance instruments. A new graphical summary profile was generated as the core mechanism for individualised feedback. Two alternative approaches were developed: verbal guidance given by a facilitator while the participant viewed his or her graphical profile, and written instructions for inspecting the profile, to be followed by the participant when inspecting the profile independently. Initial methodological development work examined the feasibility, acceptability and face validity of these components. A "proof of principle" pilot study then investigated whether thinking about QoL, without feedback, led to effects in scores on measures of wellbeing. The main study (N=129) examined the effects of providing structured feedback on QoL (WHOQOL-BREF and Importance), mood (PANAS), health status (EQ-5D) and goal-oriented QoL (adapted OOSS). A follow-up study examined qualitative reflections on receiving feedback and the psychometric properties of the QoL measures were also investigated.

Identiferoai:union.ndltd.org:bl.uk/oai:ethos.bl.uk:560879
Date January 2012
CreatorsLlewellyn, Alison Mary
ContributorsSkevington, Suzanne
PublisherUniversity of Bath
Source SetsEthos UK
Detected LanguageEnglish
TypeElectronic Thesis or Dissertation

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