Background: This systematic review aimed to identify factors related to psychological distress in family members of pediatric cancer patients on active treatment. Methods: Search strategies were entered into six academic databases. Randomized, nonrandomized, quantitative descriptive and mixed method studies, examining factors related to psychological distress in the population of study were included. Identified factors were coded as per the 4P’s of case formulation. Results: 59 studies were included. Parental factors identified: 24 predisposing factors; 12 precipitating factors; 35 perpetuating factors; and six protective factors. Sibling factors identified: five predisposing factors; one precipitating factor; 14 perpetuating factors; and two protective factors. A text-based, narrative synthesis and tabular summaries are presented. Discussion: Findings can support the: (1) recognition of distress exhibited in family members; and (2) the timing of interventions specific to the chronological manifestations of distress. Assessment of risk of bias was not done. Other: International Prospective Register for Systematic Reviews (PROSPERO) registration number CRD42018109802. No sources of funding to declare.

Suicid är en avsiktlig, självdestruktiv handling som leder till döden. Varje år begås närmare 800 000 suicid runt om i världen och av dessa uppskattas cirka 1100 suicid begås i Sverige. I genomsnitt sörjer sex personer för varje fullbordat suicid, vilket innebär att sjuksköterskor i stor utsträckning kommer att möta dessa anhöriga inom vården. Syftet med studien var således att belysa anhörigas upplevelser av att mista en familjemedlem till följd av suicid. Föreliggande studie är en litteraturbaserad studie baserat på kvalitativa artiklar. Studien behandlade begrepp som hälsa och lidande, vilket vidare relaterades till suicid och de efterlevandes upplevelser. En sammanställning av totalt nio vetenskapliga artiklar användes som grund i utformningen av resultatet. Resultatet redovisade att de efterlevande i hög omfattning upplevde känslor av skuld och skam, relaterat till att bli dömd av andra och att döma sig själv. Att bli dömd av omgivningen framgick bero på att denna sortens handling inte var accepterat i samhället, det beskrevs vara ett tabubelagt ämne. Stöd beskrevs upplevas som antingen tillfredsställt eller bristande. Att genomgå sorg innefattade ett känslomässigt kaos och de efterlevande hade ett stort behov av att få sörja. Att därefter gå vidare i livet gjordes med hjälp av olika metoder, bland annat ritualer för att bevara minnen av den avlidne men även att uppnå acceptans för att förmå att leva vidare. Dessa efterlevande upplevde ofta både psykiskt och fysiskt lidande, genomgående i kris- och sorgeprocessen. Det beskrevs att de efterlevande upplevde stort behov av stöd, men att flertalet inte erhöll tillgodosedda stödinsatser. Sjuksköterskors förmåga till utveckling av vårdkvaliteten för att förmå att minska lidande och förebygga ohälsa hos dessa anhöriga beskrevs därför som viktig. Sjuksköterskor bör således även ha en grund i vårdvetenskap för att kunna bidra till kunskapsutveckling inom detta område. / Background: Suicide is defined as a deliberate and self-destructive act that leads to death. It’s considered as a extensive health problem and each year, nearly 800 000 people die as a result of suicide around the world. Six people in each case estimates to be affected about the suicide. Sufficient support is considered important for these people. Aim: The aim of this study was to illuminate relative’s experience of losing a family member as a result of suicide. Method: A literature-based study including qualitative studies was chosen, according to Friberg (2006), in order to illuminate the relative’s experience of losing a family member as a result of suicide. The results of a total of nine scientific articles were compiled. Results: The results are presented in four themes, and a total of eight subthemes. The presented themes where grief, to be judged by others and to judge themselves, need of support and to continue living. Conclusion: The relatives often experience great suffering, but the results in this study shows that most suicide survivors don’t receive sufficient support. The care of these survivors thus requires a big commitment from the nurses. A guidance to relevant support measures is therefore of great importance, because sufficient support relieve illness, suffering and depression. The nurse should have a reflective approach and a scientific base in the care of these suicide survivors.

No description available.

Background: To be the close relative of a terminally ill person, who is receiving special palliative care, is a life changing experience. According to the guide lines for palliative care both the patients and their family members have the right to support, and to be part of the caring process. For nurses to be able to meet the needs of relatives, understanding their experience of special palliative care is crucial. Aim: To highlight the family´s experience of palliative care from specialist palliative operations. Method: A method based on the analysis of qualitative research was used, in order to contribute to evidence-based care. Ten scientific articles were analysed. Results: Emotions of guilt and relief were common amongst family members. The family members experienced that the nurses where a safe harbor when the family members received the support they needed. Sometimes the family members felt as if their homes and their private sphere became a workplace. Conclusion: Honest, straight, and clear communication was of great importance. For family members to be able to ask nurses for help and to feel supported in different situations was also important. The physical symptoms of death approaching became symbols of grief and sorrow.

Background: Being close to a person who suffers from a disease can mean a burden, as these tends to disregard own needs in favor of the person who is sick. Aphasia is a disorder that affects communication skills and is one of the most common complications due to brain damage. Aim: The main purpose of this literature study was to illuminate relatives experiences of living with a person with aphasia. Method: Nine scientific articles were analyzed with a qualitative manifest content analysis which resulted in three themes with subthemes: Emotional reactions: The impact on well-being, Changing social and emotional relationships; A changed everyday life: Obstacles in communication, Decreased social interaction, Being able to handle everyday; Increased need for support: To get information about the aphasia; Deterioration of the economy and the need for financial support. Result: It was revealed that relatives felt left aside in the care of their relative with aphasia, resulting in an increased need for information, support and relief. Conclusion: Therefore conclusion was that relatives should be asked by nurses of how much involved in the care of their sick relative they want to be or can be and how much support they need to be able to handle that.

MFamMed, Faculty of Health Sciences, University of the Witwatersrand, 2010

No description available.

This study was conducted with employees from Drakensberg Power Station, in Kwazulu Natal. Twenty-three non-supervisory employees were interviewed, and six supervisors partook in a focus group. The purpose was to gain insight into the experiences and perceptions of employees about the Employee Assistance Programme (EAP), by exploring factors influencing utilisation and investigating the extent of employee awareness of the EAP, to recommend appropriate modifications to the service. Findings indicate employees are aware of the service, but unfamiliar with its purpose and functioning. They are not aware of how to access the service. The utilisation is affected by the lack of visibility of the service, the lack of awareness of family members about the services and concerns about confidentiality. It was found that supervisors were not adequately trained in the EAP and lacked the information to effectively utilise the service, thus they were reluctant to refer employees to the EAP. / Dissertation (MSD (EAP))--University of Pretoria, 2005. / Social Work and Criminology / Unrestricted

This analysis of secondary data collected from family members of nursing home residents in North Texas (n = 422) used a mixed methods approach to determine if there is a difference in perspectives on quality care among family members of Alzheimer’s/Dementia Special Care Unit (ADSCU) residents compared to those of non-ADSCU residents. Descriptive content analysis was used identify and condense responses to an open-ended question into four meaningful categories of qualities of care. An independent t-test was employed to determine if there was a difference between family members of ADSCU residents and family members of non-ADSCU residents regarding their rating of their loved-ones’ nursing home on the important qualities of care they identified from the open-ended question. Closed-ended questions were organized into indices of these qualities of care, and ordinary least square regression was employed to determine if there were significant differences between perceptions of family members of ADSCU residents and those of non-ADSCU residents regarding care their loved-ones are receiving on these qualities of care, controlling for frequency of visit.

Family members and caregivers of persons who experience mental disorders may themselves require support and treatment services to help them cope. Mental health agencies in Illinois serve clients with mental illnesses but the extent to which they also provide services to and involve family members and caregivers in the treatment process is unclear. In addition, it is unclear the extent to which the mental health treatment system provides support, including coping skills training and education, to family members and caregivers of persons with mental illnesses. The purpose of this study was to gather information regarding the support that caregivers of persons with mental illnesses were able to receive from the treatment agencies. In addition, caregiver perspectives on their caregiving burden and their ability to become involved in their loved ones’ treatment process were solicited.Datawere gathered through a series of semi-structured interviews with family members of persons with mental illnesses. The interview data were then analyzed using an Interpretive Phenomenological Analysis approach (Smith and Nizza, 2022). The group experiential themes that arose revealed that while some caregivers were able to access support from mental health agencies, others were not. Some of those who were not able to access support from mental health agencies were able to access support from other sources, such as family members, friends, and groups like the National Alliance on Mental Illness (NAMI). However, there were a minority of participants who did not have access to support and expressed significant emotional and financial burden. Caregivers were also mixed in their reports of treatment involvement. Some caregivers were able to be involved in treatment, safety planning, and medication management decisions for their loved ones. Others were not allowed to be involved, despite requests. An unanticipated theme arose regarding academic accommodations for adolescents with mental illnesses and the difficulties caregivers had securing accommodations for their loved ones. Another aspect of the mental health treatment process arose when caregivers brought up the topic of how mental illnesses were managed in ER settings prior to psychiatric hospitalization. The findings from this study suggest that caregivers have mixed experiences with being able to access support from either the mental health agencies or other sources. In addition, Caregivers were not always allowed to be involved with their loved ones’ treatment, even when their intentions were to assist their loved ones in achieving therapeutic goals. Suggestions for improvements to mental health treatment processes and support that could benefit caregivers were also discussed.