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A study on social support and ART adherence at Carletonville Hospital and Zola Clinic in Gauteng ProvinceWilliams, Ekanem Esu 02 October 2008 (has links)
The challenges facing the health system in South Africa are likely to impact on life-long
adherence for patients in the context of the rollout of ART. Smaller ART programs have been able
to demonstrate good adherence rates, but the question remains if this can be achieved by large
public sector ART programs. Most adherence researchers share the basic understanding that
patients are adherent when they take their medications as prescribed by the health provider. An
approach to adherence that combines both clinical and social knowledge—a biosocial approach—
is likely to move us to a better understanding of adherence and how to improve adherence to ART.
This study on social support and ART adherence aims to gather and document information that
could be used to improve services and program strategies for strengthening and maintaining
adherence at ART rollout sites in Gauteng. The two study sites Carletonville Hospital and Zola
Clinic were chosen randomly from all second-generation rollout sites in the Province. Data were
collected from a total of 359 respondents, 164 in Carletonville and 195 in Zola. The response rate
was 98.3%.
The results showed that the majority of the respondents were female (72.1%) and about
44.9% were within the age group 30-39 years. In terms of educational attainment, most
respondents (70.1%) had received secondary education and 2.5% had not attended school. Based
on assets quintiles scores of 1-5, with 5 being the highest score, about one-third of the respondents
scored 1, and only 7% scored 5. Compared with Carletonville, respondents from Zola were more
educated and better resourced. At the facilities, treatment preparation and support and adherence
assessment procedures are routine features of the ART program and entail pre and post test
counseling, group education and adherence counseling and serve as mechanisms for adherence
support. This is enhanced by routine follow-up appointments where ART patients are provided
information on side effects of ARVs, effectiveness of treatment, CD4 cell and viral load counts and referral to services not provided at the facility. Additionally, support groups accessed by patients
undertake a range of educational activities on staying healthy, viral load and CD4 cell counts and
ARVs. Although respondents were largely positive about their interactions with health providers
and the support they provided, some expressed concern about health workers being too busy to
address their problems, not treating patients with enough respect and sometimes patients leaving
without receiving treatment because staff were either absent or late or queues were too long.
The HIV disclosure rate was high (95.5%). However, respondents were more likely to
disclosure to a family member, but less likely to a friend, neighbor or religious leader. Selfreported
adherence and viral load adherence rates were high (97.6% and 76.6% respectively) but
CD4 adherence was lower at 51.0%. The study did not document a convincing association
between social support and ART adherence. Only two variables (receiving food supplements and
age groups) were significantly associated with CD4 and viral load adherence.
Given the limitations of the study, a longitudinal study is needed in these sites to better
understand the predictors of short and long-term adherence and to explore ways to better measure
the relevance, content and quality of the social support services being utilized by ART patients at
facility and community levels. Interventions and policies are needed to respond to the concerns
identified from the study regarding inadequate attention and respect by health providers, absence or
lateness of doctors and pharmacists and challenges pertaining to access to food, income and disability grants.
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