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1	The health of children attending special schools in the Gold Coast district, as perceived by their parents and teachers Hogan, Margaret M. Unknown Date (has links) No description available. 130312 Special Education and Disability 1117 Public Health and Health Services Special schools Health status Child health questionnaire
2	The health of children attending special schools in the Gold Coast district, as perceived by their parents and teachers Hogan, Margaret M. Unknown Date (has links) No description available. 130312 Special Education and Disability 1117 Public Health and Health Services Special schools Health status Child health questionnaire
3	Quality of Life in Pediatric Patients with Intestinal Failure on Home Parenteral Nutrition Carricato, Megan 06 January 2011 (has links) Introduction: Medical advances have resulted in reduced mortality of pediatric patients with Intestinal Failure. Consequently, more patients go home on parenteral nutrition (PN) for extended durations. This time-consuming and complicated therapy necessitates persistent vigilance in monitoring and response to potential life-threatening side effects. These issues may impact quality of life (QOL) for patients, caregivers and families. Methods: This observational, cross-sectional, mixed-methods analysis of multidimensional QOL used a quantitative battery assessment and a qualitative focus group. Questionnaire results were compared to published norms, published small bowel transplant (SBTx), and institutional SBTx patients. Results: Home PN proxy assessments scored children lower than published norms but similar to SBTx. The child self-reports were similar to both normative and SBTx populations, except lower general and overall health. Generic questionnaires did not capture disease-specific issues. Conclusion: QOL is compromised in children on home PN and caregivers compared to norms but is similar to SBTx. Quality of Life Pediatrics Intestinal Failure Parenteral Nutrition Functional Status Home Parenteral Nutrition Child Health Questionnaire PedsQL Focus Group Mixed Methods Nutrition Battery Assessment CHQ Pediatric Quality of Life Questionnaire 0766 0570
4	Quality of Life in Pediatric Patients with Intestinal Failure on Home Parenteral Nutrition Carricato, Megan 06 January 2011 (has links) Introduction: Medical advances have resulted in reduced mortality of pediatric patients with Intestinal Failure. Consequently, more patients go home on parenteral nutrition (PN) for extended durations. This time-consuming and complicated therapy necessitates persistent vigilance in monitoring and response to potential life-threatening side effects. These issues may impact quality of life (QOL) for patients, caregivers and families. Methods: This observational, cross-sectional, mixed-methods analysis of multidimensional QOL used a quantitative battery assessment and a qualitative focus group. Questionnaire results were compared to published norms, published small bowel transplant (SBTx), and institutional SBTx patients. Results: Home PN proxy assessments scored children lower than published norms but similar to SBTx. The child self-reports were similar to both normative and SBTx populations, except lower general and overall health. Generic questionnaires did not capture disease-specific issues. Conclusion: QOL is compromised in children on home PN and caregivers compared to norms but is similar to SBTx. Quality of Life Pediatrics Intestinal Failure Parenteral Nutrition Functional Status Home Parenteral Nutrition Child Health Questionnaire PedsQL Focus Group Mixed Methods Nutrition Battery Assessment CHQ Pediatric Quality of Life Questionnaire 0766 0570

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