No description available.

This mailed survey of nurses in all (111) New South Wales aged care facilities with Huntingdon Disease affected residents, used a custom designed questionnaire in a triangulated exploratory design. It was undertaken by an HD specialist nurse into the previously un-researched field of the nursing challenges in that setting. Knowledge was sought, through descriptive and correlational analysis of fixed choice and open-ended questions, of the facts of the affected resident profile (N=63). Similarly, nursing opinions were obtained on the following unsatisfactory aspects of care provision, the impact of internal resources and the HD nursing role and its support. Results are discussed in some detail. Overt evidence of stigmatisation was not evident. Approximately 32 additional long stay HD beds are needed plus more equipment and education for the aged care facilities. The outreach model of support was strongly endorsed. / Master of Nursing (Hons)