The aim of this study was to explore the differentiated experiences of parents who have a child with a diagnosis of ASD and investigate how parental engagement varies with a range of different circumstances, care time-lines and family backgrounds. This study reports data from seven parents who have a child with a diagnosis of ASD. Information was gathered through semi-structured interviews and the use of an events timeline. All data was analysed using Interpretative Phenomenological Analysis. The analysis confirmed that parents have very different experiences across the care-pathway. Some parents experienced a number of critical periods whereby they found it particularly difficult to cope with their child's behaviour. Relationships with professionals were extremely important in building parental confidence across the whole care-pathway. Parents cited that they would like more professionals to develop further care-giving skills in partnership building in order to understand, appreciate and include the parent voice. The study provides recommendations for all professionals and services working with parents who have a child with ASD, in particular the need for professional training in care-giving skills, the importance of providing early intervention in complex cases and the need for additional support at crisis points and during the secondary years.
| Identifer | oai:union.ndltd.org:bl.uk/oai:ethos.bl.uk:654567 |
| Date | January 2013 |
| Creators | Morris, Hannah Christina |
| Publisher | University of Bristol |
| Source Sets | Ethos UK |
| Detected Language | English |
| Type | Electronic Thesis or Dissertation |
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