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The purpose of this study was to evaluate the utility of the Adaptive Tasks Framework for assessing parental needs when providing primary care for their child with a chronic health condition. A qualitative descriptive methodology framed the study and two methods were employed to collect data: a secondary analysis of existing interview data from seven parents of children with chronic health conditions and interviews with four parents who were currently providing primary care for their child with a chronic health condition. The data was analyzed using content analysis, whereby interview data was explored to determine if it fit into one or more of the eight adaptive tasks categories. Parents reported needs in all of the eight adaptive tasks categories, with the need for information regarding their child's chronic health condition being the foremost concern among parents. The need for caring, empathetic, and patient health care professionals who are sympathetic to the informational needs of parents, while at the same time acknowledging their expertise, was the second need expressed by the parents in this study. Implications of these findings for nurses is that the Adaptive Tasks Framework provides a useful tool for assessing parental needs when managing their child's chronic health condition and for determining areas in which the parents may require support.

The purpose of this study was to evaluate the utility of the Adaptive Tasks Framework for assessing parental needs when providing primary care for their child with a chronic health condition. A qualitative descriptive methodology framed the study and two methods were employed to collect data: a secondary analysis of existing interview data from seven parents of children with chronic health conditions and interviews with four parents who were currently providing primary care for their child with a chronic health condition. The data was analyzed using content analysis, whereby interview data was explored to determine if it fit into one or more of the eight adaptive tasks categories. Parents reported needs in all of the eight adaptive tasks categories, with the need for information regarding their child's chronic health condition being the foremost concern among parents. The need for caring, empathetic, and patient health care professionals who are sympathetic to the informational needs of parents, while at the same time acknowledging their expertise, was the second need expressed by the parents in this study. Implications of these findings for nurses is that the Adaptive Tasks Framework provides a useful tool for assessing parental needs when managing their child's chronic health condition and for determining areas in which the parents may require support.

Background: While literature indicates a positive impact of family interventions (FIs) on people with experience of psychosis, less is known about outcomes for other family members involved with these interventions. Furthermore, there is a paucity of literature offering an understanding of how young people with a parent with experience of psychosis view themselves in relation to their parent’s care. In the context of community care for psychosis, consideration of family views and outcomes is important in establishing how their needs may best be met. Aim: The thesis aims were twofold: (a) to systematically review the literature to explore the impact of single FIs for psychosis on family members, establish whom outcomes are being gathered for, and to what extent children and young people are involved; and (b) to develop an understanding of how young people with a parent with experience of psychosis conceptualise themselves in the context of their parent’s care. Method: A systematic search of the literature was conducted in October, 2016. Additionally, 12 interviews were carried out with 11 young people (aged 14-18 years) with a parent with experience of psychosis. A grounded theory approach was employed. Results: 21 studies were included in the systematic review. 86% revealed at least one positive outcome for family members engaging with FIs. None of the studies included children or young people. In the empirical study, a provisional theory was generated and at the core of this is how young people establish and negotiate their role in relation to their parent’s care in the context of adolescence; balancing caring for and/or living with a parent with experience of psychosis with “being a teenager”. This process appears dependent on young people’s perception of parental needs and supports and among other factors, seems to be facilitated by having appropriate information (that is specific and formulation based). Young people perceiving adults to view them as “too young” appears to be a significant barrier to this. Conclusion: The systematic review points towards a generally positive impact of FIs on family members but involvement of children and young people is lacking. The empirical study highlights that parental psychosis appears to pose additional and unique challenges to young people, particularly in the context of adolescent development; emphasising the need for better support, appropriate information sharing and adults recognising and validating young people’s experiences. Future research would benefit from the exploration of inclusion of children and young people in FIs.

The purpose of this study was to evaluate the utility of the Adaptive Tasks Framework for assessing parental needs when providing primary care for their child with a chronic health condition. A qualitative descriptive methodology framed the study and two methods were employed to collect data: a secondary analysis of existing interview data from seven parents of children with chronic health conditions and interviews with four parents who were currently providing primary care for their child with a chronic health condition. The data was analyzed using content analysis, whereby interview data was explored to determine if it fit into one or more of the eight adaptive tasks categories. Parents reported needs in all of the eight adaptive tasks categories, with the need for information regarding their child's chronic health condition being the foremost concern among parents. The need for caring, empathetic, and patient health care professionals who are sympathetic to the informational needs of parents, while at the same time acknowledging their expertise, was the second need expressed by the parents in this study. Implications of these findings for nurses is that the Adaptive Tasks Framework provides a useful tool for assessing parental needs when managing their child's chronic health condition and for determining areas in which the parents may require support. / Applied Science, Faculty of / Nursing, School of / Graduate

Tyrimo tikslas. Išanalizuoti Neonatologijos klinikoje gydomų naujagimių tėvų poreikius. Tyrimo uždaviniai: 1. Nustatyti Neonatologijos klinikoje gydomų naujagimių tėvų svarbiausius poreikius. 2. Išanalizuoti Neonatologijos klinikoje gydomų naujagimių tėvų poreikių tenkinimą. 3. Nustatyti personalo vaidmenį tenkinant Neonatologijos klinikoje gydomų naujagimių tėvų poreikius. Tyrimo metodika. Tyrimas buvo vykdomas 2010 balandžio – liepos mėnesiais LSMUL Kauno klinikų Neonatologijos klinikoje. Tyrime dalyvavo 455 respondentai (iš jų 365 NLS ir 90 NITS). Tyrimo metu informacijai rinkti buvo naudojamas Gudrun Kristijandottir „Tėvų poreikių vaikų intensyviosios terapijos skyriuje“ vertinimo įrankis. Statistinei duomenų analizei naudota SPSS 17.0 kompiuterinė programa. Atlikta aprašomoji statistika, vertinta požymių priklausomybė, lyginti neparametrinių kintamųjų vidurkiai bei proporcijų lygybė, ryšio stiprumas. Skirtumai laikyti statistiškai reikšmingais, kai reikšmingumo lygmuo p≤0,05. Išvados. 1. Analizuojant Neonatologijos klinikoje gydomų naujagimių tėvų pasitikėjimo, užtikrintumo, informacinių, skatinimo, tėvų fizinių poreikių, mokymo, tėvų visų poreikių, paramos, kuri užtikrintų tėvų gerovę, paramos, susijusios su kitais šeimos nariais, finansinės konsultacijos poreikių svarbos vertinimus statistiškai reikšmingų skirtumų tarp poreikių poskalių vertinimų nustatyta nebuvo, todėl iškelta hipotezė, kad Neonatologijos klinikoje gydomų naujagimių tėvams svarbiausi yra... [toliau žr. visą tekstą] / The aim of the study. To analyze the needs of parents of hospitalized newborns in the Neonatal Clinic. Objectives: 1. To establish the most important needs of parents of hospitalized newborns in the Neonatal Clinic. 2. To analyze the meeting of needs of parents of hospitalized newborns in the Neonatal Clinic. 3. To identify the role of personnel in meeting the needs of parents of hospitalized newborns in the Neonatal Clinic. Methodology. The study was conducted in April – July of 2010 at the Neonatal Clinic of Lithuanian University of Health Sciences Hospital (LSMUL). This study included 455 parents (365 at Newborns Care Unit (NCU) and 90 at Neonatal Intensive Care Unit (NICU)). Data was collected using „NPQ – Needs of Parents Questionnaire“ developed by Gudrun Kristijandottir. Statistical data analysis was performed using SPSS 17.0 software program. Performed descriptive statistics, evaluated the signs of addiction, compared means nonparametric variables’ and equality of proportions, the connection strength. The differences were statistically significant at the significance level of p ≤ 0.05. Conclusions. 1. Analyzing importance of parental needs in Neonatal Clinic: trust, assurance, information, encouragement, guidance, support ensuring welfare of parents, support related to other family members, financial consultation, physical and other parental needs statistically significant differences were not found. Therefore, hypothesis, that informational needs are the most... [to full text]