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Identification & visualization of patient information elements to support chronic iIlness care: a scoping review and pilot study

Purpose: The purpose of this thesis is to determine what is known from the literature
about the use of Clinical Information Systems (CIS’s) to support the information needs of
individual health care providers (HCP), in particular the nurse case manager, and the
inter-professional team providing chronic illness care in the community setting.

Methods and Analysis: This is a scoping review with a pilot study for feasibility.
MEDLINE, CINAHL, and WEB OF SCIENCE were searched up to April 2017.
Reference lists and a citation manager of included studies were searched to identify
further studies. Relevant full text papers were obtained and screened against inclusion
criteria. Data from eligible articles was extracted using a predefined extraction form.
Thematic narrative descriptions and descriptive statistics were used to summarize
findings. Nurse case managers were recruited from diabetes and chronic kidney disease
clinics for an exploratory questionnaire and follow up interview. Descriptive content
analysis and nonparametric statistics were used to summarize findings of the pilot study.

Results: 45 articles were identified meeting the inclusion criteria. Three themes emerged
(1) patient information elements (2) visualization formats, techniques, and organization
and (3) visualization of patient information elements. Diagnostics and observations were
the most frequently mentioned information elements. Text was the main representation
format. Four participants completed the pilot study initial questionnaire and one
completed the follow up interview. There was 100% agreement for 11 elements. Six
themes emerged (1) required information can change (2) information is required for
different purposes (3) information required for communication is related to nurse case
manager concerns (4) required information varies depending on the discipline reviewing
it (5) certain types of information need to be grouped together and (6) it is difficult for a
HCP to visualize what is necessary in a CIS without first seeing or trying it.

Recommendations: The recommendations are a concept-oriented view customizable to
the role of the HCP to display: diagnostics, outcomes and comparisons as graphs and
colour coded, observations, medications, problem lists, clinical events, guidelines, the
care plan, clinician to clinician communication, patient to clinician communication and
clinician to patient communication as text, and clinical events as a timeline.

Conclusion: This review and accompanying pilot study is a starting point for a
framework of guidelines with the recommendations of proposed patient information
elements and the visualization formats, techniques and organization. / Graduate

Identiferoai:union.ndltd.org:uvic.ca/oai:dspace.library.uvic.ca:1828/8430
Date18 August 2017
CreatorsKinch, Vanessa
ContributorsRonan, James, Courtney, Karen L.
Source SetsUniversity of Victoria
LanguageEnglish, English
Detected LanguageEnglish
TypeThesis
Formatapplication/pdf
RightsAvailable to the World Wide Web

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