Thesis (Ph. D.)--University of Texas at Austin, 2004. / Supervisors: Larry Browning and Rajiv Rimal. Vita. Includes bibliographical references.

Thesis (Ph. D.)--University of Texas at Austin, 2007. / Vita. Includes bibliographical references.

Thesis (M.S.)--University of Wyoming, 2008. / Title from PDF title page (viewed on Nov. 12, 2009). Includes bibliographical references (p. 55-58).

The purpose of the present research is to investigate whether or not chronically ill children are victims of child abuse more frequently than healthy children. The gender of the child and of the parent will also be examined for differences in the treatment children receive.

Text in Afrikaans / Summaries in English and Afrikaans / This research sets guidelines for parents of chronically ill children. The guidelines are aimed at equipping the parents to cope more efficiently with the chronic illness and to support other family members in doing so. The nature of chronic illness and its effect on the sick child, his education, the parents and siblings have been researched in the literature study. Chronic illness affects family members in different ways. The· illness affects the sick child's physical, emotional, cognitive, moral and psychosocial development. The parent's total existence and the education of their child are also affected. The illness influences the emotional, cognitive, moral and psychosocial development of siblings. The effect of chronic illness on family members gives rise to certain needs concerned with coping with the illness. Parents as the caretakers of the family and educators of the child are mainly responsible, to assist family members to deal with the illness and its consequences. An empirical study was carried out, involving 102 parents of chronically ill children. This study confirmed that the chronic illness impedes the education process and complicates the adequate development and maturation of specifically the sick child. The effect that chronic illness has on other family members was also confirmed. The empirical study proved that parents need assistance to cope with the illness. They need assistance for themselves as well as assistance in helping other family members to cope. Based on this literature study and the results of the empirical research, guidelines were developed for the parents of the chronically ill child. These guidelines empower the parents in their support roles. It enables them to deal with the needs of the family thereby enabling family members to cope more efficiently with the illness. Several guidelines have been given regarding how to cope with the matters concerned with educational, physical, emotional, cognitive, moral and psychosocial consequences of the illness. Parents should streamline these guidelines to suit the needs of every unique child and the rest of his family. / Hierdie navorsing stel riglyne vir ouers van 'n cluoniese siek kind. Die riglyne is daarop gemik om die ouers te bemagtig om cluoniese siekte beter te kan hanteer en ander gesinslede te steun in hulle hantering van die siekte. Die aard van cluoniese siekte en die effek daarvan op die siek kind, sy opvoeding, die ouers en sibbe is in die literatuurstudie nagevors. Cluoniese siekte raak elke gesinslid op verskeie wyses. Die siek kind se liggaamlike, emosionele, kognitiewe, morele en psigososiale ontwikkeling word deur die siekte beYnvloed. Ouers se totale bestaan en hulle opvoeding van die kind word deur die siekte geraak. Die siekte beYnvloed sibbe se emosionele, kognitiewe, morele en psigososiale ontwikkeling. Die effek van chroniese siekte op elke gesinslid laat behoeftes, wat met die hantering van die siekte verband hou, by elkeen ontstaan. Ouers as versorgers van die gesin en opvoeders van die kind is grootliks verantwoordelik om die siek kind en ander gesinslede te help om die siekte en die gevolge daarvan te hanteer. 'n Empiriese ondersoek is uitgevoer waarby I 02 ouers van cluoniese siek kinders betrek is. Die empiriese ondersoek het bevestig dat cluoniese siekte opvoeding kan bemoeilik en toereikende ontwikkeling en volwassewording by veral die siek kind kompliseer. Chroniese siekte se effek op die ander gesinslede is ook bevestig. Die empiriese ondersoek het aangedui dat ouers behoeftes aan hulp het om die siekte te kan hanteer. Ouers se behoeftes het verband gehou met hulp aan hulself en hulp om die ander gesinslede te help om die siekte beter te hanteer. Op grond van die literatuurstudie en die resultate van die empiriese ondersoek, is riglyne vir ouers van die cluoniese siek kind geskryf. Die riglyne bemagtig ouers as steungewers deurdat hulle toenemend in staat gestel word om in die gesin se behoeftes te voorsien, sodat gesinslede die siekte beter kan hanteer. Verskeie riglyne om sake rakende die siekte te hanteer, is gegee. Daar is aan opvoedkundige, liggaamlike, emosionele, kognitiewe, morele en psigososiale aspekte aandag gegee. Die ouers behoort die riglyne te verbesonder vir elke unieke kind en sy gesin. / Psychology of Education / D.Ed.(Sielkunde Opvoedkunde)

Text in Afrikaans / Summaries in English and Afrikaans / This research sets guidelines for parents of chronically ill children. The guidelines are aimed at equipping the parents to cope more efficiently with the chronic illness and to support other family members in doing so. The nature of chronic illness and its effect on the sick child, his education, the parents and siblings have been researched in the literature study. Chronic illness affects family members in different ways. The· illness affects the sick child's physical, emotional, cognitive, moral and psychosocial development. The parent's total existence and the education of their child are also affected. The illness influences the emotional, cognitive, moral and psychosocial development of siblings. The effect of chronic illness on family members gives rise to certain needs concerned with coping with the illness. Parents as the caretakers of the family and educators of the child are mainly responsible, to assist family members to deal with the illness and its consequences. An empirical study was carried out, involving 102 parents of chronically ill children. This study confirmed that the chronic illness impedes the education process and complicates the adequate development and maturation of specifically the sick child. The effect that chronic illness has on other family members was also confirmed. The empirical study proved that parents need assistance to cope with the illness. They need assistance for themselves as well as assistance in helping other family members to cope. Based on this literature study and the results of the empirical research, guidelines were developed for the parents of the chronically ill child. These guidelines empower the parents in their support roles. It enables them to deal with the needs of the family thereby enabling family members to cope more efficiently with the illness. Several guidelines have been given regarding how to cope with the matters concerned with educational, physical, emotional, cognitive, moral and psychosocial consequences of the illness. Parents should streamline these guidelines to suit the needs of every unique child and the rest of his family. / Hierdie navorsing stel riglyne vir ouers van 'n cluoniese siek kind. Die riglyne is daarop gemik om die ouers te bemagtig om cluoniese siekte beter te kan hanteer en ander gesinslede te steun in hulle hantering van die siekte. Die aard van cluoniese siekte en die effek daarvan op die siek kind, sy opvoeding, die ouers en sibbe is in die literatuurstudie nagevors. Cluoniese siekte raak elke gesinslid op verskeie wyses. Die siek kind se liggaamlike, emosionele, kognitiewe, morele en psigososiale ontwikkeling word deur die siekte beYnvloed. Ouers se totale bestaan en hulle opvoeding van die kind word deur die siekte geraak. Die siekte beYnvloed sibbe se emosionele, kognitiewe, morele en psigososiale ontwikkeling. Die effek van chroniese siekte op elke gesinslid laat behoeftes, wat met die hantering van die siekte verband hou, by elkeen ontstaan. Ouers as versorgers van die gesin en opvoeders van die kind is grootliks verantwoordelik om die siek kind en ander gesinslede te help om die siekte en die gevolge daarvan te hanteer. 'n Empiriese ondersoek is uitgevoer waarby I 02 ouers van cluoniese siek kinders betrek is. Die empiriese ondersoek het bevestig dat cluoniese siekte opvoeding kan bemoeilik en toereikende ontwikkeling en volwassewording by veral die siek kind kompliseer. Chroniese siekte se effek op die ander gesinslede is ook bevestig. Die empiriese ondersoek het aangedui dat ouers behoeftes aan hulp het om die siekte te kan hanteer. Ouers se behoeftes het verband gehou met hulp aan hulself en hulp om die ander gesinslede te help om die siekte beter te hanteer. Op grond van die literatuurstudie en die resultate van die empiriese ondersoek, is riglyne vir ouers van die cluoniese siek kind geskryf. Die riglyne bemagtig ouers as steungewers deurdat hulle toenemend in staat gestel word om in die gesin se behoeftes te voorsien, sodat gesinslede die siekte beter kan hanteer. Verskeie riglyne om sake rakende die siekte te hanteer, is gegee. Daar is aan opvoedkundige, liggaamlike, emosionele, kognitiewe, morele en psigososiale aspekte aandag gegee. Die ouers behoort die riglyne te verbesonder vir elke unieke kind en sy gesin. / Psychology of Education / D.Ed.(Sielkunde Opvoedkunde)

Thesis (MA)--Stellenbosch University, 2002. / ENGLISH ABSTRACT: The focus of the present review is the quality of life (QOL) of parents caring for a child with epilepsy. The review is informed by published books and articles available on the Psychlit and Medline databases. The paper provides an overview of epilepsy and the problems patients, particularly children, are confronted with. The important roles that parents fulfil in their child's life is followed by a discussion of the stress and burden experienced by parents caring for a child with epilepsy. Descriptions and definitions of the construct QOL are followed by reported research findings on the QOL of patients with epilepsy. The importance of the QOL of parents caring for a child with epilepsy is emphasized and this leads to an examination of existing research on the QOL of these parents. Research on the QOL of parents of children with epilepsy is limited despite the important roles parents fulfil in the life of their child with epilepsy and the potentially negative consequences of these additional roles for the child, the parents and the remainder of the family. Identification and an understanding of the dimensions of QOL of parents that are impacted upon by a child's epilepsy may produce improved treatment outcomes and QOL for children diagnosed and living with epilepsy. Recommendations for future research are included in the present review. / AFRIKAANSE OPSOMMING: Die fokus van hierdie oorsig is die lewenskwaliteit van ouers wat 'n epileptiese kind versorg. Die oorsig is gebaseer op gepubliseerde boeke en artikels wat beskikbaar is op Psychlit en Medline databasisse. Die oorsig voorsien 'n omskrywing van epilepsie asook van die probleme wat pasiente, veral kinders, ondervind. Die belangrike rolle wat ouers in hul kinders se lewe speel word bespreek en dit word gevolg deur 'n bespreking van die stres en druk wat ouers wat epileptiese kinders versorg, ondervind. Beskrywings en definisies van die konstruk lewenskwaliteit word aangebied, gevolg deur 'n opgawe van navorsingsbevindinge oor die lewenskwaliteit van epiletiese pasiënte. Die belangrikheid van die lewenskwaliteit van ouers van 'n epileptiese kind word beklemtoon en dit lei tot 'n oorsig van huidige navorsing oor die lewenskwaliteit van hierdie ouers. Ten spyte van die belangrike rolle wat ouers in die lewe van hul epileptiese kind speel en die moontlike negatiewe gevolge van hierdie bykomende rolle vir die kind, die ouers en die ander familielede, is navorsing oor die lewenskwaliteit van ouers met epileptiese kinders beperk. Identifisering van en insig in die faktore wat 'n impak het op die lewenskwaliteit van ouers met 'n epileptiese kind, kan lei tot verbeterde behandelingresultate en hoër lewenskwaliteit vir kinders wat gediagnoseer word en wat met epilepsie saamleef. Aanbevelings vir toekomstige navorsing word ook in hierdie oorsig gemaak.

The purpose of this study was to examine the interrelationships among the themes of Taylor's (1983) Cognitive Adaptation Theory for schoolagers with asthma. In addition, the influence of Taylor's (1983) themes on the children's social behavior was also tested. The three themes of Taylor's (1983) theory included A Search for Meaning, Restoration of Self-Esteem, and Gaining a Sense of Self-Mastery. Two components of A Search for Meaning included the Impact of Disease and the Cause of Disease. Relating Behaviors-Cooperating Behaviors was the index of social behavior. Forty-five Caucasian children between the ages of seven and ten years who had a diagnosis of asthma and did not have any mental disability were the convenient sample. Data were collected in the children's homes. Three questionnaires and two interviews were used to measure Taylor's (1983) themes and Relating Behaviors-Cooperating Behaviors. Descriptive statistics were used to answer the research questions and provide additional findings related to the conceptual framework. Two relationships among Taylor's (1983) themes were significant (p ≤ .05). Children who reported greater impact of asthma upon their lives (Impact of Disease) reported lower self-esteem (Restoration of Self-Esteem). Children who reported greater impact of asthma upon their lives (Impact of Disease) also reported a lesser internal locus of control orientation (Gaining a Sense of Self-Mastery). The Cause of Disease was the only concept which correlated significantly with Relating Behaviors-Cooperating Behaviors and thus, influenced this concept. Children who named a cause for their asthma reported more relating and cooperating skills. The Cause of Disease explained 6.5% of the variance for Relating Behaviors-Cooperating Behaviors. Characteristics of the children's asthma condition and their families were significantly related to the themes of Taylor's (1983) theory and Relating Behaviors-Cooperating Behaviors. Developmental differences were found from age group analyses. The classification of the children's responses for the cause of asthma and reliability and validity estimation for the HIIS were also reported. Five potential sources of error which may have affected the findings included design, instrument, subject, investigator, and specification errors. Suggestions for future research with the conceptual framework were discussed.

No description available.

Thesis (M.A.) - Simon Fraser University, 2005. / Theses (Dept. of Psychology) / Simon Fraser University. Also issued in digital format and available on the World Wide Web.