This study examines the impact of raising a child with an autism spectrum disorder on relationship quality using the double ABCX model of adjustment and adaptation. Respondents (N = 126) recruited through Autism Society listervs completed online surveys designed to measure three factors of relationship quality: satisfaction, positive perceptions, and negative perceptions. Results from hierarchical multiple regression models indicate that the double ABCX model accounted for 47% of variance in satisfaction, 72% in positive perceptions, and 50% in negative perceptions, for predicting the quality of couple relationships. Implications for clinicians working with couples are discussed, such as the need for treatment that focuses on stress management and increasing support through affectionate, emotional, tangible, and social interactions.

This thesis is focused on the current concept of coping with stressful situations and the concept of posttraumatic growth of healthy siblings of disabled children. The first part of this thesis deals with stressful situations throughout the life of healthy sibling. The work describes the ways of coping with difficult life situations as well as coping strategies oriented to the future (proactive coping). It also focuses on the positive effects of this experience within the concept of posttraumatic growth. The empirical part presents the data obtained from nine respondents. There were used these methods: interview, narrative inspired by life-story, questionnaire PTGI-CZ and PCI questionnaire. The data were elaborated by means of qualitative and quantitative methods. The aim of the thesis was to identify the coping strategies used by siblings and identify potential posttraumatic growth. The most considerable development was reflected in the areas of "appreciation of life" and "personal growth". The most helpful coping strategies were considered to be positive thinking and positive reappraisal of a situation. We believe that these research findings might be helpful in counselling for siblings or in the area of psychotherapy.

Caring for a child with disabilities and special needs can be a challenging and arduous responsibility. Many parents are unprepared to cope with such event and encounter problems with their own health and psychological well- being. Conversely, when parents and families are empowered with appropriate tools and techniques they can overcome these difficult circumstances through the use of health coping strategies. This study will examine the use of coping strategies and the impact on parent’s psychological health. The literature review in this study will discuss coping practices, and the adverse affects on parent’s emotional welfare. The research was conducted with eight parents who participated in an audio-recording, face-to-face interview with open-ended questions. The data of this study was collected and examined by utilizing qualitative methods. Interview data was transcribed into written form to explore and identify common themes. Researcher used a qualitative approach to understand participant’s experiences. The study discovered four common themes: 1. Social support systems, 2. Family Dynamics, 3. Spirituality, and 4. Positive Thinking. The findings of this study may increase awareness and understanding of healthy coping strategies utilized by parents of children with special needs and how it may impact their psychological well-being. The research also addressed the limitations of the study, the significance of the study for social work and the future recommendations for the social work profession and future research.

Submitted by Filipe dos Santos (fsantos@pucsp.br) on 2017-03-17T11:56:40Z No. of bitstreams: 1 Kaciana Nascimento da Silveira Rosa.pdf: 4369844 bytes, checksum: 869ba358e383c8a91312941dcf4f9f1d (MD5) / Made available in DSpace on 2017-03-17T11:56:40Z (GMT). No. of bitstreams: 1 Kaciana Nascimento da Silveira Rosa.pdf: 4369844 bytes, checksum: 869ba358e383c8a91312941dcf4f9f1d (MD5) Previous issue date: 2017-03-10 / Coordenação de Aperfeiçoamento de Pessoal de Nível Superior - CAPES / This thesis consists of an analysis of the first experiences of schooling of children's with disabilities in the 18th and 19th centuries, and beginning of 20th century. It also identifies educational principles and assumptions that can contribute to inclusive education of these children today, through the works by Jacob Rodrigues Pereira (1715-1780), Jean Marc Gaspard Itard (1774-1838), Edouard Séguin (1812-1880) and Maria Montessori (1870-1952). These educators provided conditions for special needs children to learn and develop by keeping away from the medical-clinical interventions and giving priority to the pedagogical approach. Since it is a theoretical study, it considers the theoretical production in the field of special needs education, including reading and analysis of materials (books, articles, thesis and dissertations) about the life, studies and experiences developed by Pereira, Itard, Séguin and Montessori – the secondary sources of information. Furthermore, the study mainly addresses the full texts and works of the educators investigated – the primary sources. To understand the historical meaning of the theoretical and practical materials published by Pereira, Itard, Séguin and Montessori, the analyses were based on four categories, considering life, process of academic training, theoretical inspirations and, mainly, the educational proposals of each of these scholars investigated. Finally, an analysis is made to show the common points among the works of Pereira, Itard, Séguin and Montessori. In addition, the main aspects of their work – pointing out to formation of special needs education and to the roots of socalled inclusion process – are presented / Esta tese constitui-se da análise das primeiras experiências de escolarização de crianças com deficiência nos séculos XVIII, XIX e início do século XX, bem como da identificação dos princípios e pressupostos pedagógicos que podem contribuir para o trabalho de inclusão escolar dessas crianças na atualidade, por meio dos trabalhos de Jacob Rodrigues Pereira (1715-1780), Jean Marc Gaspard Itard (1774-1838), Edouard Séguin (1812-1880) e Maria Montessori (1870-1952). Esses educadores proporcionaram condições de aprendizagem e desenvolvimento para crianças com deficiência ao se afastarem do modelo de intervenção médico-clínica, priorizando a abordagem pedagógica. Por se tratar de um estudo de caráter teórico, considera-se a produção teórica na área da educação especial, contemplando a leitura e a análise de materiais (livros, artigos, teses e dissertações) sobre a vida, os estudos e as experiências desenvolvidas por Pereira, Itard, Séguin e Montessori – fonte segundária – e, principalmente textos e obras completas dos educadores aqui pesquisados – fonte primária. Para a compreensão da significação histórica do material teórico e prático deixado por Pereira, Itard, Séguin e Montessori, as análises foram norteadas por quatro categorias, considerando a vida, o processo de formação acadêmica, as inspirações teóricas e, principalmente, as propostas educativas de cada um dos teóricos pesquisados. Por fim, é realizada uma análise que busca evidenciar os pontos comuns dos trabalhos de Pereira, Itard, Séguin e Montessori e, também, são apresentados os principais aspectos de seus trabalhos que apontam para a constituição da educação especial, bem como as raízes do processo hoje denominado de inclusão

The thesis aims at acquiring relevant information concerning the motivation of clients, their guardians or statutory representatives for the choice of residential service. Research question: Why do families leave clients in the care of residential facility of social services even though they have knowledge, skills, and material potential to provide the care of their members in the family? The theoretical part of the thesis defines basic terms and briefly describes the Home for Persons with Disabilities in Zběšičky. The sample consists of families of clients that are interested in their family members and continually cooperate with the Home for Persons with Disabilities in Zběšičky. It is a quota sampling where quotas are conditioned by the interest and cooperation of family members. When elaborating the practical part I chose the qualitative research strategy because of the sensitivity of acquired data and with the view of the ethically very problematic area of study. In-depth interviews with clients? families were selected as the questioning method. Interview transcripts, notes from the dates etc. were given to the thesis supervisor Ing. Lucie Kozlová, Ph.D. at her disposal upon the agreement of communication partners while a promise was given that they would not be handed over to a third person. Only the data coming from the communication partners who had agreed with their processing into the final version and had answered all questions by the end of the data acquisition were used as the results of the diploma thesis. The results of this thesis displayed that families have not come through the whole process of the coping ? admission of the child and have chosen passive and escapist strategies in which they remain. They rationalize their decision by pointing out the necessity of the provision of indispensable complex care which they cannot provide to the clients at home, the demanding character of the care, the presently worsening health state of the carers, the inevitability of care of client?s siblings etc. By the placement in the residential service with regular visits of the client at home, the persisting ambivalent relations to the client manifest themselves together with the necessity to maintain the contact and saturate emotional needs at least in this way. A combination of several factors influences the decision to place there their family member. The placement of a client in the residential service is understood by the families as the final and definitive solution. Therefore passive attitudes to possible changes prevail and families conform to changing demands from the social services providers only unwillingly. With difficulties they get accustomed to the change of the attitude of the society oriented from the paternalist concept of social work towards the assumption of responsibility and active solution of proper situation. It is obvious from the interviews that families have potential, knowledge and skills to take care of their handicapped family members in the home environment, but they refuse the permanent care. In the course of in-depth interviews, I have managed to get into a more intensive relationship and cooperation with clients? families. Knowledge acquired is a valuable feedback for the assessment of the quality of provided care and for the adaptation to the real needs of the clients and their families. Moreover, the results have influenced the ongoing process of quality standards revision and amended methodical materials in the facility. In the spirit of humanizing and transformation changes in the facility, common education of facility employees and our clients? families has been intensively prepared and common meetings of families have been supported in a more substantial way. An increased care is now dedicated to carers.

Summary: The main objective of this thesis is to describe the limits of existing methods and case management in providing health and social services in the Czech Republic of multidisciplinary care for a family with a disabled children. The work is divided into two parts. First - theoretical part - summarizes the theoretical issues, the basic terminology, case management, case manager, describes the role and method of use of case management in social and health services in the Czech Republic and abroad. There is also summarized the issues of families with disabled children, concept of multidisciplinary care for families with disabled children and the legislative framework governing the health and social care for these entities. The second, empirical part, qualitative research focuses on mapping the experience of families with disabled children in the multidisciplinary care of their children in practice, indications, course, professional representation of multidisciplinary care. The research describes the role of parent as a key person and needs in the care of children with disabilities through semi-structured interviews with five respondents who have children with disabilities. To better understand the needs of families with children with disabilities, case study was give through. I used information from the...

The diploma thesis deals with the issue of education of children with disabilities from the point of view of their parents. The theoretical part focuses on basic concepts such as disability, specific types of disabilities such as mental disability, cerebral palsy, developmental dysphasia and autism spectrum disorders. The other chapters are focused on the familiarization with the specifics of the family with a disabled child, the possibilities of education and the acquaintance with the Association to help children with disabilities, where the research was carried out. The focus of the work is a qualitative research, the aim of which was to reveal through the semi-structured interviews, how the parents of their children perceive. Based on the research carried out, it was found that the parents' view of the education of their children with disabilities is influenced by the type of disability, its depth, the quality of communication with the school and the human attitude of pedagogical staff.

Abstract UHLÍŘOVÁ, Markéta. 'Child with Disabilities in Foster Care'. Prague : Faculty of Arts, Charles University in Prague, 2011. 140 pp. Graduation Thesis. In the opening chapters of the thesis entitled 'Child with Disabilities in Foster Care' are defined basic concepts relating to disability issues and there are also outlined options of care for a child with disabilities and their families. More text in detail deals with foster care, defines the essential functions of the family and describes various forms of foster care, which are applied to provide care for orphaned children socially in the Czech Republic. The main part of work deals with foster care, its history and particular types, given the current state of implementation of foster care in the Czech republic and discusses the process of mediation foster care with regard to the child with disabilities. The survey based on analysis of interviews with the famaliare experience, that has accumulated during their life foster-mothers, who take care to children with disabilities. The work is concluded by an evaluation of lessons learned and outlining ways on how to use them for those, who think about implement of the foster care and they would be willing to accept a child with disabilities.