The burden of caregiving is alarmingly high in South Africa, where one in every three people admitted in hospitals, is HIV positive. A great number of AIDS patients end up being cared for at home by their families, but mostly by volunteer caregivers. The conditions in which caregivers work under, leave much to be desired, hence work related conditions are a probable cause for high stress levels among volunteer caregivers of people living with HIV/AIDS. This study sought to investigate stress factors of volunteer caregivers of people living with HIV/AIDS and the influence of social capital on high stress levels. Within a South African caregiving setting, social capital influence has not been explored. In a culture where silence and stigmatisation of people living with HIV/AIDS and caregivers is high, this study tries to locate participation of close friends and family, local organizations and government in dealing with caregiving work and support. The study was conducted in 13 semi rural communities in Durban KwaZulu-Natal, South Africa. A survey was used to collect data, and analysis was conducted using quantitative methods. The sample comprised of 127 women from an organization called Community Outreach Centre. The greater (92.2%) of the total sample reported above 50% of stress levels. The findings indicated that caregiving work require urgent support from organizations and government. It was also evident that organizations within communities do not work together nor support each other in dealing with caregiving problems. Contrary to the existing literature, the results also showed that the more social capital elements such as social cohesion and social action at a bridging level increased, the more stressed volunteer caregivers became. / Thesis (M.Soc.Sci.)-University of KwaZulu-Natal, Durban, 2010.

Short of a medical breakthrough, counselling is the only available tool to deal with the loss, pain and suffering that AIDS patients' experience. Studies have suggested that although there is a change in society's perception to AIDS, there still exist some negative attitudes and perceptions that occur among a variety of groups, which includes the health care workers. This study aims to investigate the construction of meaning, perceptions, and attitudes of HIV/AIDS among professional and lay counsellors . The researcher will compare lay and professional counsellors' attitudes, perceptions and meanings of AIDS. The Social Representational Theory was used to provide an understanding of how these metaphors and attitudes emerged and still exist. Qualitative methodology was used, which allowed the researcher to gather in - depth data necessary for the study of psychological issues. The study made use of non- probability purposive sampling. Data were collected by use of in-depth interviews. A pilot study was conducted to 'test' the interview schedule. Three lay and three professional , female counsellors were recruited for the interviews. All the interviews were tape recorded and transcribed. Thematic analysis was used to analysis the data. Essentially, the data reflected that there were many emergent metaphors which counsellors used that were similar to the general population. At times, these metaphors impacted on the counselling process. The findings of this study made recommendations in terms of more research around this area is needed, training programmes should include training in peer supervision and it should include more practical exposure to real situations. / Thesis (M.A.)-University of Natal, Pietermaritzburg, 2002.

Human Immunodeficiency Virus (HIV) infection and Auto-Immune Deficiency Syndrome (AIDS) have spread globally during the past twenty-eight years and 67% of people living with HIV live in sub-Saharan Africa. HIV and AIDS are now the leading cause of death in this region. Worldwide, it is the fourth biggest killer. Nurses in health institutions in South Africa face challenges as result of increased number of very sick and terminally ill patients who are admitted to the hospital due to HIV and AIDS epidemics. Workloads have increased with no concomitant increase in number of staff to care for the patients. Aim: This study aims to identify dynamics of care of professional patients with HIV and AIDS by nurses and make recommendations that will deal with these problems. Methods: A qualitative study was conducted with the study population drawn from professional nurses who were involved in the care of patients with HIV and AIDS in the medical wards at Ngwelezana Hospital for at least five years. One focus group discussion was also conducted. The sample was selected purposively. Results: The study revealed many issues affecting the care nurses gave to patients with HIV and AIDS and the personal challenges (physical and emotional) they faced in the course of their work. Amongst these are contextual challenges which pertained mainly to health system issues- lack of institutional support and incentives, heavy workload with concomitant increase in number of patients attended to by nurses, training needs of nurses and multidisciplinary team work. Nurses had to deal with personal challenges such as helplessness, frustration, anger, death anxiety, physical and emotional stress. However, there were positive experiences such as empathy and self-actualisation in being able to care for terminally ill patients and seeing some of them get better with treatment. Recommendations: These include the need to address the training needs of nurses about management of HIV and AIDS, institutional support for nurses, critical incident debriefing and community awareness. / Thesis (M.Med.)-University of KwaZulu-Natal, Durban, 2010.

Chantal Mouffe has proposed a theory of political engagement or “citizenship” that rejects fixed, essential definitions to “the political”. With her pluralistic, non-essentialized political subject, she hopes for a means by which different political struggles can be linked together rather than ordered hierarchically or exclusively. Here citizens are associated in distinct but related struggles, rather than by legal status or community membership. A crucial point in her argument is that political theorists must look for new “spaces” of politics. Since she never expands on this call, we are left with little more than spatial metaphors that fix the locations where citizenship might be found. Political theory typically plots three separate spheres to describe people’s lives: the state, civil society, and the family. By spatializing these metaphorical locations I have taken up her call and explored the emergence of citizenship across these spatialized social relations through an ethnography on AIDS politics in Vancouver, Canada. For each allegedly discrete space in political theory, I note an ongoing restructuring that affects and is affected by the articulation of citizenship with the changes in social relations in place. These restructurings suggest that fixed, essentialized characterizations of space must also be rejected. I sketch the considerable overlap between social relations of state, family, and civil society in locations across Vancouver’s AIDS politics. Radical civil disobedience failed because activists failed to understand the overlap of state and civil society through AIDS service organizations. Within those agencies, political engagement is caught between grassroots community orientations (civil society) and the emergence of a large, rapidly bureaucratizing service system attached to the state. Volunteers who provide all manner of support (from social work to kinship) for people living with AIDS likewise complicate any clearcut distinction between state and family. The overlap of the family with civil society is illustrated by the Vancouver display of the AIDS Quilt. It was at once a fundraising event held in civil society, yet it was also a familial space: allowing families and friends to grieve and mourn their dead. Spatial overlaps enabled (and also constrained) citizenship, as Mouffe defines it. These hybrid spaces articulate de-centered citizens with the ongoing restructurings of state, civil society, and family that are concurrent to the AIDS epidemic. Consequently, I conclude that future work on radical democratic citizenship consider the contexts in which the citizen engages in political struggle.

No description available.

The need for a family therapeutic counselling programme in the management of HIV/AIDS was established by the researcher in 2001 (den Hollander 2001). The focus of this study was to develop the training programme model in family therapeutic counselling for church leaders and lay counsellors. This was accomplished using a variety of samples and research instruments, by firstly exploring the issues and problems facing people and families living with HIV/AIDS and then how best churches could respond as faith-based community organizations. At a theoretical level, this study sought to compare the paradigms of contextual and narrative family therapy with the theory and practice of social work and practical narrative theology, in order to integrate these paradigms into an incorporated response to the HIV/AIDS pandemic. The main research methodology was the Intervention Research Model as adapted from De Vos (2001). This model consists of six phases, consisting of problem analysis and project planning, information gathering and synthesis, design, early development and pilot testing, evaluation and advanced development, and dissemination of the training model. During the analysis phase an extensive literature research, as well as several field studies, both quantitative and qualitative were conducted. During the development phase, three pilot studies were designed and performed, in attempt to accommodate the context specific problems of different families and communities. The results of these two phases indicated a need for pastoral training in family therapeutic counselling, specifically in the areas of mental health, trauma and bereavement and child participation. Importantly, the need to intervene meaningfully to alleviate structural problems such as poverty and food insecurity were clearly indicated, with the study recommendation being for active networking across all stakeholders so that therapeutic counselling may work in tandem with these community based efforts. Recommendations in respect of offering such training are to provide a comprehensive structure of training, supervision and counselling practice. / Thesis (Ph.D.)-University of KwaZulu-Natal, Durban, 2009.

This thesis explores home-based care volunteer (HBCV) identity and how it is shaped by context in rural KwaZulu-Natal, South Africa. The literature on home-based care in Africa is dominated by the "burden of care narrative" which is supported by the themes of "women as caregivers", "poverty" and "stigma". The literature presents government and stakeholder collaboration as the general solution to alleviating the burden of care on women caregivers. A wider scope for research within the themes is necessary to discover alternative solutions to the problem of the burden of care. This study ventured to expand the scope of current research by exploring the area of HIV and AIDS home-based care volunteer (HBCV) identity and participation in care and support. Fifteen HBCVs were interviewed about their work and personal life stories and interviewed reflexively using narrative interviewing. Findings indicate that the women's stories were dominated by narratives of gender, poverty and sociopolitical factors (social field narratives). Meta-narratives influencing the women's lives were stories of communal motherhood, aspirations to service-oriented work and religious beliefs and commitment. The women's personal life stories revealed that they saw themselves as distinctively caring. Connections between the different aspects of identity and context revealed that the women made sense of their community participation through their personal identities as strong and loving mothers and the association with the group identity of community mothering. Home-based-care volunteerism was explored as a form of agency in response to a lack of recognition, support and acknowledgement for AIDS caregivers and their patients. Researcher reflexivity through autoethnography and poetry contributed to achieving depth in the study and to the understanding that HBCVs strive for space recognition, acknowledgement and validation for their work. In a resource strained context a balance must be found between material compensation and respect and recognition which can be effective in sustaining community initiated volunteerism. / Thesis (Ph.D.)-University of KwaZulu-Natal, Durban, 2013.

A focus on care and support for people living with HIV/AIDS throughout the world has become a key discussion in the general HIV/AIDS discourse. This thesis provides an in-depth analysis of two HIV/AIDS support groups operating in areas south of Durban, South Africa. In particular, the thesis presents the readers with a description of the 1) purpose of HIV/AIDS support groups, 2) main participants involved in HIV/AIDS support groups, and 3) an overview of how the two HIV/AIDS support groups under study operate. The grounded theory approach of this study led to the emergence of two themes crucial to the understanding of the HIV/AIDS support groups under study, the existence of widespread conflict, and a system of "negotiated" reciprocity within each support group. The thesis uses the framework of Victor Turner's social drama, and the anthropological theories of reciprocity, in order to analyze these concepts. This thesis reveals that each support group operates within an environment, in which a discrepancy of expectations, obligations, and goals amongst the support group participants exists. Additionally, the support group members and the sponsoring organization of both support groups have varying perceptions of the support group, both in its ideal and actual form. Finally, the thesis reveals the way in which each support group oscillates between a state of stability and conflict, and how conflict and negotiation, in turn, become inherent within, and synonymous with, everyday organisation and operation of the support groups. / Thesis (M.A.)-University of KwaZulu-Natal, Durban, 2009.

The emergence of renewed emphasis on risk and risk management has opened a huge portal in attempting to deal with the negative impacts of mv/AIDS in the workplace. The study recognises the importance of risk management in achieving optimal benefits within any organisation. Furthermore it examines the devastating effect of mv/AIDS on the social and economic structure of South Africa and provides a benchmark programme in addressing this Issue. A case study is presented (Care for the Caregivers Programme, at McCord Hospital), which provides the framework of a programme in operation. The dissertation dissects the programme and evaluates the outcomes against a set of developed criteria. In maximising the benefits of such programmes, emphasis on proper implementation and monitoring is essential. The study proceeds to provide suggestions to harness the full potential ofthe programme. v / Thesis (MBA)-University of KwaZulu-Natal, 2004.

This study endeavoured to critically appraise the current models that have been designed to evaluate the HIVI AIDS epidemic. The flaw with the models is that they are not based on adequate data. Subsequently, the incorporation of the epidemic variables into Corporate Management has been lethargic especially with respect to small and medium business enterprises in South Africa. Nevertheless, larger corporations have evaluated the impact of the HIVI AIDS epidemic in their individual companies that provide results on the magnitude of the epidemic on the corporate sector. A careful analysis of these results taking into account the nature of the business will allow for more realistic inferences of the skill demographic magnitude of the epidemic from which smaller companies that have not embarked on studies can have a platform to assess the potential magnitude of the disease and this forms the backbone of the disease. Once this is recognised and incorporated into the mindset of companies, then strategic decisions have to be taken to minimise the impact of the epidemic on the business functions to ensure firstly sustainability and then profitability. Recommendations are outlined in the study based on the experiences of the larger corporate players that have performed the appropriate analysis for this and the actions that have been instituted. Thereafter the thesis substantiates the need for implementing strategies to deal with HIVI AIDS and the goals that companies should aspire. Lastly, based on workplace programs that have already been successfully incorporated into companies, the analysis and the program implementation is outlined. / Thesis (MBA)-University of Natal, 2003.